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Not Understanding Dementia

Caregiving For Dementia

Release Date: 03/16/2019

27 Months Without Mommy show art 27 Months Without Mommy

Caregiving For Dementia

This is just an update of the family. 27 Months after losing Mommy!

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Life After Caregiving Part 2 show art Life After Caregiving Part 2

Caregiving For Dementia

This Episode is a continuation of what went on after Mommy was picked up.

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Life After Care Giving show art Life After Care Giving

Caregiving For Dementia

This is the first of a few episodes that goes through what you may feel right immediately after your loved one passes away. There's not a whole lot of show notes of these episodes it's just me talking about what happened immediately after mommy's death. What I thought would happen that didn't and that kind of thing. I hope these few episodes help you get along for a few months immediately following your loved one's death.

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A Happy Thanksgiving Message show art A Happy Thanksgiving Message

Caregiving For Dementia

This episode is a brief message to all those who are still downloading the podcast happy Thanksgiving to all

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Caregiving journey ended show art Caregiving journey ended

Caregiving For Dementia

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The hardest talk a family can never have. show art The hardest talk a family can never have.

Caregiving For Dementia

Episode # 93 There comes a time in caregivers journey that they know time is very close to running out. We hear caregiving for dementia have realized that fact. The past five days Mama has not eat anything at all, the past four days Mama has not drank anything, and for the past three days Mama’s been very hard to wake up at all. When she is awake it’s about two minutes and she’s right back out. Mamas, breathing has also changed its no longer normal breathing. Doesn’t look the same, doesn’t sound the same as the normal breathing does Mama breeze through her mouth...

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Things we take for granted as Caregivers show art Things we take for granted as Caregivers

Caregiving For Dementia

Episode #92 Show Notes There are so many things in life that normal people take for granted. This becomes more apparent the longer you take care of your loved one. There are things that I take for granted because there things that come natural to me that Mama can no longer do for herself. Mama can no longer wash her face, brush her hair, brush her teeth, or even talk. Mama tries so hard to talk to us and you can see the frustration in her face as she tries to say something and can’t. Mama tries to hold a cup of something to drink and because of her Parkinson’s she...

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Caregiving Mistakes,Regrets show art Caregiving Mistakes,Regrets

Caregiving For Dementia

In your caregiving a lot of times you do things in the heat of the moment. After time goes by you wonder whether or not what you did was the right thing to do.

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Caregiving Mistakes/Regrets show art Caregiving Mistakes/Regrets

Caregiving For Dementia

Episode #91 Show Notes In your caregiving a lot of times you do things in the heat of the moment. After time goes by you wonder whether or not what you did was the right thing to do. A lot of caregivers won’t tell you everything that they go through in their caregiving. I am one of those people who won’t tell you every little thing that goes on in in the house with the caregiving I am one that won’t tell you what Mama has done to us I won’t tell you what we’ve done to Mama. What I tried to do in this podcast is tell you what we do and what we don’t do because...

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Know It All Doctors show art Know It All Doctors

Caregiving For Dementia

While in your caregiving journey there will be a lot of things that happened that you don’t understand. I know when not when we first started there was a whole lot that went on that we didn’t understand there’s a whole lot that I haven’t gone into with this podcast that went on when Mama first got dementia. That’s one reason why I started this podcast

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More Episodes

Not Understanding
Dementia

Episode # 76

This week’s episode, I talk a little bit about some of the
things that I don’t understand about dementia. One of the things that I don’t
understand is where dementia comes from 2 how you get dementia and 3 why does
it act the way it does.

It doesn’t seem that anyone knows exactly where or how you
get this devastating disease of dementia. No one seems to know why it acts the
way it does. There are some that say it’s connected to concussions, but the
problem I have with that so far is the fact that, as far as I know. Mamas never
had a concussion. So if dementia is connected to concussions why or how did mom
get it.

I also don’t understand the way it affects some people so
quickly because at episode 46, I talk about your personal
appearance, because I had gotten my haircut and shave my beard. Episode 46 is a
recording of the reactions I got from mom. When I recorded episode 46 Mama was
so happy that I cleaned up. She was happy she ran her fingers through my hair
and I got a lot of goo goo gaga from her. Approximately 4 days ago I got
totally 360° different reaction from her, when I got my haircut and shave my
beard once again. This reaction that I received 4 days ago was a terrifying
look she didn’t want anything to do with me. She didn’t want to talk to me. She
didn’t want to have anything at all to do with me. She was absolutely terrified
of me.

I don’t have any real good explanations as to why she was so
terrified, other than the fact that it was a quick and sudden change. I don’t
believe she handle the quick and sudden change very well. I think she was very
confused as to who I was, so that would explain the terrifying look that I
getting for approximately 4 or 5 hours.

I also don’t understand why for some reason, Mama is getting
nightmares. You know when you have small children, your 1st reaction
to a nightmare is to just put your child in the bed with you and let them go to
sleep as you are comforting them and let them know that it’s all right. You
can’t do that with an adult who has dementia that has nightmares. The only
thing you can do an adult is just comfort them. The best you can sit with them
hold their hand and love on them until they calmed down from their nightmare.
They will eventually just fall asleep in their own bed.

Medications are another thing that I don’t understand, When
you have a child who’s on medication, you can somewhat force that child to take
its medication. With an adult, you can’t force them to take their medication
when they don’t want to take it. Trying to force them to take their medications
is only going to upset them, which is going to upset you, which is going to
upset them even more, and that’s not good for either one of you. The only thing
you can do with their medication time is to take your time and if they don’t
want to take it on time back off and come back in a little while and they will
eventually take their medications. You may end up happening to do this several
times in order for them to take their medication.

These are just some of the areas that I do not understand why
dementia acts the way it does. Mama never had nightmares before, Mama never had
a problem taking medications before. These are some signs of the dementia
getting a little worse. I believe. The only thing I can think to say is don’t
lose your patience with them, which I know is easier said than done, been there
done that. When you feel yourself losing it just walk away. They’ll be okay
even if they’re on the pot they will be okay. Come back and just tell them you
love them, calm them down, if you can, because one day sooner than you may
think they may not be here to tell them that you love them. They may not be
here to give you problems with their medication. They may not be here to wake
up from a nightmare. So just  love on
them as much as you can now, because one day they may not be here at all.