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111 - Copiing in Times of Uncertainty with Team Amicus

Two Disabled Dudes

Release Date: 05/18/2020

119 - Are You Messy Like Kyle or Neat Like Sean? show art 119 - Are You Messy Like Kyle or Neat Like Sean?

Two Disabled Dudes

Sean and Kyle are polar opposites in so many different ways.  But this is a strength rather than a weakness.  This week the Dudes discuss their differences and why they work well together.  

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118 - How We Can Serve the Community Through Google's Project Euphonia - Bob MacDonald show art 118 - How We Can Serve the Community Through Google's Project Euphonia - Bob MacDonald

Two Disabled Dudes

Like it or not, communicating with smart devices has become a huge part of our lives.  For people with disabilities, this communication can be an essential part of making it through the day.  However these devices have a hard time understanding speech that is outside what they've heard before. Google has launched an effort called Project Euphonia to retrain our devices to understand people who have speech impairments.  Bob MacDonald is one of the leaders of the project and he joins The Dudes to talk about the project and how we can all help out.

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117 - What does Team Gleason have in Common with Google? show art 117 - What does Team Gleason have in Common with Google?

Two Disabled Dudes

Blair Casey is the Assistant Executive Director of Team Gleason - an organization founded by former NFL player Steve Gleason. The organization is committed to providing for and finding solutions for persons living with ALS. Team Gleason’s staff and volunteers work tirelessly every day to empower those living with ALS to live with continued purpose and as productively and independently as possible. Blair joins the Dudes to talk about their work to support Google's Project Euphonia and how we can all work together to improve voice recognition for people who experience disarthria. To find out...

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Bonus Conversation With Friends! show art Bonus Conversation With Friends!

Two Disabled Dudes

BONUS episode! We received a lot of comments about (the encounter with Debora) so we invited a few friends to join us to talk about the sometimes awkward interactions with strangers who may be uncomfortable with disability. Friends who joined us are Shandra and Christian from Florida, Leona from Colorado, and Effie Parks (host of the Once Upon a Gene Podcast) from Seattle.   This bonus episode is unedited. Enjoy!

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116 - What would you change about yourself if you could? show art 116 - What would you change about yourself if you could?

Two Disabled Dudes

If you could change something about yourself, what would it be?  In this episode, the dudes tackle this question as it relates to disability or as it relates to life in general. Listen and reach out if you have thoughts about this subject.

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115 - Leading the VEDS Movement - Katie Wright show art 115 - Leading the VEDS Movement - Katie Wright

Two Disabled Dudes

Where do we start after a life threatening diagnosis.  Start a YouTube Channel of course!  That's what Katie did.  She started connecting with the Vascular Ehlers Danlos Syndrome (VEDS) community and now she leads the VEDS Movement for the The Marfan Foundation. Find out more at thevedsmovement.org. And find out more about the people behind the movement at translucentone.blog

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114 - Don't Judge a Dude by his Wheelchair show art 114 - Don't Judge a Dude by his Wheelchair

Two Disabled Dudes

Curiosity about someone's disability often comes from a good place but depending on how it is delivered, it can create awkward or even offensive situations.  This week the dudes struggle with how to react in these awkward situations.  It's good for someone to ask questions but there is a line somewhere.  Listen for real life stories and honest conversation.

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113 - How do we Define Each Other? show art 113 - How do we Define Each Other?

Two Disabled Dudes

In the opening episode of Season 4, Sean and Kyle admit to being a little lazy lately and then commit to getting back on the wagon.  That's the power of accountability!  And it's the power of their commitment to their listeners - one insightful episode per week for the next 4 months! The meat of the episode is all about how we tend to define ourselves and each other by the immediate circumstances.  The Dudes postulate that perhaps we should be defined by the entirety of what we do rather than one or two things.   Let them know what YOU think: instagram.com/2ddpodast...

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112 - Season Finale - Different Reactions to Coronavirus show art 112 - Season Finale - Different Reactions to Coronavirus

Two Disabled Dudes

Why do we all react differently to a situation - especially when the stakes are high, such as the current situation with Coronavirus?  Sean and Kyle have a few thoughts to share but first we must hear about Sean's recent cluster at physical therapy, and Kyle explains how it is possible to lock yourself out of your own bathroom.  Season 4 starts in August but there are 111 other episodes to enjoy so check them out.  We hope you have a great summer!

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111 - Copiing in Times of Uncertainty with Team Amicus show art 111 - Copiing in Times of Uncertainty with Team Amicus

Two Disabled Dudes

We’ve had the privilege to work with on multiple occasions and each time we are moved by their commitment and consistent execution of their corporate mission. This virtual patient panel they facilitated is no exception! Three weeks into the company’s work-from-home arrangements due to COVID-19, Amicus wanted to continue connecting their team members with each other and the patient communities they work on behalf of. We were honored to moderate the conversation between Naomi (from the UK), Mike (from New Jersey) and David & Karen (from Arizona) for the global Amicus team and their...

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We’ve had the privilege to work with Amicus Therapeutics on multiple occasions and each time we are moved by their commitment and consistent execution of their corporate mission. This virtual patient panel they facilitated is no exception!

Three weeks into the company’s work-from-home arrangements due to COVID-19, Amicus wanted to continue connecting their team members with each other and the patient communities they work on behalf of.

We were honored to moderate the conversation between Naomi (from the UK), Mike (from New Jersey) and David & Karen (from Arizona) for the global Amicus team and their families.

The panelists helped us laugh, encouraged our resilience and inspired us to maximize our time as we embrace the rare disease journey and cope in times of uncertainty.