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JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick

Diabetes Connections | Type 1 Diabetes

Release Date: 07/09/2019

Meet the newest insulin pump: all about “twiist” with Sequel CEO Alan Lotvin show art Meet the newest insulin pump: all about “twiist” with Sequel CEO Alan Lotvin

Diabetes Connections | Type 1 Diabetes

This week, the newest pump coming to the market is called the twiist. It’s a very different shape – circular with a top half that twists off – with very different software – Tidepool Loop. The company behind this pump – they’re called Sequel - wants to be different as well, hoping to offer solutions to bigger issue than basal and bolus rates. It’s very ambitious and we have a wide ranging conversation about it all with Sequel’s CEO Alan Lotvin This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Our...

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In the News... Dexcom-to-watch update, Wegovy studies, night time hypo research and more! show art In the News... Dexcom-to-watch update, Wegovy studies, night time hypo research and more!

Diabetes Connections | Type 1 Diabetes

It’s In the News! A look at the top diabetes stories and headlines happening now. Top stories this week: Dexcom launches direct-to-watch with the G7 in the UK and Ireland, more studies looking at heart benefits with Wegovy and diabetes, a new T1D study investigating an injectable to prevent overnight hypoglycemia, lobbying for Levimir, a ChatGPT diabetes diagnosis and more! Find out more about Please visit our Sponsors & Partners - they help make the show possible! Learn more about from extreme temperatures Learn more about Drive The best way to keep up with Stacey and the show...

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The FDA took down this teen’s free bolus calculator. He needs your help to bring it back. show art The FDA took down this teen’s free bolus calculator. He needs your help to bring it back.

Diabetes Connections | Type 1 Diabetes

There used to be a lot of bolus calculators in the app store, maybe you’ve used one and haven’t updated it in a while. Don’t try now.. it’s likely been pulled. Apple and the FDA are cracking down on this types of tools – no unreasonable, right? But surely there are more coming.. how hard can it be to create a simple insulin bolus calculator that’s FDA approved, easy to find, easy to use, free, and doesn’t require you buy anything else? Turns out, it’s pretty darn hard. We’re talking about that today with the inventor of such an app with an interesting story – he’s still...

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Diabetes Technology: Expectation vs Reality with Dr. Stephen Ponder show art Diabetes Technology: Expectation vs Reality with Dr. Stephen Ponder

Diabetes Connections | Type 1 Diabetes

Diabetes technology is getting better and better. We have automated insulin systems that link pumps and CGMs, and smart insulin pens that have precise calculations and reminders. It’s been quite the evolution over the past few years! But outcomes – time in range, A1Cs, aren’t exactly where experts thought they might be. I’m talking to Dr. Stephen Ponder about why that is, how a social media post he shared about this caused a strong reaction, and what does work for better long term outcomes. This podcast is not intended as medical advice. If you have those kinds of questions, please...

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In the News... diabetes drug pricing, vial shortage, pump using Tidepool Loop cleared, insulin cows and more! show art In the News... diabetes drug pricing, vial shortage, pump using Tidepool Loop cleared, insulin cows and more!

Diabetes Connections | Type 1 Diabetes

It's In the News! A look at the top diabetes stories and headlines happening now. Top stories this week: a new study shows that drugs like Ozempic can be produced for just a few dollars, we upate the insulin vial shortage Lilly announced, a new pump has been FDA cleared, a genetically modified cow can product human insulin, and more! Transcript and links below Find out more about  Please visit our Sponsors & Partners - they help make the show possible! Learn more about   from extreme temperatures Learn more about  Drive  The best way to keep up...

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Answering your questions about Tandem’s new Mobi pump (and more) with Director of Product Marketing Ben Mar show art Answering your questions about Tandem’s new Mobi pump (and more) with Director of Product Marketing Ben Mar

Diabetes Connections | Type 1 Diabetes

Approved last year, Tandem’s Mobi is now widely available. We’re getting an update from Ben Mar, Director of Product Marketing, on the features of the Mobi that make this tiny pump different and we look ahead to what Tandem is working on next. Ben also answers your questions about everything from algorithm updates, international access, and much more This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Find out more about Please visit our Sponsors & Partners - they help make the show possible! Learn more about ...

