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Episode 360 - Kelly Lynch

I'm Aware That I'm Rare: the phaware® podcast

Release Date: 11/01/2021

Roham Zamanian, MD, FCCP - phaware® interview 527 show art Roham Zamanian, MD, FCCP - phaware® interview 527

I'm Aware That I'm Rare: the phaware® podcast

Dr. Roham Zamanian, discusses the concept of "disease modification" in the treatment of pulmonary hypertension. He describes how this idea emerged from discussions with colleagues about the future of pulmonary hypertension therapies, and the potential for treatments to impact the underlying disease process beyond just reducing pulmonary artery pressures. This Special Edition Episode Sponsored by: My name is Roham Zamanian, and I'm the Medical Director of the Adult Pulmonary Hypertension Program at Stanford. Today, I want to talk about disease modification, something that historically,...

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Episode 527 - Roham Zamanian, MD, FCCP show art Episode 527 - Roham Zamanian, MD, FCCP

I'm Aware That I'm Rare: the phaware® podcast

Dr. Roham Zamanian, discusses the concept of "disease modification" in the treatment of pulmonary hypertension. He describes how this idea emerged from discussions with colleagues about the future of pulmonary hypertension therapies, and the potential for treatments to impact the underlying disease process beyond just reducing pulmonary artery pressures. This Special Edition Episode Sponsored by: Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  #phawareMD    

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Hall Skaara - phaware® interview 526 show art Hall Skaara - phaware® interview 526

I'm Aware That I'm Rare: the phaware® podcast

Hall Skaara, representing PHA Europe, brought  to the forefront at the World Symposium on Pulmonary Hypertension, joining other members of Task Force 1. PHA Europe was well-represented with delegates including Eva Otter, Monika Tschida, Natalia Maeva, Tadeja Ravnik, and Nina Kobler. This prestigious event gathered over 1,500 of the brightest minds in the field of pulmonary hypertension, offering a unique opportunity for patients and professionals to collaborate and share insights, as well as for patient associations to network. This Special Edition Episode Sponsored by: My name is Hall...

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Episode 526 - Hall Skaara show art Episode 526 - Hall Skaara

I'm Aware That I'm Rare: the phaware® podcast

Hall Skaara, representing PHA Europe, brought  to the forefront at the World Symposium on Pulmonary Hypertension, joining other members of Task Force 1. PHA Europe was well-represented with delegates including Eva Otter, Monika Tschida, Natalia Maeva, Tadeja Ravnik, and Nina Kobler. This prestigious event gathered over 1,500 of the brightest minds in the field of pulmonary hypertension, offering a unique opportunity for patients and professionals to collaborate and share insights, as well as for patient associations to network. This Special Edition Episode Sponsored by: Learn more...

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Lisa Mielniczuk, MD - phaware® interview 525 show art Lisa Mielniczuk, MD - phaware® interview 525

I'm Aware That I'm Rare: the phaware® podcast

Why Pulmonary Hypertension Isn’t Just a Lung ProblemCardiologist Dr. Lisa Mielniczuk from the Mayo Clinic pulls back the curtain on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. In this episode, she explains why it’s time we stop thinking of PH as a rare condition. My name's Lisa Mielniczuk. I'm a cardiologist and I work at the Mayo Clinic in Rochester, Minnesota. I've been working in the field of PH now for almost 20 years. I also work in the field of advanced heart failure and heart transplantation. I've...

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Episode 525 - Lisa Mielniczuk, MD show art Episode 525 - Lisa Mielniczuk, MD

I'm Aware That I'm Rare: the phaware® podcast

Why Pulmonary Hypertension Isn’t Just a Lung ProblemCardiologist Dr. Lisa Mielniczuk from the Mayo Clinic pulls back the curtain on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. In this episode, she explains why it’s time we stop thinking of PH as a rare condition. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  #phawareMD

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Jason Weatherald, MD - phaware® interview 524 show art Jason Weatherald, MD - phaware® interview 524

I'm Aware That I'm Rare: the phaware® podcast

Beyond the Clinical Trial: What Real-World Data Means for You. Think only people in clinical trials help advance medicine? Think again. Dr. Jason Weatherald explains how your everyday clinic visits - from walk tests to how you feel - can help shape the future of pulmonary hypertension treatment. Learn what "real-world evidence" is and why your story matters more than you think. I'm Jason Weatherald, I'm from the University of Alberta in Edmonton in Canada. I'm a clinical researcher, I focus on pulmonary hypertension and also on lung transplantation in my practice. I do a lot of...

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Episode 524 - Dr. Jason Weatherald show art Episode 524 - Dr. Jason Weatherald

I'm Aware That I'm Rare: the phaware® podcast

Beyond the Clinical Trial: What Real-World Data Means for You Think only people in clinical trials help advance medicine? Think again. Dr. Jason Weatherald explains how your everyday clinic visits — from walk tests to how you feel — can help shape the future of pulmonary hypertension treatment. Learn what "real-world evidence" is and why your story matters more than you think. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  #phawareMD   

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Rodolfo Estrada, MD - phaware® interview 523 show art Rodolfo Estrada, MD - phaware® interview 523

I'm Aware That I'm Rare: the phaware® podcast

Dr. Rodolfo Estrada, is a seasoned pulmonologists currently at UT Health San Antonio with significant experience in the management of patients with different forms of pulmonary hypertension. In this episode, Dr. Estrada will discuss the technology and clinical development behind YUTREPIA™ (treprostinil) inhalation powder and why it might be a good option for some PAH and PH-ILD patients. This Special Edition episode is sponsored by . Please see the Important Safety Information following this podcast. The Prescribing Information and Instructions for Use for YUTREPIA (treprostinil)...

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Episode 523 - Rodolfo Estrada, MD show art Episode 523 - Rodolfo Estrada, MD

I'm Aware That I'm Rare: the phaware® podcast

Dr. Rodolfo Estrada, is a seasoned pulmonologists currently at UT Health San Antonio with significant experience in the management of patients with different forms of pulmonary hypertension. In this episode, Dr. Estrada will discuss the technology and clinical development behind YUTREPIA™ (treprostinil) inhalation powder and why it might be a good option for some PAH and PH-ILD patients. This Special Edition episode is sponsored by . Please see the Important Safety Information following this podcast. The Prescribing Information and Instructions for Use for YUTREPIA (treprostinil)...

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More Episodes

Kelly Lynch is a pulmonary hypertension patient from San Francisco. 

In this episode, Kelly discusses her parasitic twin, battling depression and finding a platform to express her rareness on TikTok.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials