Episode 70 | Sara's Story - Telling Your Child You Have Cancer
Release Date: 06/02/2021
Win Bars for LSU Tiger Football and Aplastic Anemia Pediatric Patients
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
During this week’s episode, Katie sits down with Ryan Solieau, an LSU Alum, and dad to a Henry who was diagnosed with Aplastic Anemia. Aplastic Anemia is a rare blood disorder where bone marrow stops making new red blood cells, which appeared in Henry as a heart rate of 250. Ryan takes us through the experience of learning a new reality during all phases of Henry’s diagnoses, from learning how to navigate Henry’s initial hospital stay, all the way to supporting Henry emotionally during his monthly transfusions. In the episode, we also learn from Ryan how crucial it is to take care...
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From Peds Nurse to Cancer Mom: What Helped her Child Cope
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
Pediatric nurse and mom Brigid shares how her family navigated her son’s neuroblastoma diagnosis—with practical guidance on preparing kids for care, accepting support, and finding hope. Key Topics: The symptoms that led to Brigid’s son’s neuroblastoma diagnosis Going from pediatric nurse to parent receiving life-changing medical news Using medical play to prepare young children for procedures Giving children choices and control during repeated medical care Why slowing down can sometimes make procedures easier Supporting siblings through a cancer diagnosis Caring for...
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My Daughter Had a Brain AVM: Advocacy, Medical Trauma, and Hope
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
As we begin to close out NICU Awareness Month, Katie sits down with Matilda “Tilly” Aldridge, a content marketer and mom. During a normal morning, Adelaide, her oldest child, was rushed to the hospital after Tilly and her husband heard Adelaide screaming from her room. She was given a CT scan, and a large tumor was found in her brain. Tilly recounts her experience not only dealing with the sudden occurrence of Adelaide’s medical emergency, but also how Adelaide herself was able to overcome the trauma she suffered. Together, Tilly and Katie dig into what advocating for answers can...
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The Long-term Effects of Short-term Medical Decisions: A parent's story of NEC, the NICU and Short Bowel Syndrome
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
Welcome back to NICU Awareness Month. In this episode, Katie is sitting down with Kim Holland, mom of Tripp who was born at 27 weeks and also developed NEC. NEC, or , which caused Tripp to undergo multiple surgeries and spend months in the NICU. Kim delves into the raw emotions she went through during her pregnancy with Tripp and his stay in the NICU as she had to make tough medical decisions. She also gives us some insight into how she coped and was ultimately able to create a new normal after the NICU. Katie and Kim speak on how to build community and support during a time of healing...
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Best Children's Hospitals (US News): What Parents Need to Know
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
How U.S. News Ranks Children’s Hospitals—and What Parents Should Know Every year, U.S. News & World Report releases its Best Children’s Hospitals rankings—but what do those rankings actually tell families? In this episode, Katie Taylor, CCLS, speaks with Jennifer Winston, senior health data scientist at U.S. News & World Report, about how the rankings are built, what the scores measure and how parents can use them without over-reading small differences between hospitals. Jennifer explains the role of clinical outcomes, hospital resources and care practices in the rankings,...
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The NICU Waiting Game: NICU Awareness Month
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
Continuing NICU Awareness Month, in this week’s episode, Katie is talking to Emily Rosen, the author of Waiting for Max: A NICU Story. Emily is a mom to 2 children, Max and Eva. Emily’s book is about her experience being a parent in the NICU, with the hopes that the book can help communicate with other NICU families that they aren’t alone in this journey. Throughout the episode, Emily details the emotions she went though as a parent, along with giving advice as to how to navigate new and possibly frightening feelings that came be brought on. Together, Emily and Katie walk through...
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GalTheBabyDoc: Humor + Humanity in the NICU
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
September is NICU Awareness Month, and in this week’s episode, Katie sits down with Dr. Gal, @galthebabydoc, a Neonatologist and Pediatrician, and a dad with experience as a parent in the NICU. He shares his knowledge and experience on social media in digestible ways to help parents and others feel comfortable during difficult times. Throughout the episode, they delve into the experiences and emotions of what parents might be facing when their baby is in the NICU, and how parents can get the most out of communicating with the hospital’s healthcare providers. Dr.Gal, having experience on...
info_outline![How to Talk to Kids About the Things We Wish They Didn’t Have to Face [Palliative Care] show art](https://assets.libsyn.com/content/205427365?height=50&width=50)
How to Talk to Kids About the Things We Wish They Didn’t Have to Face [Palliative Care]
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
How do families navigate a serious childhood diagnosis while still focusing on hope, quality of life, and the everyday moments that matter most? In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Dr. Korie Leigh, PhD, CCLS, a child life specialist, psychologist, thanatologist, author, educator, and pediatric palliative care advocate. Drawing on more than two decades of supporting children and families, Dr. Leigh shares what pediatric palliative care really is—and why it is so much more than many families believe. Together, they explore how pediatric...
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Helping Kids Cope With Needles: The Science Behind Buzzy
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Dr. Amy Baxter, pediatric emergency physician, researcher, inventor of , and founder of , to explore how childhood experiences with needles can shape a lifetime of healthcare interactions—and what parents and healthcare professionals can do to help. After watching her own son develop a fear of needles despite her expertise in pediatric pain management, Dr. Baxter began researching why children experience pain differently and how simple, evidence-based strategies can reduce pain during vaccines, blood...
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When You Become Your Child’s Advocate Overnight
Inside the Children's Hospital | Parent Stories, Pediatric Healthcare & What Families Want You to Know
What happens when the child you've dreamed of suddenly receives a diagnosis you've never even heard of? For Deborah, it was Angelman syndrome. In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Deborah Trejo, Art Therapist, to share the powerful story of her daughter Maya's journey to an Angelman syndrome diagnosis. After months of feeding difficulties, developmental delays, seizures, and countless unanswered questions, Deborah and her family finally received a diagnosis just one day after Maya's first birthday. Deborah opens up about the emotional realities...
info_outlineNot only does Sara talk with us about getting diagnosed with breast cancer at the age of 34, but she also talks about how she went through it as a single mother navigating life with a six-year-old.
We talk about
+How she advocated for herself and encourages parents to ask the same things for themselves that they do for their children
+How asking for help was non-negotiable and she had to learn to get comfortable with it
+How she told her six-year-old that she had cancer and her daughter’s emotional response to having a mother go through chemotherapy and painful surgeries.
Learn more about Sara’s calendar and book resources for families going through difficult experiences through Mighty and Bright.