Episode 67 | Todd and Morgan's Story - A son with Biliary Atresia and a liver transplant
Release Date: 05/05/2021
GalTheBabyDoc: Humor + Humanity in the NICU
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
September is NICU Awareness Month, and in this week’s episode, Katie sits down with Dr. Gal, @galthebabydoc, a Neonatologist and Pediatrician, and a dad with experience as a parent in the NICU. He shares his knowledge and experience on social media in digestible ways to help parents and others feel comfortable during difficult times. Throughout the episode, they delve into the experiences and emotions of what parents might be facing when their baby is in the NICU, and how parents can get the most out of communicating with the hospital’s healthcare providers. Dr.Gal, having experience on...
info_outline![How to Talk to Kids About the Things We Wish They Didn’t Have to Face [Palliative Care] show art](https://assets.libsyn.com/content/205427365?height=50&width=50)
How to Talk to Kids About the Things We Wish They Didn’t Have to Face [Palliative Care]
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
How do families navigate a serious childhood diagnosis while still focusing on hope, quality of life, and the everyday moments that matter most? In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Dr. Korie Leigh, PhD, CCLS, a child life specialist, psychologist, thanatologist, author, educator, and pediatric palliative care advocate. Drawing on more than two decades of supporting children and families, Dr. Leigh shares what pediatric palliative care really is—and why it is so much more than many families believe. Together, they explore how pediatric...
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Helping Kids Cope With Needles: The Science Behind Buzzy
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Dr. Amy Baxter, pediatric emergency physician, researcher, inventor of , and founder of , to explore how childhood experiences with needles can shape a lifetime of healthcare interactions—and what parents and healthcare professionals can do to help. After watching her own son develop a fear of needles despite her expertise in pediatric pain management, Dr. Baxter began researching why children experience pain differently and how simple, evidence-based strategies can reduce pain during vaccines, blood...
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When You Become Your Child’s Advocate Overnight
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
What happens when the child you've dreamed of suddenly receives a diagnosis you've never even heard of? For Deborah, it was Angelman syndrome. In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Deborah Trejo, Art Therapist, to share the powerful story of her daughter Maya's journey to an Angelman syndrome diagnosis. After months of feeding difficulties, developmental delays, seizures, and countless unanswered questions, Deborah and her family finally received a diagnosis just one day after Maya's first birthday. Deborah opens up about the emotional realities...
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Doctor Visits, Diagnoses, and Difficult Conversations: A Parent's Guide to Knowing What to Say
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
What do you do when your child receives a diagnosis and your mind suddenly goes blank? Whether you're hearing difficult news for the first time or preparing your child for a medical procedure, knowing what to ask—and how to support your child—can feel overwhelming. In this episode of Inside the Children's Hospital, Katie Taylor, Certified Child Life Specialist, is joined by Dr. Mona Amin, board-certified pediatrician, founder of and Chief Medical Officer at , for an honest conversation about helping families navigate some of the hardest moments in healthcare. Together, they share...
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Prader-Willi Syndrome: Why Caregiving Moms Need Community and Support
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
When your child receives a diagnosis, everything changes. In this heartfelt episode, Katie Taylor welcomes back Jessica Patay, founder of to discuss the emotional realities of caregiving, raising a son with Prader-Willi syndrome and autism, and why supporting the mental health of caregiving moms is essential. Jessica shares how a mentor mom transformed her own journey after her son's diagnosis and how that experience inspired her to create We Are Brave Together, a thriving community supporting thousands of caregiving mothers worldwide. She also introduces her newest book, a collection of...
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How Child Life Specialists Help Children Thrive During Hospital Stays
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
What does it take to help children thrive during a hospital stay? In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Alyssa Sachs, CCLS, an inpatient Child Life Specialist at , to explore how Child Life Specialists help children and families experience joy, connection, and normalcy—even during long and complex hospital stays. Alyssa shares what it's like supporting children on the inpatient neuroscience floor, where patients range from newborns to young adults with epilepsy, neuro-oncology diagnoses, neurosurgical needs, and more. She offers an inside look...
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ADNP Syndrome: A Child Life Specialist's Journey to Diagnosis, Advocacy & Hope
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
When Caitlin noticed that her daughter, Kennedy, wasn't meeting developmental milestones, she trusted her instincts—even when others reassured her that everything was fine. As both a former Child Life Specialist and mom of a child with ADNP syndrome, Caitlin shares her family's journey from early concerns and endless appointments to receiving a diagnosis for a condition so rare that only about 500 cases have been identified worldwide. In this conversation, Caitlin opens up about navigating uncertainty, advocating for her daughter in healthcare settings, finding support through rare disease...
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Growing Up with Chronic Intestinal Pseudo-Obstruction
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
For many families navigating chronic illness, it's hard to imagine what the future might look like for their child. This week on Inside the Children’s Hospital, Katie Taylor sits down with Vincent Rosche, a patient advocate, fitness enthusiast, and survivor who has spent most of his life navigating complex medical challenges. Diagnosed with chronic intestinal pseudo-obstruction (CIPO) at just 9 months old, Vincent grew up with feeding tubes, central lines, frequent hospitalizations, and even battled thyroid cancer as a teenager. Today, Vincent works as the Community Engagement Coordinator...
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Supporting Children Through Burn Injuries
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
Has your child been burned? Whether it was hot water, ramen noodles, a stove, fireworks, or another accident, this episode guides parents through what to do next. In this episode, Katie sits down with Christella Almonacy, Certified Child Life Specialist at Wellstar's Burn Program, to discuss what families can expect after a child experiences a burn injury. Together, they explore the physical and emotional recovery process, how Child Life Specialists help children cope with painful procedures, and why giving kids choices can make all the difference. Christella also shares common causes of...
info_outline“We had to learn everything we could because our son’s life was literally on the line.”
Katie, Certified Child Life Specialist talks with Todd and Morgan who just a few weeks after the birth of their first child were faced with the truth that he had a life threatening condition called Biliary Atresia. The cure? A liver transplant.
Despite the many challenges they faced, Todd and Morgan talk about:
+How they used family to be their “google doctors”
+How to find your voice during bedside rounds
+Why started a business called Child Life Coffee
*Sponsor: Jambo Books
A Jambo Books subscription is like hitting the easy button for great diverse literature for your children. Every month, Jambo Books sends you 2 or 3 age-appropriate fiction books that star children of color. Jambo Books is a great gift for baby showers, birthdays, holidays or just because. Jambo serves children from birth to age 13.
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