#78 - Race and Healthcare in People with Down Syndrome #2 (with Kimberly Ewing and Roxanne Hoke-Chandler)
Down Syndrome Center of Western Pennsylvania Podcast
Release Date: 07/23/2020
Down Syndrome Center of Western Pennsylvania Podcast
Dr. Andrew Nowalk from Pediatric Infectious Diseases joined the podcast today for an update on COVID-19 infections in Down syndrome. We discussed the COVID-19 vaccine in general and also specifically in people with Down syndrome. Down Syndrome Medical Interest Group (DSMIG) Statement on COVID-19 Vaccination American College of Obstetrics and Gynecology Statement on COVID-19 Vaccination
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Dr. Kristen Ehrenberger, MD, PhD joins us on the podcast today to discuss the medical history of Down syndrome. Dr. Ehrenberger is dually boarded in Internal Medicine and Pediatrics, and she also has a degree in Medical History.
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Listen in as Rob Wrubel shares personal and professional advice on financial planning on today's podcast. You can find more information and resources from Rob at his website at http://robwrubel.com.
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The Down Syndrome Association of Pittsburgh hosted a virtual town hall to discuss questions related to COVID and Down Syndrome. Dr. Vellody, Dr. Nowalk, and Dr. Freeman were all present to answer questions live.
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Dr. Peter Bulova, Director of the Adult Clinic at the Down Syndrome Center of Western Pennsylvania, joins us on the podcast to talk about the recently released Adult Down Syndrome Healthcare Guidelines.
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Dr. Brian Skotko joined us again as a guest one the podcast to discuss Down Syndrome Clinic to You (DSC2U), a new and innovative way to get personalized healthcare recommendations for your loved one with Down syndrome. Down Syndrome Clinic to You (DSC2U)
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Today, we were joined by Dana Halle, Co-Founder/Executive Director of the Down Syndrome Foundation of Orange County and Developer and Lead Instructor of The Learning Program and LP Online. We discussed tips and resources for ultimate reading success in people with Down syndrome. LP Online Teaching Reading to Children with Down Syndrome Down Syndrome Education International RLI
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Dr. Nowalk joined the podcast to give us an update on Down syndrome and COVID. We discuss 2 recently published articles that have gotten a lot of press recently.
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Dr. Lina Patel, psychologist from the Sie Center at Children's Colorado, joined Dr. Vellody on the podcast to talk about toilet training. Dr. Patel is the co-author of the recent book Potty Time for Kids with Down Syndrome: Lose the Diapers, Not Your Patience.
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In a continuation of our discussions on Race and Down Syndrome, author Meeka Caldwell joined the podcast today to talk about her experiences as a mother and her children's book "A Friend Like Anian." Amazon Link If you would like an autographed copy of the book from Anian, e-mail your request to
info_outlineContinuing in our topic of race and healthcare, Dr. Vellody was joined by Kimberly Ewing and Roxanne Hoke-Chandler.
NDSC Town Hall Meetings on Race Relations
https://www.ndsccenter.org/programs-resources/race-relations/
Facebook Group: African American/Black people who have Children with Down syndrome
https://www.facebook.com/groups/ParentsOfAfricanAmWithDs