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#99 - Education in Ds - Past, Present, and Future (with Ricki Sabia, JD)

Down Syndrome Center Podcast

Release Date: 04/08/2021

#191 - Cardiac Surgery show art #191 - Cardiac Surgery

Down Syndrome Center Podcast

Dr. Victor Morell, Chief of the Department of Cardiothoracic Surgery at the Children's Hospital of Pittsburgh joined the podcast to talk about cardiac surgery in patients with Down syndrome.  He also discussed the new Heart Center buliding that is being constructed and how that will improve the already amazing cardiac care that children receive.

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#190 - Immunizations in Down Syndrome show art #190 - Immunizations in Down Syndrome

Down Syndrome Center Podcast

Dr. Diane Langkamp is the Director of the Down Syndrome Program at Akron Children's Hospital.  She joined the podcast to discuss immunizations in people with Down syndrome.     If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .  

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#189 - Buddy Up For Life show art #189 - Buddy Up For Life

Down Syndrome Center Podcast

Beth Gibson (Executive Director & Founder) and Allison Davis (Program Director) from Buddy Up For Life joined the podcast today to talk about their amazing programs.   For more information:   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .

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#188 - How Does Provider Bias Affect Delivery of the Diagnosis of Ds? show art #188 - How Does Provider Bias Affect Delivery of the Diagnosis of Ds?

Down Syndrome Center Podcast

Dr. Stephanie Meredith from the University of Kentucky joined the podcast today to talk about her recently published studies showing how bias affects how medical providers deliver the diagnosis of Down syndrome.  She also discusses how her findings on how trust impacts the care delivered to people of Black and Hispanic descent. For more information: Resources for new and expectant parents:  Courses for medical providers: PCORI Resources: Artal JM, Randall L, Rubeck S, Allyse M, Michie M, Riggan KA, Meredith S, Skotko BG. Parents of children with Down syndrome reflect on their...

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#187 - Why Have a Down Syndrome Center? show art #187 - Why Have a Down Syndrome Center?

Down Syndrome Center Podcast

On this podcast, Dr. Vellody addresses the same question that came in from 2 listeners about the role of a Down Syndrome Center?  Why have one?  Are there things that happen at a Down Syndrome Center that are not easily done in a regular primary care visit?   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .  

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#186 - Supplements in Down Syndrome - What Do We Know? show art #186 - Supplements in Down Syndrome - What Do We Know?

Down Syndrome Center Podcast

Shannon Frizzell, MS, RD, LDN leads our Nutrition team at the Down Syndrome Center of Western PA.  She joins the podcast today to answer a listener question on nutritional supplements in Down syndrome.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .  

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#185 - The Immune System in Down Syndrome show art #185 - The Immune System in Down Syndrome

Down Syndrome Center Podcast

Dr. Dusan Bogunovic is the Director of the Center for Genetic Errors of Immunity at Columbia University Medical Center in New York.  He joined the podcast today to share about the intriguing immune system in people with Down syndrome and their increased risk of inflammation and infection. For more information on Dr. Bogunovic research trial, go to . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .    

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#184 - Baby Led Weaning (with Jill Rabin) show art #184 - Baby Led Weaning (with Jill Rabin)

Down Syndrome Center Podcast

Jill Rabin joined the podcast today to discuss Baby Led Weaning and what that looks like for someone with Down syndrome.  For more information: Rabin, Jill, and Gill Rapley. Your Baby Can Self-Feed, Too: Adapted Baby-Led Weaning for Children with Developmental Delays or Other Feeding Challenges. The Experiment, 2022.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .  

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#183 - Behavioral Support Services (with Dr. Santamaria) show art #183 - Behavioral Support Services (with Dr. Santamaria)

Down Syndrome Center Podcast

The Down Syndrome Center of Western Pennsylvania's very own psychologist, Dr. Tarin Santamaria, joined the podcast to help us understand the "alphabet soup" of behavioral support services that are available in the community.

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#182 - Anesthesia in Down Syndrome, Part 2 show art #182 - Anesthesia in Down Syndrome, Part 2

Down Syndrome Center Podcast

Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital.  He joined the podcast to discuss specific issues related to anesthesia in Down syndrome.  This is Part 2 of the podcast.  

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More Episodes

Dr. Vellody was joined by NDSC Senior Education Policy Advisor Ricki Sabia to discuss topics surrounding Education in people with Down syndrome.  Ricki shared her extensive expertise in this area as well as her personal experiences as a mother navigating the educational landscape.

Ricki Sabia | National Down Syndrome Congress (ndsccenter.org)

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