Transitioning: Mobility Challenges + Nature = Next Chapter
Glass Half Full with Leslie Krongold, Ed.D.
Release Date: 09/18/2021
Wuzzup: Growing older with a progressive health condition
Glass Half Full with Leslie Krongold, Ed.D.
An episode to catch everyone up on what’s been going on in the life of someone in their early 60s with a progressive health condition. Waning energy prohibits many of us for reaching all of the goals we’d like to achieve. It takes time to acclimate to a new normal and reassess which goals are most important and how best to achieve them dealing with new limitations. Foremost for someone with myotonic dystrophy, like myself, is getting enough sleep so I have energy to maintain a regular movement practice even with shifting mobility. The annual May Movement Challenge I’ve produced for the...
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What is AAC (Augmentative and Alternative Communication)?
Glass Half Full with Leslie Krongold, Ed.D.
My guest for this Glass Half Full podcast episode is Patrick Regan. Patrick is a young man living in Alaska with SMA (spinal muscle atrophy) who uses AAC to communicate. We've gotten to know each other through online BORP classes -- Tai Chi and . Our communication previous to our Zoom podcast recording was through Zoom’s chat. Patrick is not able to speak and uses technology to communicate via text or assisted speech. Our podcast recording was the first time I actually saw him live since he usually has a photo of himself in the Zoom window. And he varies the photos so I’ve seen him...
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Why is Movement my Medicine?
Glass Half Full with Leslie Krongold, Ed.D.
I don’t know who coined the term movement is medicine, but it resonates for me. My early experiences with exercise were not joyful; grade school physical education was bad medicine. But once I started dancing with friends in high school – before carding and ID checks were mandatory – I experienced movement in a positive way. Shortly after college I started a yoga practice which was medicine for my body and mind. In this podcast episode I tell my story of what led up to the 2021 launch of the May Movement Challenge -- a month of free online movement classes that are meant to be accessible...
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We need innovative solutions when it comes to the rare (disease) community
Glass Half Full with Leslie Krongold, Ed.D.
February 28th is Rare Disease Day. Twenty-five to 30 million Americans live with a rare disease. For more facts and figures related to rare diseases, check the NORD . This podcast episode catches up with Aditi Kantipuly, a physician and advocate, immersed in the rare disease community. As a young girl Aditi learned about a child born with osteogenesis imperfecta – a rare bone condition – and has been captivated ever since. Her journey includes a masters program in public health, a Fulbright scholarship to small villages throughout India, and medical school. Currently she’s exploring...
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Coping with the Holidays
Glass Half Full with Leslie Krongold, Ed.D.
The holidays can be difficult for most anyone but if you live with a chronic health condition and/or physical disability, the barriers to joy and festivity may increase. Four women engage in conversation about coping with the holidays -- Leslie Krongold with myotonic muscular dystrophy, Andrea Klein with collagen 6 congenital muscular dystrophy, Janice Laurence with Charcot Marie Tooth neuromuscular disease, and Roma Leffmann who advocates for people with acquired disabilities as a stroke survivor. Together they discuss issues related to #dysphagia #celiacdisease #incontinence...
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Driving Less Dazy: Responsible vs. Independent?
Glass Half Full with Leslie Krongold, Ed.D.
When to stop driving a moving vehicle? That is the question to ponder; is it a toss up between being a responsible adult or maintaining a sense of independence? For many people, this is a difficult choice. If you live in an urban or suburban location you may have many options available if you give up driving. For others, a car may be a necessity -- one needed to get to gainful employment, purchase groceries, or use to transport family members more disabled than yourself. In this academic , physicians discuss health conditions that predispose patients for difficulties with tasks required for...
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International Myotonic Dystrophy Awareness Day
Glass Half Full with Leslie Krongold, Ed.D.
September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the or . The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for...
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Don't Laugh At Me - I know how it feels
Glass Half Full with Leslie Krongold, Ed.D.
The lyrics to Don't Laugh at Me speak to anyone who has felt like an outsider. Whether or not you were bullied as a child, this song will likely resonate with you. Steve Seskin, the singer-songwriter, and his co-writer were first inspired by a young girl's experience of teasing in grade school. But, the song encompasses inequities experienced by those living with physical and developmental disabilities as well as people experiencing hard times. A few months ago I [Leslie] first heard the song in the online dance class, . Many of the other virtual dancers were familiar with it and sang...
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Uncover the stronger part of yourself...
Glass Half Full with Leslie Krongold, Ed.D.
Liz Ann Kurdrna, Pilates instructor, feels like her emotional recovery from a rock climbing injury is ongoing yet "knowing that I have to show up for someone else…by teaching…it helps. It helps you uncover the stronger part of yourself." In this podcast episode, Liz Ann talks about her lifelong love of rock climbing as well as her participation in other outdoor activities such as swimming, snow skiing, and cycling. In Montana, where she's lived for the past 20+ years, she teaches online and in-person Pilates. Liz Ann has competed in local Triathlon events with the . In this video, Liz...
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Neuropathy: Patient Turned Patient Advocate
Glass Half Full with Leslie Krongold, Ed.D.
Glenn Ribotsky, a Board member with the Western Neuropathy Association, shares his dramatic initiation as a patient into the world of peripheral neuropathy. Now, 18 years later he advocates and offers support to others experiencing the often, invisible pain of a neuropathy.
info_outlineThe Pandemic has brought many changes; for me, it's ushered in the next chapter of my life. Perhaps the final chapter? With mobility challenges, it was one of two choices: home modifications or move to a new house. I chose the latter. The transition could be bittersweet but I think I've gained more than I've lost. I am closer to Nature and getting more than my usual Vitamin N dose.
Shortly after I moved from the East Coast to California in 1989, I had the opportunity to visit Mendocino when I was producing a documentary about women rabbis. Ever since that experience I've visited this beautiful coastal town.
This past May was filled with online accessible movement classes for the May Movement Challenge. Once the month of activity ended, all I did was organize, pack, organize, and pack. The move occured in mid-August and here I am...ready to continue podcasting.