Episode 346 - Jamie and Diana Cruz - Race Against PH
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 10/26/2020
Angela Bates, MD - phaware® interview 445
I'm Aware That I'm Rare: the phaware® podcast
In this episode, Angela Bates, MD from Stollery Children’s Hospital, discusses the importance of incorporating quality of life into the management strategies for pediatric pulmonary hypertension patients. Dr. Bates also talks about the importance of allowing patients to engage in activities they enjoy, even with limitations imposed by their condition, and the need for a multidisciplinary team to provide comprehensive care. My name is Dr. Angela Bates. I am a pediatric cardiac intensivist who also takes care of pediatric pulmonary hypertension patients up in Edmonton, Alberta,...
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Episode 445 - Angela Bates, MD
I'm Aware That I'm Rare: the phaware® podcast
In this episode, Angela Bates, MD from Stollery Children’s Hospital, discusses the importance of incorporating quality of life into the management strategies for pediatric pulmonary hypertension patients. Dr. Bates also talks about the importance of allowing patients to engage in activities they enjoy, even with limitations imposed by their condition, and the need for a multidisciplinary team to provide comprehensive care. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: #phawareMD ...
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Vinicio de Jesus Perez, MD - phaware® interview 444
I'm Aware That I'm Rare: the phaware® podcast
In this episode, Vinicio de Jesus Perez, MD discusses some of the most recent clinical developments in the field of pulmonary hypertension, highlighting new and ongoing clinical trials that are of great interest to the medical community as well as caregivers and patients looking forward to novel ways of treating their condition. Good day to everybody. My name is Dr. Vinicio de Jesus Perez. I'm an associate professor and staff physician at the Pulmonary Hypertension Center of Excellence located at Stanford University Medical Center. I am a physician-scientist passionate about understanding the...
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Episode 444 - Vinicio de Jesus Perez, MD
I'm Aware That I'm Rare: the phaware® podcast
In this episode, Vinicio de Jesus Perez, MD discusses some of the most recent clinical developments in the field of pulmonary hypertension, highlighting new and ongoing clinical trials that are of great interest to the medical community as well as caregivers and patients looking forward to novel ways of treating their condition. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: #phawareMD
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Peter Leary, MD - phaware® interview 443
I'm Aware That I'm Rare: the phaware® podcast
Peter Leary, MD talks about factors that might lead to over-treatment, under-treatment, or "just-right" treatment and emphasizes that guidelines are important but there is no "one-size fits all" approach to treatment of pulmonary hypertension. Peter Leary is the director of the pulmonary vascular disease program at the University of Washington. He also has a PhD in epidemiology and is very interested in clinical and translational research for patients with pulmonary hypertension locally, nationally, and internationally. Hi, I am Peter Leary. I am a pulmonologist in sunny Seattle,...
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Episode 443 - Peter Leary, MD
I'm Aware That I'm Rare: the phaware® podcast
In this episode, Peter Leary, MD talks about factors that might lead to over-treatment, under-treatment, or "just-right" treatment and emphasizes that guidelines are important but there is no "one-size fits all" approach to treatment of pulmonary hypertension. Peter Leary is the director of the pulmonary vascular disease program at the University of Washington. He also has a PhD in epidemiology and is very interested in clinical and translational research for patients with pulmonary hypertension locally, nationally, and internationally. Learn more about pulmonary hypertension...
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Sanjay Mehta, MD - phaware® interview 442
I'm Aware That I'm Rare: the phaware® podcast
In this episode, PHA Canada Board Director, Sanjay Mehta, MD discusses the recently updated for the diagnosis and treatment of pulmonary hypertension, the gaps in understanding and the reasons why. Hi everyone. I'm Dr. Sanjay Mehta. I'm a respirologist, or pulmonologist for some of you in the US, and I have an interest in pulmonary hypertension. I've had the great honor and fortune of looking after PH patients now for 30 years of my career, largely here in London, Ontario, in Canada, but initially started my training in work and research in Montreal at McGill University. Besides...
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Episode 442 - Sanjay Mehta, MD
I'm Aware That I'm Rare: the phaware® podcast
In this episode, PHA Canada Board Director, Sanjay Mehta, MD discusses the recently updated for the diagnosis and treatment of pulmonary hypertension, the gaps in understanding and the reasons why. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: #phawareMD
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Karina Macias - phaware® interview 441
I'm Aware That I'm Rare: the phaware® podcast
Pulmonary hypertension pediatric care partner, Karina Macias, discusses her son Tito's PH journey and why she dedicated her life to becoming a certified nurse assistant. Tito was named 2023 Pediatric PH Courage Award recipient. #raceagainstph My name's Karina Macias, and I am from Central Point, Oregon. I have two kids. My first son is Alexis, a 17-year-old. My second son is Tito, who's 15 at the moment, and he's the one with pulmonary hypertension. I do have a background in the medical field due to the fact of what I've gone through and Tito goes through all these medical...
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Episode 441 - Karina Macias
I'm Aware That I'm Rare: the phaware® podcast
In this episode, pulmonary hypertension pediatric care partner, Karina Macias, discusses her son Tito's PH journey and why she dedicated her life to becoming a certified nurse assistant. Tito was named 2023 Pediatric PH Courage Award recipient. #raceagainstph Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outlineJaime Cruz is a caregiver to his daughter, Diana, who is this year's Pediatric Courage Award Winner of the 20th Annual Virtual Race Against PH 5K/Fun Run, taking place November 1st, 2020.
In this episode, they discuss Diana's pulmonary hypertension diagnosis and how she navigates this disease. #raph20virtual
Register for the 20th Annual Race Against PH 5K: med.stanford.edu/raceagainstph
Register to watch the LIVESTREAM event Sunday 11/1 @ 9am PT:
https://us02web.zoom.us/
Enter this week's Costume Contest (Oct 26-30)
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @PHatStanford