#71 - Right to Equal Medical Treatment for People with DS (with Heather Sachs, JD)
Release Date: 04/21/2020
#155 - Down Syndrome Affiliates in Action
Down Syndrome Center Podcast
As part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does with local affiliates all over the country. For more information on DSAIA, see . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center...
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#154 - Bitty and Beau's Coffee Shop
Down Syndrome Center Podcast
Ben Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops! There will be a Bitty and Beau's Coffee Shop opening in Pittsburgh soon so we asked Ben to join us to give us some background on why he is so passionate about these shops (and it's not just the coffee!). If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to...
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#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks)
Down Syndrome Center Podcast
Dr. Lina Patel from the Sie Center in Denver joined the podcast again today. Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge. Dr. Patel addressed a listener question on this topic on today's podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring for Kids” The Carrie Martin Fund for its support...
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#152 - Addressing Unhealthy Eating Habits (with Shannon Frizzell)
Down Syndrome Center Podcast
Unhealthy eating patterns are unfortunately common in people with Down syndrome. On this podcast, dietician Shannon Frizzell joins to discuss a listener question on some engrained eating patterns in their loved one with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.
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#151 - A Conversation with Friends - Happy World Down Syndrome Day!
Down Syndrome Center Podcast
In honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends!
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#150 - How to Address Throwing Behaviors (with Dr. Tarin Santamaria)
Down Syndrome Center Podcast
Dr. Santamaria rejoins the podcast to address a listener question on throwing behavior. What's the best approach when your child with Down syndrome has a tendency to throw objects? And how do you keep everyone else safe? :) Join us for a conversation on this specific topic as well as general thoughts on behavior management. And keep those listener questions coming! If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please...
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#149 - Juvenile Idiopathic Arthritis (with Dr. Jordan Jones)
Down Syndrome Center Podcast
Dr. Jordan Jones is an Associate Professor of Pediatrics and Pediatric Rheumatologist from Children's Mercy Hospital in Kansas CIty, MO. Dr. Jones has a special interest in working with children with Down syndrome and has published numerous articles on this topic. He joined the podcast today to discuss a listener-requested topic on juvenile idiopathic arthritis in Down syndrome. For more information on Dr. Jones, please visit . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down...
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#148 - Jack's Basket (with Carissa Carroll)
Down Syndrome Center Podcast
Carissa Carroll, Founder and Executive Director of Jack's Basket, joined the podcast today to talk about her story and how it influenced her to create Jack's Basket. This organization serves families all over the world, offering a welcome and congratulations to new families wherever they may be. You can find more information about Jack's Basket at . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring...
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#147 - Forget Me Not - A Powerful Documentary on Inclusive Education
Down Syndrome Center Podcast
Award winning Director, Olivier Bernier joined the podcast today to talk about his recently released documentary called Forget Me Not. Part American, part Quebecois, Olivier is also the Co-Founder and Creative Director of the production company, Rota6 Films, specializing in documentary and commercial films. As 3-year-old Emilio prepares to start school, his family finds itself embroiled in a challenge all too common for children with disabilities – to secure the right to an inclusive education. Olivier and his wife Hilda turn the camera on themselves and their child with Down...
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#146 - Hirschsprung Disease
Down Syndrome Center Podcast
Dr. Kelly Austin, Director of the Colorectal Center for Children at Children's Hospital of Pittsburgh, joined the podcast to discuss Hirschsprung disease. Seen more commonly in people with Down syndrome, listen to learn more about this important condition. Colorectal Center of Children If there is a topic that you would like us to cover on the podcast, please e-mail me at . If you would like to partner with the work that we are doing at the Down Syndrome Center, including this podcast, please visit . If you would like to suggest a topic for us to cover on the podcast, please...
info_outlineDr. Vellody was joined on the podcast today by Heather Sachs, JD, the Policy and Advocacy Director of the National Down Syndrome Congress. They discussed the rights of people with Down syndrome when it comes to obtaining equal medical treatment, particularly during the COVID-19 pandemic.
NDSC Policy and Advocacy
https://www.ndsccenter.org/political-advocacy/
National Down Syndrome Advocacy Coalition
https://www.ndsccenter.org/political-advocacy/national-down-syndrome-advocacy-coalition/
National Down Syndrome Advocacy Coalition Webinar on COVID
https://register.gotowebinar.com/recording/27821348694419971
NDSC COVID-19 Resources
https://www.ndsccenter.org/programs-resources/covid-19-resources/