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From Total Denial to Totally Thriving: Meet Rachel Price

Diabetes Connections with Stacey Simms Type 1 Diabetes

Release Date: 07/02/2019

"We've finally opened that door" - What Medicare negotiations will mean for people with diabetes

Diabetes Connections with Stacey Simms Type 1 Diabetes

You may know the Inflation Reduction Act best for being the latest time an insulin price measure was NOT voted through. But supporters say there’s a lot here that will help patients save money, including those with diabetes. We talk with Sarah Kaminer Bourland, Legislative Director of Patient for Affordable Drugs Now. She explains what this new plan will mean for those on and not on Medicare, debunk some of the talking points you might have heard and look ahead to what could be next for insulin pricing. Share your story with P4AD: https://secure.everyaction.com/SvIaRhn3VEmVAkJ1ccQETA2 This...

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In the News... Insulin copay cap revived? G7 timeline pushed back, once weekly basal insulin and more! show art In the News... Insulin copay cap revived? G7 timeline pushed back, once weekly basal insulin and more!

Diabetes Connections with Stacey Simms Type 1 Diabetes

Get caught up on the news and headlines around the diabetes community! The top stories in the last seven days: Senate Republicans nixed an insulin copay cap, but Democrats say they will revisit this issue in a few weeks, Dexcom pushed back their G7 timeline in the USA after the FDA asks for changes, once weekly basal insulin moves forward in trials. Plus, Beyond Type 1 is back in the NYC Marathon and much more! Learn more about the T1D Exchange: https://t1dexchange.org/stacey/ ----- available to Diabetes Connections listeners! ----- Episode Transcription Below (or coming soon!) Please...

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Episode 500! Behind the Scenes & What's Next, with WMTW's Cristina Frank show art Episode 500! Behind the Scenes & What's Next, with WMTW's Cristina Frank

Diabetes Connections with Stacey Simms Type 1 Diabetes

I started Diabetes Connections back in the summer of 2015. I'm not sure I had a number of episodes in mind when I kicked off the show, I just knew I wanted to make a podcast for and about the diabetes community. Thanks for tuning in all this time! For episode 500, I've turned hosting duties over to Cristina Frank, a TV news anchor who lives with type 1. We talk about how the episodes come together, what's worked (and what hasn't) and what I might add to the show going forward. We also think about how the community has changed and why the highest praise I could take for this show is that it's...

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50 Years with T1D, But Another Condition Changed Jeff's Life show art 50 Years with T1D, But Another Condition Changed Jeff's Life

Diabetes Connections with Stacey Simms Type 1 Diabetes

Jeff Ryan has lived with type 1 for more than 50 years. But he also has what’s called an essential tremor. Part of the treatment for that included using powerful magnets, which made thinking about diabetes tech.. a little different for Jeff. He talks about being diagnosed as a toddler in 1971, and how treatment for both his tremor and his type 1 have changed.. as well as the power of community for both conditions. He recently got his 50 year Joslin Medal and shares how a photo of him in front of a Christmas tree in 1971 played a role. That photo was a bit of a mystery to Jeff for a long...

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In the News.. Restoring insulin production, Tandem acquires Capillary Biomedical, In the News.. Restoring insulin production, Tandem acquires Capillary Biomedical, "Purple Hearts" movie features T1D & more!

Diabetes Connections with Stacey Simms Type 1 Diabetes

It's In the News! The tops diabetes stories this week include: Australian scientists say they have a new way to restore insulin production using an existing and approved drug, Tandem rolls out bolus by phone for wider release and acquires Capillary Biomedical, an infusion set maker. Dexcom adds Spanish as a language option for the G6, a necklace is said to be able to monitor glucose levels and Netflix's Purple Hearts focuses on type 1 medical costs as a plot point. Learn more about the T1D Exchange: https://t1dexchange.org/stacey/ ----- available to Diabetes Connections listeners! -----...

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"Choose to do Difficult Things" - T1D Ultra-Athlete Sebastien Sasseville

Diabetes Connections with Stacey Simms Type 1 Diabetes

Sebastien Sasseville recently completed The Race Across America, a grueling 3-thousand miles coast to coast cycling event that riders must complete in only 12 days. That means pushing through not just diabetes, Sasseville lives with type 1, but also eating on the bike and sleeping just a few hours at a time. Sasseville has been an ultra athlete for two decades now. We get more details about this race, why he wanted to do it and how he managed type 1 throughout. More on Sassville here: https://sebinspire.com/en/ This podcast is not intended as medical advice. If you have those kinds of...

