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Sickle Cell Podcast Series- Talking About Pain Management

Social Entrepreneurship Now Podcast

Release Date: 03/18/2021

Building Generational Wealth in the Global Black Community show art Building Generational Wealth in the Global Black Community

Social Entrepreneurship Now Podcast

Meet Nike Anani, an entrepreneur and a business consultant.  With over a decade of family business expertise in Nigeria, Nike helps owners lead their family organizations to long-term impact and legacy. 

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Social Entrepreneurship Now Podcast

Nancy’s spent her career saying what others are afraid to – and learning to say it in ways that others will listen.  She’s the founder and president of CSR Communications and creator of Intrapreneurs Influence Lab. Her passion is helping leaders of change within established organizations (intrapreneurs) influence and persuade others so that they can realize their vision for change faster, with less frustration and resistance. Nancy can be reached her at her website: www.csrcommunications.com.

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Social Entrepreneurship Now Podcast

This series on sickle cell was a vision that was shared between two businesswomen who wanted to do something greater to highlight sickle cell.  It began with Foxy Davison wondering how providers and patients might journey deeper into a thriving partnership if their was mutual understanding of the experiences that race and bias have on people of color.  

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Social Entrepreneurship Now Podcast

For all of our listeners who have listened throughout the series you will have learned about perspectives on race, gender, culture bias, pain, transitions and so much more.  In the nooks and crannies of our stories is the heartbeat of change, and that is what you will witness in this season finale.  Our guests speak candidly about how uncomfortable and yet transformative it is to be your true and authentic self as a patient and as a provider.  

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Social Entrepreneurship Now Podcast

Welcome back to our series on sickle cell disease and relationships between patients and providers.  In this episode a patient and provider discuss the delicate process of making that transition in care from pediatric to adult; the riskiest time healthwise for patients with sickle.  Hear our guests discuss what should patients do if they don't receive effective communication, to how to approach overbearing caregivers, to providers need to do to help their patients transition well.  

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Social Entrepreneurship Now Podcast

Listen to the show with Laelah Ndofin as she shares her story and journey being a young woman living with sickle cell.  Laelah shared perspective on how she initially saw sickle cell disease as a weakness and how that changed when she realized how strong she was, how much she could endure. 

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Social Entrepreneurship Now Podcast

In this episode we discussed how racism in upper management is impacting the care of patients who are living with sickle cell.  This podcast was in response to Dr. Danielson resigning in protest from the Odessa Brown clinic.  Listen for all the highlights of the show.

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Social Entrepreneurship Now Podcast

In this episode, Alix and John continue with our conversation around sickle cell patient care and specifically regarding COVID and vaccination.  Questions asked are: What do folks want to know about COVID?  What is COVID-19? What are the benefits and risks of the vaccine? 

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Social Entrepreneurship Now Podcast

In this episode, our guests discuss the importance of understanding mindfulness and trauma.  The historical trauma of racism is explored as well as the importance of healing as a community.  Listen to the end to participate in the delicious mindful meditation. 

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Social Entrepreneurship Now Podcast

In this podcast episode we discussed complex health systems and how to identify members of the health care team.  We also discussed how vitally important it is for people with sickle cell disease to have a primary care provider and the reason and why.  We also discussed the importance of the patient and provider developing a care plan. Finally, we also discussed clinical navigators role in assisting with care coordination. 

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In this episode Alix Dassler and John Masembe discuss race and pain management as it relates to sickle cell disease.  Discussion centered on the lack of training for providers around pain management juxtaposed against the opioid epidemic.  Implicit bias was also touched on as it relates to race and pain management with themes of white providers believing black people have thicker skin and fewer pain receptors.  Stress as a trigger for pain was also discussed and how it can contribute to pain. 

Question explored:  why do patients with sickle cell have to prove that they are in pain? What kinds of strategies do providers teach for patients with SCD to manage pain? Should patients have to be "trained" how to express their pain in a way that does not cause too much attention?  How can we as both providers and patients learn to address race and pain management for patients with SCD?

For more information about sickle cell and to connect with our show guests, please go to the Metropolitan Sickle Cell Task Force @  www.mssctf.org 

For more information about Nikki, please email: [email protected]