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"It needs to be easier" - DIY pioneer Dana Lewis turns her attention to exercise and T1D

Diabetes Connections | Type 1 Diabetes

This week, one of the pioneers of the DIY movement is turning her attention to exercise. Dana Lewis is partnering with other researchers to create a tool to help you make better and easier decisions around whatever workout you choose. There’s a lot of variability here – big difference between say, weight lifting and long distance running – so this is no easy task. Dana will explain the tools they’re using, the big goals here, and we get to catch up about what she’s using these days to manage her life with T1D which now includes ultramarathoning. This podcast is not intended as...

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In the News... ATTD updates, new CGMs, drops for diabetes eye disease, scholarships and more! show art In the News... ATTD updates, new CGMs, drops for diabetes eye disease, scholarships and more!

Diabetes Connections | Type 1 Diabetes

It's In the News! A look at the top diabetes stories and headlines happening now. Top stories this week: The annual ATTD conference wraps up with news about CGMs, including new FDA approvals and a look at CGMs outside of the US, new eyedrops are being studied to treat diabetic eye disease and Beyond Type 1 opens applications for their annual Beyond Scholars. Transcript and links below Find out more about Please visit our Sponsors & Partners - they help make the show possible! Learn more about from extreme temperatures Learn more about Drive The best way to keep up with Stacey and...

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Behind the Wheel with T1D: Navigating Teen Driving and Diabetes show art Behind the Wheel with T1D: Navigating Teen Driving and Diabetes

Diabetes Connections | Type 1 Diabetes

Let's talk about driving with diabetes! Getting a driver’s license as a teenager comes with enough challenges without type 1, but letting your child with T1D get behind the wheel is stressful, to say the least! I’m sharing what worked for us and expert advice that may help you and tips to let technology be your friend in the car. This is an excerpt of Stacey's book, "Still the World's Worst Diabetes Mom." It's the second book in her series. You can learn more about the books or on Learn more about that Stacey mentions here. This podcast is not intended as medical advice. If you have...

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Addressing the “shocking” lack of research into T1D & periods - Tidepool's Period Project show art Addressing the “shocking” lack of research into T1D & periods - Tidepool's Period Project

Diabetes Connections | Type 1 Diabetes

This week, addressing something that half of all people with diabetes experience but that there is woefully little information and study about. Why is there so little study about periods and type 1 diabetes? We’re talking to two organizations who are teaming up to change that – but they need your help. We’re talking about Tidepool's Period Project. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. You'll hear from Martina Rothenbühler, project leader data sciences and data protection officer at DCB, and Maya...

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More Episodes

JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.

Join the Diabetes Connections Facebook Group! 

Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.

Scroll to the bottom to see a list of items/products mentioned during this episode.

In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. 

 Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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Show Open/Tease

Stacey Welcome - Find out more about Project 50 in 50

JDRF Children's Congress Greater Western Carolinas Chapter Delegates

Community Connection Getting Gear to Stick:

TMSG: 

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This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.

I expect to edit & add to this list in the weeks and months to come. Hope it helps!

Sticky Wipes

These make the skin a bit tacky in order to give the material you put on top a better hold.

Skin Tac wipe or liquid

IV Prep wipe

Mastisol liquid

Stoma Care wipe w/aloe

Hollister skin gel

ReliaMed wipe

Tapes/Patches

Stay Put Medical Patches

Tegaderm film dressing

Opsite Flexifix transparent film

Hypafix dressing tape

RockaDex Dexcom patches

GrifGrips adhesive patch

Waterproof Bandaid

Wraps/Bands

Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)

Vet Wrap

SleekSleeves

Bands4Life

Athletic Sleeves

Rash Guard/Swim shirt (cut to fit)

Misc.

EK Tools Tag Punch Classic (Dexcom-sized hole punch)

Dexcom & Libre Rash (Public Facebook Group)