#116 - Unexplained Regression in Down Syndrome
Release Date: 10/28/2021
#191 - Cardiac Surgery
Down Syndrome Center Podcast
Dr. Victor Morell, Chief of the Department of Cardiothoracic Surgery at the Children's Hospital of Pittsburgh joined the podcast to talk about cardiac surgery in patients with Down syndrome. He also discussed the new Heart Center buliding that is being constructed and how that will improve the already amazing cardiac care that children receive.
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#190 - Immunizations in Down Syndrome
Down Syndrome Center Podcast
Dr. Diane Langkamp is the Director of the Down Syndrome Program at Akron Children's Hospital. She joined the podcast to discuss immunizations in people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#189 - Buddy Up For Life
Down Syndrome Center Podcast
Beth Gibson (Executive Director & Founder) and Allison Davis (Program Director) from Buddy Up For Life joined the podcast today to talk about their amazing programs. For more information: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#188 - How Does Provider Bias Affect Delivery of the Diagnosis of Ds?
Down Syndrome Center Podcast
Dr. Stephanie Meredith from the University of Kentucky joined the podcast today to talk about her recently published studies showing how bias affects how medical providers deliver the diagnosis of Down syndrome. She also discusses how her findings on how trust impacts the care delivered to people of Black and Hispanic descent. For more information: Resources for new and expectant parents: Courses for medical providers: PCORI Resources: Artal JM, Randall L, Rubeck S, Allyse M, Michie M, Riggan KA, Meredith S, Skotko BG. Parents of children with Down syndrome reflect on their...
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#187 - Why Have a Down Syndrome Center?
Down Syndrome Center Podcast
On this podcast, Dr. Vellody addresses the same question that came in from 2 listeners about the role of a Down Syndrome Center? Why have one? Are there things that happen at a Down Syndrome Center that are not easily done in a regular primary care visit? If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#186 - Supplements in Down Syndrome - What Do We Know?
Down Syndrome Center Podcast
Shannon Frizzell, MS, RD, LDN leads our Nutrition team at the Down Syndrome Center of Western PA. She joins the podcast today to answer a listener question on nutritional supplements in Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#185 - The Immune System in Down Syndrome
Down Syndrome Center Podcast
Dr. Dusan Bogunovic is the Director of the Center for Genetic Errors of Immunity at Columbia University Medical Center in New York. He joined the podcast today to share about the intriguing immune system in people with Down syndrome and their increased risk of inflammation and infection. For more information on Dr. Bogunovic research trial, go to . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#184 - Baby Led Weaning (with Jill Rabin)
Down Syndrome Center Podcast
Jill Rabin joined the podcast today to discuss Baby Led Weaning and what that looks like for someone with Down syndrome. For more information: Rabin, Jill, and Gill Rapley. Your Baby Can Self-Feed, Too: Adapted Baby-Led Weaning for Children with Developmental Delays or Other Feeding Challenges. The Experiment, 2022. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#183 - Behavioral Support Services (with Dr. Santamaria)
Down Syndrome Center Podcast
The Down Syndrome Center of Western Pennsylvania's very own psychologist, Dr. Tarin Santamaria, joined the podcast to help us understand the "alphabet soup" of behavioral support services that are available in the community.
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#182 - Anesthesia in Down Syndrome, Part 2
Down Syndrome Center Podcast
Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital. He joined the podcast to discuss specific issues related to anesthesia in Down syndrome. This is Part 2 of the podcast.
info_outlineDr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative Disorder (DSDD), or Down Syndrome Regression Disorder (DSRD). Dr. Santoro will discuss the signs of the condition and the treatment options currently being found to be helpful in the latest research.
More Information
https://www.nature.com/articles/s41436-019-0706-8
Does My Loved One with Down Syndrome Have This Condition? Check Out This Regression Checklist
https://static-content.springer.com/esm/art%3A10.1038%2Fs41436-019-0706-8/MediaObjects/41436_2019_706_MOESM2_ESM.docx
Find a Regional Down Syndrome Center Near You
Down Syndrome Clinic Listing | National Down Syndrome Congress (ndsccenter.org)