Episode 305 - Harold Palevsky, MD
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 12/05/2019
I'm Aware That I'm Rare: the phaware® podcast
SPECIAL EDITION Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s . Learn more about UNISUS Study with the . Steve Van Wormer: Hello, and welcome to, I’m Aware That I’m Rare, the phaware® podcast. I’m your host, Steve Van Wormer, from Phaware Global Association. Today, I am...
info_outline Episode 461 - UNISUS PAH Clinical TrialI'm Aware That I'm Rare: the phaware® podcast
SPECIAL EDITION: Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s . Learn more about UNISUS Study with the . Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outline Dr. Lewis Romer - phaware® interview 460I'm Aware That I'm Rare: the phaware® podcast
Dr. Lewis Romer discusses his work on the PPHNet's : Mono- vs. Duo-Therapy for Pediatric PAH patients. The Kids Mod PAH study is a research project funded by the NIH that aims to determine the best initial therapy for children with newly diagnosed pulmonary hypertension. The study compares the effectiveness of one medication (sildenafil) versus a combination of two medications (sildenafil and bosentan) in improving the quality of life and functional class of these children. The study team aims to provide enhanced care and support to the participants and their families throughout the...
info_outline Episode 460 - Lewis Romer, MDI'm Aware That I'm Rare: the phaware® podcast
Dr. Lewis Romer discusses his work on the PPHNet's : Mono- vs. Duo-Therapy for Pediatric PAH patients. The Kids Mod PAH study is a research project funded by the NIH that aims to determine the best initial therapy for children with newly diagnosed pulmonary hypertension. The study compares the effectiveness of one medication (sildenafil) versus a combination of two medications (sildenafil and bosentan) in improving the quality of life and functional class of these children. The study team aims to provide enhanced care and support to the participants and their families throughout the...
info_outline Morris Salem, MD - phaware® interview 459I'm Aware That I'm Rare: the phaware® podcast
In this episode, Dr. Morris Salem, a pediatric cardiologist, discusses his involvement with , a camp for children with congenital heart disease. Dr. Salem emphasizes the importance of addressing the emotional well-being of these patients, in addition to their physical health. He believes that the camp helps boost their self-confidence and allows them to have normal experiences. Dr. Salem also mentions the positive impact the camp has on parents, some of whom become involved in planning and fundraising for the organization. Dr. Salem is also a 2024 Honoree. This gala is a major...
info_outline Episode 459 - Morris Salem, MDI'm Aware That I'm Rare: the phaware® podcast
In this episode, Dr. Morris Salem, a pediatric cardiologist, discusses his involvement with , a camp for children with congenital heart disease. Dr. Salem emphasizes the importance of addressing the emotional well-being of these patients, in addition to their physical health. He believes that the camp helps boost their self-confidence and allows them to have normal experiences. Dr. Salem also mentions the positive impact the camp has on parents, some of whom become involved in planning and fundraising for the organization. Dr. Salem is also a 2024 Honoree. This gala is a major...
info_outline Brittany Valim - phaware® interview 458I'm Aware That I'm Rare: the phaware® podcast
Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Hello, my name is Brittany Valim. I am 34 years old, and I was diagnosed with pulmonary hypertension in 2010. In 2009, I decided to go on a big hike, they're called the Punch Bowls in Santa Paula, California. I noticed walking up to the trail, which is a really steep hill, I started...
info_outline Episode 458 - Brittany ValimI'm Aware That I'm Rare: the phaware® podcast
In this episode, Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outline Cam Wells - phaware® interview 457I'm Aware That I'm Rare: the phaware® podcast
Stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with disabilities. Cam believes that disabilities and rare conditions affect everyone in some way and advocates for inclusivity and respect. #RareDiseaseDay My name is Cam Wells. I am a stroke survivor and I hold four diplomas from St. Clair College. After getting the...
info_outline Episode 457 - Cam WellsI'm Aware That I'm Rare: the phaware® podcast
In this episode, stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with disabilities. Cam believes that disabilities and rare conditions affect everyone in some way and advocates for inclusivity and respect. #RareDiseaseDay Learn more about pulmonary hypertension trials at . Follow us on social @phaware...
info_outlineHarold I. Palevsky, MD is a Professor of Medicine at the Perelman School of Medicine at the University of Pennsylvania and the Chief of Pulmonary, Allergy and Critical Care Medicine at the Penn Presbyterian Medical Center in Philadelphia. He also heads the Pulmonary Vascular Disease Program at that campus. For the past 25 years, he has been recognized as one of Philadelphia Magazine’s and America’s Top doctors. In this episode, Dr. Palevsky discusses the importance of clinical trials in patients with pulmonary arterial hypertension including a new molecule that's on the forefront of treatment for PAH called PB1046 and the positive effects it could have for the community.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials #phawareMD @PhaseBio