Naomi Habib, MD - phaware® interview 598
I'm Aware That I'm Rare: the phaware® podcast
Why This PH Specialist Talks About Dogs, Grief, and Grandkids Before Medicine Pulmonary hypertension can leave patients feeling terrified and alone, but Dr. Naomi Habib is determined to change that. Drawing from both her nursing and physician backgrounds, she explains why compassionate care, patient advocacy, clinical trial access, and simply making patients feel seen and heard can become life-changing medicine in ways prescriptions alone cannot. This Special Edition episode is sponsored by . I'm Dr. Naomi Habib. I am a pulmonary hypertension specialist, originally a pulmonologist,...
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Episode 598 - Naomi Habib, MD
I'm Aware That I'm Rare: the phaware® podcast
Why This PH Specialist Talks About Dogs, Grief, and Grandkids Before Medicine Pulmonary hypertension can leave patients feeling terrified and alone, but Dr. Naomi Habib is determined to change that. Drawing from both her nursing and physician backgrounds, she explains why compassionate care, patient advocacy, clinical trial access, and simply making patients feel seen and heard can become life-changing medicine in ways prescriptions alone cannot. This Special Edition episode is sponsored by . Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your...
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Jenn Turner, MBA, BSN, RN, and Diana Gritsenko, PharmD, BCCCP - phaware® interview 597
I'm Aware That I'm Rare: the phaware® podcast
They Climbed a Mountain to Help the World Understand PH Imagine struggling to catch your breath just walking to the bathroom, getting groceries, or cheering on your child. Now imagine living that way every day. Two healthcare professionals took their fight for pulmonary hypertension awareness to the summit of a 14,000-foot mountain and came away with a deeper understanding of what their patients endure. Their Hiking for Hope journey reveals the exhausting reality behind everyday activities, the power of empathy, and why PH can no longer remain invisible. This Special Edition episode is...
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Episode 597 - Jenn Turner, MBA, BSN, RN, and Diana Gritsenko, PharmD, BCCCP
I'm Aware That I'm Rare: the phaware® podcast
They Climbed a Mountain to Help the World Understand PH Imagine struggling to catch your breath just walking to the bathroom, getting groceries, or cheering on your child. Now imagine living that way every day. Two healthcare professionals took their fight for pulmonary hypertension awareness to the summit of a 14,000-foot mountain and came away with a deeper understanding of what their patients endure. Their Hiking for Hope journey reveals the exhausting reality behind everyday activities, the power of empathy, and why PH can no longer remain invisible. This Special Edition episode is...
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Daniel Lachant, MD - phaware® interview 596
I'm Aware That I'm Rare: the phaware® podcast
How Wearable Tech and Remote Walk Tests Are Changing PAH Care For decades, pulmonary arterial hypertension patients have waited three to six months between clinic visits hoping nothing changes. Dr. Daniel Lachant is flipping that model on its head. By turning wearable tech into real-time cardiac monitors, he’s proving that subtle heart rate shifts during a simple six-minute walk at home can reveal improvement or danger long before a traditional appointment ever could. My name’s Dan Lachant, Associate Professor at the University of Rochester. I’m a pulmonologist by training. I...
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Episode 596 - Daniel Lachant, MD
I'm Aware That I'm Rare: the phaware® podcast
How Wearable Tech and Remote Walk Tests Are Changing PAH Care For decades, pulmonary arterial hypertension patients have waited three to six months between clinic visits hoping nothing changes. Dr. Daniel Lachant is flipping that model on its head. By turning wearable tech into real-time cardiac monitors, he’s proving that subtle heart rate shifts during a simple six-minute walk at home can reveal improvement or danger long before a traditional appointment ever could. Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe...
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Jennifer Lombardi - phaware® interview 595
I'm Aware That I'm Rare: the phaware® podcast
Twice Transplanted. Still Dancing. Still Following Her Passion. Most people never face one life-saving transplant. Jennifer Lombardi has survived two. She’s lived through heart failure, bloodstream infections, chronic rejection, and unimaginable grief. Today, when the music hits and she steps onto a dancefloor, adrenaline floods her veins and she remembers why she fought so hard. I'm Jennifer Lombardi. I'm from Long Island. I was 21 when I was diagnosed, and I was misdiagnosed for almost a year. Being misdiagnosed almost killed me, because they just kept saying, "We don't know. We can't...
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Episode 595 - Jennifer Lombardi
I'm Aware That I'm Rare: the phaware® podcast
Twice Transplanted. Still Dancing. Still Following Her Passion. Most people never face one life-saving transplant. Jennifer Lombardi has survived two. She’s lived through heart failure, bloodstream infections, chronic rejection, and unimaginable grief. Today, when the music hits and she steps onto a dancefloor, adrenaline floods her veins and she remembers why she fought so hard. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Kirsty McGeown - phaware® interview 594
I'm Aware That I'm Rare: the phaware® podcast
She Checked the Organ Donor Box at 16, Now She’s Waiting for Someone Else’s Lungs Canadian pulmonary hypertension patient, Kirsty McGeown signed up to be an organ donor as a teenager, believing it was a simple act of kindness. Years later, Kirsty found herself sitting on the opposite side of that decision. Now, she’s focused on reclaiming life’s normal moments, holding onto hope, and dreaming of one day becoming a grandmother. My name's Kirsty McGeown. I grew up in the Toronto area, I live east of Toronto in Pickering. I have been a normal, active, healthy person my whole life until...
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Episode 594 - Kirsty McGeown
I'm Aware That I'm Rare: the phaware® podcast
She Checked the Organ Donor Box at 16, Now She’s Waiting for Someone Else’s Lungs Canadian pulmonary hypertension patient, Kirsty McGeown signed up to be an organ donor as a teenager, believing it was a simple act of kindness. Years later, Kirsty found herself sitting on the opposite side of that decision. Now, she’s focused on reclaiming life’s normal moments, holding onto hope, and dreaming of one day becoming a grandmother. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like,...
info_outlineKayla Dunlop is a pulmonary hypertension patient from Southern California.
In this episode, Kayla discusses being born with a rare condition called giant omphalocele (GO), the challenge of adjusting to life on oxygen 24/7, and how she is using her creative spirt to make jewelry to raise funds and awareness for pulmonary hypertension.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials