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#109 - Sensory Processing in Ds (with Dr. Katie Frank) show art #109 - Sensory Processing in Ds (with Dr. Katie Frank)

Down Syndrome Center Podcast

Dr. Katie Frank, PhD, OTR/L, joined the podcast today to talk about sensory processing difficulties in people with Ds and therapeutic approaches. Resources: Mental wellness in Ds book Out of Sync Child Series Sensational Kids Lucy Miller STAR Institute

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#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker) show art #108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker)

Down Syndrome Center Podcast

Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome.   For more information, please see the article discussed:

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#107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull) show art #107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull)

Down Syndrome Center Podcast

Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specifically comment on atlanto-axial instability (AAI).   For parents/caregivers: For healthcare professionals:

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#106 - COVID and Mental Health in Ds (with Dr. Ruth Brown) show art #106 - COVID and Mental Health in Ds (with Dr. Ruth Brown)

Down Syndrome Center Podcast

Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds.  If you would like to add to this data set, please consider taking the survey at http://tiny.cc/DSFAM_VCU.  

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#105 - Hearts of Joy International show art #105 - Hearts of Joy International

Down Syndrome Center Podcast

Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International.  Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects.

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#104 - Become an Ally for Advocacy (with Jawanda and Rachel Mast) show art #104 - Become an Ally for Advocacy (with Jawanda and Rachel Mast)

Down Syndrome Center Podcast

Dr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy.  They also discussed the National Down Syndrome Congress' Ally for Advocacy campaign, and how we can get involved.

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#103 - COVID Vaccination in Children with Ds (with Dr. Andrew Nowalk) show art #103 - COVID Vaccination in Children with Ds (with Dr. Andrew Nowalk)

Down Syndrome Center Podcast

In our ongoing goal to keep you up-to-date with the latest changes in the COVID-19 pandemic, Dr. Nowalk joined the podcast again today to discuss COVID vaccination in children with Down syndrome down to 12 years old.  Dr. Nowalk also addressed the latest CDC guidelines on vaccinated individuals being mask-free in public settings.

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#102 - Orthodontic Care (with Dr. Lindsay Schuster) show art #102 - Orthodontic Care (with Dr. Lindsay Schuster)

Down Syndrome Center Podcast

Listen as Dr. Vellody answers yet another listener question, this time discussing orthodontic care with Dr. Lindsay Schuster.  

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#101 - 2021 NDSC Convention (with Sarah Hill) show art #101 - 2021 NDSC Convention (with Sarah Hill)

Down Syndrome Center Podcast

Dr. Vellody is joined by Sarah Hill who is the Convention Director for the National Down Syndrome Congress.  The 2021 NDSC Convention is a one-of-a-kind opportunity for families and self-advocates to get information on Down syndrome.  This year's NDSC Convention will be virtual and offer loads of opportunities for attendees that are discussed on this podcast.  To learn more or to register for the NDSC Convention, go to .

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#100 - The 100th Podcast! show art #100 - The 100th Podcast!

Down Syndrome Center Podcast

Join us as we remember the history of this podcast and hear beautiful music and testimonials shared by our listeners.  And take a listen to this song by Troy Griffith. Troy Griffith "Ten by Twelve" Music Video   

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More Episodes

Dr. Jillian Rork joins the podcast today as a board certified pediatric dermatologist to discuss skin conditions in Down syndrome.  This is Part 1 of a video podcast series on this topic.  Topics in today's episode include:

  • Dry skin
  • Keratosis pilaris
  • Eczema
  • Cutis marmorata
  • Dry lips, angular chelitis
  • Fissured tongue
  • Perioral dermatitis
  • Diaper rash
  • Alopecia areata