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In the News... Insulin coverage changes, CGM use in older people, another company joins islet cell research and more! show art In the News... Insulin coverage changes, CGM use in older people, another company joins islet cell research and more!

Diabetes Connections with Stacey Simms Type 1 Diabetes

Top stories In the News this week, United Healthcare announces changes to how they cover insulin for some, a new study looks at CGM use in people with type 2 over the age of 65, another company begins islet cell clinical trials, a new tool to treat diabetic neuropathy pain, gestational diabetes is on the rise, and more. Learn more about the T1D Exchange: https://t1dexchange.org/stacey/ ----- available to Diabetes Connections listeners! ----- Episode Transcription Below (or coming soon!) Please visit our Sponsors & Partners - they help make the show possible! Hello and welcome to...

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DiabetesWise Pro: Unbiased diabetes tech info for you and your doctor show art DiabetesWise Pro: Unbiased diabetes tech info for you and your doctor

Diabetes Connections with Stacey Simms Type 1 Diabetes

When you’re thinking about new diabetes technology, sometimes your endo is right there with you, keeping up on the latest & greatest. But if they’re not, a new resource could help. Diabetes Wise Pro includes more than just pump and CGM specs. Stacey talks to Dr. Korey Hood, the co founder of DiabetesWise, a website that launched a few years ago to help consumers make more informed decisions around diabetes tech. We’ll talk about why they launched this new effort, who it’s for and how it could even change the prescription process. More info https://providers.diabeteswise.org/#/ This...

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In the News... Vertex buys Viacyte, Tandem mobile bolus begins roll out, a One Drop sensor and more! show art In the News... Vertex buys Viacyte, Tandem mobile bolus begins roll out, a One Drop sensor and more!

Diabetes Connections with Stacey Simms Type 1 Diabetes

Top stories in this news this week: Stem cell research Vertex company buys Viacyte, another company looking at stem cells for a functional cure for T1D, some tslim users are getting access to Tandem's new mobile bolus feature, One Drop shows a "health sensor" on its website, a study shows that screening for type 1 at very young ages could help detect most cases and much more! Learn more about the T1D Exchange: https://t1dexchange.org/stacey/ ----- available to Diabetes Connections listeners! ----- Episode Transcription Below (or coming soon!) Please visit our Sponsors & Partners - they...

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CampViews: a new way to see every diabetes camper's CGM data, all at once show art CampViews: a new way to see every diabetes camper's CGM data, all at once

Diabetes Connections with Stacey Simms Type 1 Diabetes

It’s that time of year - diabetes camps are in full swing. As remote monitoring technology changes, many camps are adapting as well. There’s a new system that lets camp staff monitor everyone’s CGM, all at once. That’s Sarah Gleich, executive director of the Nevada California Diabetes Association. We’ll find out more about where it’s already in place, how it’s going and whether it’ll change diabetes camp for good. This technology could also make a big difference for hospitals, nursing homes and other health facilities. This podcast is not intended as medical advice. If you...

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More Episodes

Diagnosed with T1D in her 20s, Rachel Price admits she was in denial at first, insisting to her doctors there was nothing wrong. Now, she’s an advocate who stays positive but realistic. Rachel has three children and started a business called DiaBeTees selling t-shirts and other products with fun diabetes sayings and catchy slogans. 

Join the Diabetes Connections Facebook Group! 

In our Community Connection this week, Dan Haddin is off for Teach for America, but not before creating some fantastic diabetes song parodies. Stacey plays his latest - a funny appeal to Nick Jonas.

Click to watch "Diabetic Like You (Sucker Parody)"

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And in Tell Me Something Good, a day camp milestone and a hiker sets out to make his mark.

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00:00 Tease/Open: What's this week's show about?

1:50 Welcome: Stacey talks about JDRF Children's Congress coming up and talks about CWD Friends for Life later in July as well as her family's plans for the rest of the summer.

5:45 Stacey's interview with Rachel Price

32:40 Community Connection: Hear Dan Haddin's T1D Sucker Parody

36:45 TMSG: Inspired by Isabella: Isa goes to gymnastics day camp, Mike Joyce will hike the Appalachian Trail and Cami is excited (and worried) about her son heading off to college. 

Learn about Inspired by Isabella 

Follow Mike's journey on the AT

41:30 Stacey talks about the presentations she's doing at Friends for Life later this month and hints at something new coming up outside the podcast... stay tuned!

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