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Episode 345 - Roham Zamanian, MD - Race Against PH

I'm Aware That I'm Rare: the phaware® podcast

Release Date: 10/19/2020

Amanda Howard  phaware® interview 369 show art Amanda Howard phaware® interview 369

I'm Aware That I'm Rare: the phaware® podcast

Pulmonary hypertension caregiver, Amanda Howard, discusses her 17-year-old daughter Abby's lifelong battle with PH after being diagnosed in the PICU at 8 months old. Amanda Howard: My name's Amanda Howard. I'm connected to PH through my 17-year-old daughter, Abby. Abby was diagnosed with PH when she was eight months old. We thought she had outgrown it when she was almost six and then a routine echo on August 31, 2017 showed that it was back. That brought us back to being connected with PH again. I currently live in Perry, Iowa with my husband, Chris. We have two other children named Grace....

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Episode 369 - Amanda Howard show art Episode 369 - Amanda Howard

I'm Aware That I'm Rare: the phaware® podcast

In this episode, pulmonary hypertension caregiver, Amanda Howard, discusses her 17-year-old daughter Abby's lifelong battle with PH after being diagnosed in the PICU at 8 months old. Learn more about pulmonary hypertension trials at . Never miss an episode with the  Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure:  #phaware #ClinicalTrials 

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KC Yates - phaware® interview 368 show art KC Yates - phaware® interview 368

I'm Aware That I'm Rare: the phaware® podcast

Pulmonary hypertension patient, KC Yates, discusses battling COVID-19 twice during the pandemic and how she relies on her inner-strength to battle her rare disease. KC Yates: My name is KC Yates. I'm from Michigan. My PAH just came on randomly. I was pretty much having headaches, where you couldn't talk to me. You couldn't make noise around me or anything. Then I moved down to New Mexico, and on November 15th, 2018 is when I first got diagnosed. I went into the hospital, because I was having shortness of breath and the headache still, and couldn't barely walk around the house. So we went up...

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Episode 368 - KC Yates show art Episode 368 - KC Yates

I'm Aware That I'm Rare: the phaware® podcast

In this episode, pulmonary hypertension patient, KC Yates, discusses battling COVID-19 twice during the pandemic and how she relies on her inner-strength to battle her rare disease. Learn more about pulmonary hypertension trials at . Never miss an episode with the  Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure:  #phaware #ClinicalTrials 

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Dawn Meador - phaware® interview 367 show art Dawn Meador - phaware® interview 367

I'm Aware That I'm Rare: the phaware® podcast

Long-term pulmonary hypertension patient, Dawn Meador, discusses navigating her PH during a pandemic as well as why she and her husband chose to adopt after her PH diagnosis. Dawn Meador: Hi, I'm Dawn Meador. I am from Springfield, Tennessee. I was diagnosed with PH in March of 1998, so I've been living with PH for 24 years. I had a nine month old daughter at the time, and I had noticed I'd been having a lot of trouble breathing. I went to Walmart one day with just me and her. She was so small, she was still in the pumpkin seat. So I carried the pumpkin seat into Walmart and I got into the...

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Episode 367 - Dawn Meador show art Episode 367 - Dawn Meador

I'm Aware That I'm Rare: the phaware® podcast

In this episode, long-term pulmonary hypertension patient, Dawn Meador, discusses navigating her PH during a pandemic as well as why she and her husband chose to adopt after her PH diagnosis. Learn more about pulmonary hypertension trials at . Never miss an episode with the  Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure:  #phaware #ClinicalTrials 

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Mary Hale - phaware® interview 366 show art Mary Hale - phaware® interview 366

I'm Aware That I'm Rare: the phaware® podcast

Pulmonary hypertension patient, Mary Hale discusses the power of positivity in life post PAH diagnosis. Mary Hale: My name is Mary Hale, and I'm from Ohio. I was diagnosed in February, 2010. I had open heart surgery in January of 2010. So once I went through all the testing, then I had a diagnosis. I had PAH. I had a pain in my side, and thought pulled a muscle at work, and I was just babying it, and I finally went to the doctor. They did all this stuff. It didn't look good. I went for a heart catheterization, and they kept me, and I had open heart surgery January 25th, Monday morning, 2010....

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Episode 366 - Mary Hale show art Episode 366 - Mary Hale

I'm Aware That I'm Rare: the phaware® podcast

In this episode, pulmonary hypertension patient, Mary Hale discusses the power of positivity in life post PAH diagnosis. Learn more about pulmonary hypertension trials at . Never miss an episode with the  Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: #phaware #ClinicalTrials 

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Tarya Morel - phaware® interview 365 show art Tarya Morel - phaware® interview 365

I'm Aware That I'm Rare: the phaware® podcast

Canadian pulmonary hypertension patient, Tarya Morel discusses parenting in times of a pandemic. Tarya Morel: My name's Tarya. I live in Vancouver, B.C., in Canada, and I'm a mom. I have two kids, one by birth and one by foster. I was diagnosed with pulmonary hypertension shortly after the birth of my son. I've heard from so many other moms out there. That was their journey, too. I know that for women who are diagnosed with pulmonary hypertension, if we do have kids, because I know we're told often that we probably shouldn't once we have our diagnosis, but if we come to that diagnosis after...

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Episode 365 - Tarya Morel show art Episode 365 - Tarya Morel

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Canadian pulmonary hypertension patient, Tarya Morel discusses parenting in times of a pandemic. Learn more about pulmonary hypertension trials at . Never miss an episode with the  Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: #phaware #ClinicalTrials @TaryaMorel @phacanada #covid19

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More Episodes

Roham Zamanian, MD is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center.

In this episode, he discusses the 20h Annual Virtual Race Against PH 5K/Fun Run, taking place at Stanford on November 1st, 2020 #raph20virtual

Register for the 20th Annual Race Against PH 5K: med.stanford.edu/raceagainstph

Register to watch the LIVESTREAM event Sunday 11/1 @ 9am PT: 
https://us02web.zoom.us/webinar/register/WN_gu-7DZyuRIaNTFjRRMTd7w

Enter this week's Bubble Contest (Oct 19-23)

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @PHatStanford