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#134 - The Lucky Few (with Heather Avis)

Down Syndrome Center Podcast

Release Date: 06/16/2022

#138 - Not Down, Up Mommy (with author Antoinette Scaffidi) show art #138 - Not Down, Up Mommy (with author Antoinette Scaffidi)

Down Syndrome Center Podcast

Antoinette Scaffidi, author of the children's book Not Down, Up Mommy, joined the podcast to talk about the book and her thoughts on the importance of including children with disabilities in children's books.  The book can be found at If you have a podcast topic that you would like us to discuss, please reach out at . If you would like to partner in the work of the Down Syndrome Center, including this podcast, please go to . Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.   

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#137 - Swallowing Dysfunction and G-tubes show art #137 - Swallowing Dysfunction and G-tubes

Down Syndrome Center Podcast

Speech language pathologist Sheri Rosen and Pediatric Surgeon Dr. Mike Morowitz joined the podcast to discuss swallow studies and gastrostomy tubes.   If you have an idea for a future podcast, please e-mail us at .   If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please go to .  Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

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#136 - Healthy Lifestyle Choices Around Food and Exercise show art #136 - Healthy Lifestyle Choices Around Food and Exercise

Down Syndrome Center Podcast

Shannon Frizzell, registered clinical dietician, joined the podcast today to talk about strategies for healthy weight management in people with Down syndrome. For more information and resources: My Plate American Academy of Nutrition and Dietetics American Heart Association American Diabetes Association If there are any topics that you would like us to cover on the podcast, please send an e-mail to . If you would like to join us in the work of the Down Syndrome Center, including this podcast, please visit .   Thank you to “Caring for Kids” The Carrie Martin Fund for its support...

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#135 - COVID Update (Vaccination for Younger Children, Boosters for Older Children) show art #135 - COVID Update (Vaccination for Younger Children, Boosters for Older Children)

Down Syndrome Center Podcast

Dr. Nowalk rejoins the podcast for an update on the COVID pandemic as it relates to people with Down syndrome.  Topics discussed include a general COVID update, COVID vaccine booster doses for children >5 years old, primary COVID vaccination for children <5 years old. If you have a topic that you would like us to discuss on a future podcast, please reach out to .   If you would like to join us in the endeavors of the Down Syndrome Center, including this podcast, please consider visiting .  

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#134 - The Lucky Few (with Heather Avis) show art #134 - The Lucky Few (with Heather Avis)

Down Syndrome Center Podcast

Heather Avis, co-host of The Lucky Few podcast joined our podcast today to talk about her journey and vision to "change the narrative" when it comes to how society views Down syndrome. To find more information and subscrie to The Lucky Few Podcast, go to .   To find more information on The Lucky Few Podcast Foundation, go to .   If you have podcast topics that you would like us to address, please e-mail me at . If you would like to partner with us at the Down Syndrome Center, including supporting this podcast, please go to .   

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#133 - Catching Up with The Improvaneers (with Rob Snow) show art #133 - Catching Up with The Improvaneers (with Rob Snow)

Down Syndrome Center Podcast

Rob Snow (creator and founder of The Improvaneers) returns on the podcast to give us an update with how its going on the comedy show, the impacts of COVID, and the vision for the program.  You can get more information on The Improvaneer Method by listening to our prior podcast #61 found at .   To find out if The Improvaneers are coming to your area and how to get involved, please visit .   If you have a topic that you would like covered on the podcast, please reach out to me via e-mail at . Please consider partnering with us in what we do at the Down Syndrome Center, including...

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#132 - Down Syndrome Diagnosis Network (with Jen Jacob) show art #132 - Down Syndrome Diagnosis Network (with Jen Jacob)

Down Syndrome Center Podcast

Jen Jacob, Founder and Executive Director of the Down Syndrome Diagnosis Network (DSDN) joined the podcast to talk about their work in the area of information and resource sharing for families. You can get connected to DSDN by going to .   If you have any topics that you would like us to cover on the podcast, please reach out to me via e-mail at . If you would like to partner with the work of the Down Syndrome Center, including this podcast, please visit . 

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#131 - Domestic Adoption in Ds show art #131 - Domestic Adoption in Ds

Down Syndrome Center Podcast

Stephanie Thompson from the National Down Syndrome Adoption Network (NDSAN) joined the podcast today to talk about their work in domestic adoptions for children with Ds in the U.S.   National Down Syndrome Adoption Network Please e-mail us with any topics you would like us to address on the podcast at . To partner with our work, including this podcast, please visit: .  

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#130 - The NEW 2022 Health Supervision Guidelines for Children and Adolescents with Down Syndrome (with Dr. Marilyn Bull) show art #130 - The NEW 2022 Health Supervision Guidelines for Children and Adolescents with Down Syndrome (with Dr. Marilyn Bull)

Down Syndrome Center Podcast

Dr. Marilyn Bull, lead author of the 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome, joins the podcast today to discuss the latest guideline update released earlier this week!  Dr. Bull is  the Morris Green Professor of Pediatrics at Indiana University School of Medicine, Department of Pediatrics, in the Division of Developmental Pediatrics.  She is the Director of the Down Syndrome Program at Riley Hospital for Children. The medical guidelines can be found here: .   If there are topics that you would like...

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#129 - Supplemental Security Income (SSI) and Waivers show art #129 - Supplemental Security Income (SSI) and Waivers

Down Syndrome Center Podcast

Dr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss supplemental security income (SSI) and waivers.  If there are any topics you would like us to discuss on the podcast, please e-mail us at [email protected] To partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter

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More Episodes

Heather Avis, co-host of The Lucky Few podcast joined our podcast today to talk about her journey and vision to "change the narrative" when it comes to how society views Down syndrome.

To find more information and subscrie to The Lucky Few Podcast, go to https://www.theluckyfewpodcast.com.  

To find more information on The Lucky Few Podcast Foundation, go to https://theluckyfewfoundation.org/.  

If you have podcast topics that you would like us to address, please e-mail me at [email protected].

If you would like to partner with us at the Down Syndrome Center, including supporting this podcast, please go to https://givetochildrens.org/downsyndromecenter.