New Treatment Options and Trials
BloodStream
New treatment options are here for the hemophilia community! Learn more in Patrick’s conversation with Craig Benson and our latest Gene therapy segment that focuses on the psychological impact of gene therapy. Plus, we share news about the Genentech and Spark integration. Presenting Sponsor: Takeda, visit to learn more. It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit or download B SUPPORT wherever you get your apps for more information. Segment is brought to you by Genentech:...
info_outline
Stop the Bleeding!, a retrospective
BloodStream
Stop the Bleeding! is celebrating 14 seasons of using comedy and entertainment to raise awareness and educate about hemophilia and other bleeding disorders. Join creator, director, and star, Patrick James Lynch, in a retrospective with director and writer Jim Fagan as they reminisce about the show’s characters and conflicts, and how entertainment & digital media was used to engage, educate, and inspire people with chronic conditions. Presenting Sponsor: Takeda, visit to learn more. Watch the trailer for the latest season! AWARDS & HONORS 2018 LA Web Fest - Best...
info_outline
Aging with a Bleeding Disorder
BloodStream
Join us for an episode dedicated to aging with hemophilia, with several stories from our community. We hear from Jeffrey Moualim & Barb Forss, and Patrick sits down with Prisilla Oren, while Hanna chats with Walter Justus. It’s a special episode to celebrate the strength of our community. Presenting Sponsor: Takeda, visit to learn more. Segment is brought to you by Genentech: Visit to watch the short film. Show Notes: Subscribe: Connect with BloodStream Media:
info_outline
NBDF CEO weighs in on current events
BloodStream
NBDF CEO, Phil Gattone, is back on the show to share his thoughts on the current events happening in our bleeding disorder community. Plus, Hanna speaks with Stanford law professor Dr. Hank Greely and legendary hematologist Dr. Margaret Ragni about how we know when gene therapy is the right choice—and is our system ready to support it? And, an interview with the founder of Hope Runs Red, Breana Sinkfield. All this and more! Presenting Sponsor: Takeda, visit to learn more. It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a...
info_outline
Medicaid Cuts and vWD Clinical Trials
BloodStream
Potential Medicaid cuts are looming that could affect our community. Hear how you can take action! We also have exciting news about a clinical trial for von Willebrand’s disease and a special community story from Kayla Klein and her mother, Nancy Rodgers. Plus, Patrick has some fantastic updates from the WFH’s Comprehensive Care Summit in Dubai. Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: Medicaid Cuts - Take Action Today! Please call or email the offices you visited in March and remind your lawmakers that Medicaid is a...
info_outline
New Music from Trevor Martin and info about Deliver Us, an upcoming documentary
BloodStream
One of our most stacked episodes in a while, featuring a chat and new music with Blood Brother, Trevor Martin. We also have Dr. Richard Lemon on the latest Gene therapy segment discussing the implications of recent hemophilia B gene therapy data. Plus, Allegra Hill and Kimberly Durdin from the only Black-owned birthing center in LA, and the visionary subjects behind our upcoming documentary Deliver Us. AND NYLI’s Shanthi Hegde & Eliza Marie VanZweden! Whew! 😅 Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: It’s a Whole New World Gene...
info_outline
Shakeup at CDC - What does it mean???
BloodStream
On April 1st, the Administration announced drastic changes and reductions to the federal health programs, one being the Division of Blood Disorders CDC, greatly affecting the bleeding disorders community. To discuss these concerns, we welcome a familiar face to many of you - Johanna Gray, federal policy advisor to NBDF and all-around wonderful human. Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: The CDC cuts are of particular concern to our community. The Division of Blood Disorders’ work traces back to the 1980s’ tainted blood crisis,...
info_outline
I’m Fine: The Devil You Know
BloodStream
In this special pop-up episode of the Bloodstream Podcast, host Patrick James Lynch discusses the discontinuation of two Takeda bleeding disorder products with Anthea Cherednichenko, Takeda's VP Franchise Head Hematology and Transplant. Additionally, the 'I'm Fine' segment, sponsored by Sanofi, explores why people cling to the notion of being 'fine' and the importance of embracing vulnerability for true resilience. I’m Fine is presented by @SanofiUS Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: Connect with BloodStream Media: ...
info_outline
HFA CEO Dan Kelsey & Gene Therapy w Brendan Hayes
BloodStream
HFA Symposium is this weekend, and we have CEO Dan Kelsey on the podcast to tell us all about it! Plus, a gene therapy segment with the fantastic Brendan Hayes about what she’s hearing in the community about gene therapy for hemophilia B. Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit or download B SUPPORT wherever you get your apps for more information. Connect with BloodStream Media: ...
info_outline
I'm Fine: Honesty & Lies
BloodStream
On this special pop-up episode of the Bloodstream podcast, we’re back with another 'I'm Fine' segment, which delves into the complexities of honesty and mental health. This episode features insights from Gabi Flores on the importance of addressing mental and emotional wellbeing, particularly for those managing chronic conditions. I’m Fine is presented by @SanofiUS Please share this survey with any friends you have with hemophilia A with or without inhibitors, who will help us educate the investment community on the need for new and better therapies. $50...
info_outlineThis month on The BloodStream Podcast, Shari Luckey shares her “Living in the Shadows with Mild Hemophilia” story, Natalie presents an article on the things you need to know before purchasing CBD oil, we bring to you updates on the legal dispute between Roche/Genentech, and we hear from participants and organizers of the Wheels For The World Barry Haarde Memorial Bike Ride. All that and more on Episode 27 of The BloodStream Podcast!
Exclusive Sponsor: Shire
Latest Ask The Expert Podcast: Ep. 17: Mental Health - w/ Debbie de la Riva - July 23, 2018
Latest Powering Through Podcast: Ep. 19 - Idaho w/ Preston Bowling, Skyler Openshaw, & Allie Cashel
STBhemo.com (Stop The Bleeding!)
Leave us a review on iTunes! Help others from BloodStream!
Community News In 60 Seconds
Like Segment: Before You Buy CBD Oil Online, Ask These Questions
Share Segment: Shari Luckey - “Living in the shadows with Mild Hemophilia”
Comment Segment:
Update on Shire Injunction Filing on Roche/Genentech
Court Rules on Shire/Roche Preliminary Injunction
Interview Segment: Laurie Kelley
BloodFeed:
Connect with BloodStream:
Email [email protected]
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Subscribe to BloodStream:
iTunes: http://bit.ly/bloodstreamitunes
Stitcher: http://bit.ly/bloodstreamstitcher
LibSyn: http://bit.ly/bloodstreamlibsyn
SoundCloud: http://bit.ly/bloodstreamSC
TuneIn: http://bit.ly/bloodstreamtunein
Google Play: http://bit.ly/bloodstreamPlay
Spotify: http://spoti.fi/2nNPhui