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#93 - Infantile Spasms (with Dr. Nicole Baumer)

Down Syndrome Center Podcast

Release Date: 01/21/2021

#119 - What About College for People with Down Syndrome? show art #119 - What About College for People with Down Syndrome?

Down Syndrome Center Podcast

Tom Sannicandro joined the podcast today to share his expertise on college options available for people with Down syndrome. Think College Special Needs Trusts Online Partner with Us!  

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#118 - Early Intervention Services show art #118 - Early Intervention Services

Down Syndrome Center Podcast

Erica Balint, outreach coordinator for The Alliance for Infants and Toddlers, Inc., joined the podcast today to discuss Early Intervention Services for young children.  What are early intervention services and how might they benefit children with Down syndrome?  Listen to find out! For more information on Early Intervention Services in Pennsylvania, go to: The Alliance for Infants and Toddlers To partner in the efforts of the Down Syndrome Center:

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#117 - COVID Vaccine for Younger Children and Boosters for Adults show art #117 - COVID Vaccine for Younger Children and Boosters for Adults

Down Syndrome Center Podcast

Dr. Andy Nowalk joins the podcast again today to discuss the latest news in COVID as it relates to people with Down syndrome.  The podcast highlights the release of the COVID vaccine for 5-11 year olds and discusses booster doses for people with Ds over 18 years old.   You can partner with us in our service to the community, including this podcast, by going to  

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#116 - Unexplained Regression in Down Syndrome show art #116 - Unexplained Regression in Down Syndrome

Down Syndrome Center Podcast

Dr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative Disorder (DSDD), or Down Syndrome Regression Disorder (DSRD).  Dr. Santoro will discuss the signs of the condition and the treatment options currently being found to be helpful in the latest research. More Information Does My Loved One with Down Syndrome Have This Condition?  Check Out This Regression Checklist Find a Regional Down Syndrome...

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#115 - Approach to Selective ( #115 - Approach to Selective ("Picky") Eaters

Down Syndrome Center Podcast

Selective (or "Picky") eaters are common in Pediatrics.  Many parents receive advice on how to manage but what does the data show?  Ann Meyers from Clinical Nutrition and Sarah Rossman from Occupational Therapy joined the podcast today to discuss this very important topic. Resources Join Us!If you would like to partner in the work of the Down Syndrome Center, please visit .  Thank you! Podcast photo credit: Getty Images

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#114 - Self Talk, The Groove, and Other Common Behaviors in Ds (with Dennis McGuire) show art #114 - Self Talk, The Groove, and Other Common Behaviors in Ds (with Dennis McGuire)

Down Syndrome Center Podcast

World-reknowned expert and author on mental health and wellness in people with Down syndrome, Dennis McGuire, joined the podcast today to talk about common (and usually normal) behaviors in older children and adults with Down syndrome. RESOURCES Mental Wellness in Adults with Down Syndrome (Book) If People with Down Syndrome Ruled the World (Essay) If you have benefitted from this podcast, please consider partnering in the work of the Down Syndrome Center at: .

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#113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria) show art #113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria)

Down Syndrome Center Podcast

Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Center of Western Pennsylvania.  She joined the podcast today to discuss how to assess and approach behaviors in school-aged children with Down syndrome. Please consider partnering in the work of the Down Syndrome Center by visiting  

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#112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk) show art #112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk)

Down Syndrome Center Podcast

Dr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome. Pittsburgh Vaccine Trials Unit CDC COVID Data

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#111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT)) show art #111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT))

Down Syndrome Center Podcast

Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school aged child.

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#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk) show art #110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk)

Down Syndrome Center Podcast

Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year.  

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More Episodes

Dr. Nicole Baumer joined the podcast again today, this time to discuss a type of seizure called infantile spams that are seen more commonly in people with Down syndrome.

For more information and helpful videos, see:

Epilepsy Foundation
https://www.epilepsy.com/learn/types-epilepsy-syndromes/infantile-spasms-west-syndrome

 
Dr. Baumer's Summary