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#74 - Race and Healthcare for People with Down Syndrome (with Shauntel Neal-Howe and Valerie Williams)

Down Syndrome Center Podcast

Release Date: 06/13/2020

#113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria) show art #113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria)

Down Syndrome Center Podcast

Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Center of Western Pennsylvania.  She joined the podcast today to discuss how to assess and approach behaviors in school-aged children with Down syndrome. Please consider partnering in the work of the Down Syndrome Center by visiting  

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#112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk) show art #112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk)

Down Syndrome Center Podcast

Dr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome. Pittsburgh Vaccine Trials Unit CDC COVID Data

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#111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT)) show art #111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT))

Down Syndrome Center Podcast

Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school aged child.

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#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk) show art #110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk)

Down Syndrome Center Podcast

Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year.  

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#109 - Sensory Processing in Ds (with Dr. Katie Frank) show art #109 - Sensory Processing in Ds (with Dr. Katie Frank)

Down Syndrome Center Podcast

Dr. Katie Frank, PhD, OTR/L, joined the podcast today to talk about sensory processing difficulties in people with Ds and therapeutic approaches. Resources: Mental wellness in Ds book Out of Sync Child Series Sensational Kids Lucy Miller STAR Institute

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#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker) show art #108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker)

Down Syndrome Center Podcast

Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome.   For more information, please see the article discussed:

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#107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull) show art #107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull)

Down Syndrome Center Podcast

Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specifically comment on atlanto-axial instability (AAI).   For parents/caregivers: For healthcare professionals:

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#106 - COVID and Mental Health in Ds (with Dr. Ruth Brown) show art #106 - COVID and Mental Health in Ds (with Dr. Ruth Brown)

Down Syndrome Center Podcast

Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds.  If you would like to add to this data set, please consider taking the survey at http://tiny.cc/DSFAM_VCU.  

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#105 - Hearts of Joy International show art #105 - Hearts of Joy International

Down Syndrome Center Podcast

Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International.  Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects.

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#104 - Become an Ally for Advocacy (with Jawanda and Rachel Mast) show art #104 - Become an Ally for Advocacy (with Jawanda and Rachel Mast)

Down Syndrome Center Podcast

Dr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy.  They also discussed the National Down Syndrome Congress' Ally for Advocacy campaign, and how we can get involved.

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More Episodes

Shauntel Neal-Howe (Vice President, National Down Syndrome Congress) and Valerie Williams (Secretary, National Down Syndrome Congress) joined Dr. Vellody on the podcast to discuss their experiences with race and healthcare, including their experiences as parents of children with Down syndrome.