Sitting in with the Simms'. The Journey to Diagnosis
Release Date: 06/05/2020
Sitting in with the Simms'.What's next.
Insight with Lise and Nichole
Todd Simms received a diagnosis. The next steps will have to wait until things settle down with the global pandemic.
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Sitting in with the Simms'. Diagnosis Discovery
Insight with Lise and Nichole
Diagnosis Discovery of a Rare Disease For maybe the first time in the history of the Simms family, cancer has become a very good thing. They finally got a name for the mystery disease that they have been struggling with all this time. pheochromocytoma. Pheochromocytoma A pheochromocytoma (fee-o-kroe-moe-sy-TOE-muh) is a rare, tumor that develops in an adrenal gland. We have two adrenal glands —one located at the top of each kidney.Usually, a pheochromocytoma develops in only one adrenal glands. But tumors can develop in both. The definition was taken from the website Mayoclinic.org...
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Sitting in with the Simms'. The Journey to Diagnosis
Insight with Lise and Nichole
Part of the conversation in this episode. " So I'm starting to see some of those like cycles, okay, so to be to go from the family doctor level to an internist was a bit of a relief because I was I felt the validation of like, okay, a family doctor is also worried about my husband, this isn't just me being like something is up, something is up, something is up, the healthcare profession can kind of legitimize your concerns and that felt really good to go to the internist."
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Sitting in with the Simms'. Life before diagnosis
Insight with Lise and Nichole
This is the first episode of the mini series. The Simms family share what life was like before the diagnosis of a rare disease.
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Sitting in with the Simms'. New Mini Series
Insight with Lise and Nichole
The Simms' family share what it's like living with a rare disease. This series will take you though what life was like before the diagnosis, the journey as well as finally getting a diagnosis.
info_outlinePart of the story you will hear in the episode.
"There were lots of times when his energy levels would, would come and go, and he wouldn't have seen a pattern. I always would say to him, you're in the middle of it. So sometimes you Can't see you're just experiencing and reacting and responding and being and me a bit apart from it to look on it I could see patterns and some of the patterns were that he would cycle from like huge energy and tackling projects on weekends and then going in and knocking off 7-10 day stretches at work. And then and then that would cycle with times of I can't even put a shift in or I just have to sit here in the couch and recuperate from from nothing. I was starting to see that before the medical profession even got involved. So I'm starting to see some of those like cycles, okay, so to be to go from the family doctor level to an internist was a bit of a relief because I was I felt the validation of like, okay, a family doctor is also worried about my husband, this isn't just me being like something is up, something is up, something is up, the healthcare profession can kind of legitimize your concerns and that felt really good to go to the internist."