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#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims)

Down Syndrome Center Podcast

Release Date: 07/20/2023

#181 - Anesthesia in Down syndrome, Part 1 show art #181 - Anesthesia in Down syndrome, Part 1

Down Syndrome Center Podcast

Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital.  He joined the podcast to discuss specific issues related to anesthesia in Down syndrome.  This is Part 1 of the podcast.  

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#180 - Sleep Questions! show art #180 - Sleep Questions!

Down Syndrome Center Podcast

Dr. Lucy Lubinski is a Sleep Psychologist at Children's Hospital of Pittsburgh.  She joined the podcast today to discuss common sleep related issues in pediatrics and approaches to management. Pediatric Sleep Council If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .

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#179 - Exceptional Families of the Military show art #179 - Exceptional Families of the Military

Down Syndrome Center Podcast

Rebecca Emerson and Austin Carrigg joined the podcast to talk about Exceptional Families of the Military, a 501 c(3) non-profit that helps families who are enrolled in the Department of Defense Exceptional Family Member Program.  They discussed what to do when a diagnosis of Down syndrome is received while in the military and available supports and resources available to those families. Exceptional Families of the Military Down Syndrome Diagnosis Netword Military Families Group Military OneSource Center for Parent Information and Resources Ketotic Hypoglycemia International Family...

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#178 - John's Crazy Socks! show art #178 - John's Crazy Socks!

Down Syndrome Center Podcast

John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks.  Listen to the podcast to find out why their mission is about something so much greater than "just socks."   For more information about John's Crazy Socks (and to buy your own!), visit:   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .

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#177 - Weight Loss Medications and Surgeries show art #177 - Weight Loss Medications and Surgeries

Down Syndrome Center Podcast

Dr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries.  They also give their thoughts specifically on these treatments/management strategies for people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .  

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#176 - Happy World Down Syndrome Day 2024! show art #176 - Happy World Down Syndrome Day 2024!

Down Syndrome Center Podcast

NDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing.  He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them.

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#175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa) show art #175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa)

Down Syndrome Center Podcast

Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado.  He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune system can potentially be used in treatment of common disease conditions seen in people with Down syndrome. To learn more about the Human Trisome Project, visit: To learn more about research trials in Down syndrome, visit:   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would...

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#174 - Dating in Down Syndrome (with Terri Couwenhoven) show art #174 - Dating in Down Syndrome (with Terri Couwenhoven)

Down Syndrome Center Podcast

Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them.  She rejoined the podcast this week to talk about dating and Down syndrome.     For more information on Terri, her amazing resources, book her as a speaker for your group, go to:   Resources discussed on the podcast: Dating in Down Syndrome Books by Terri Adult Down Syndrome Center (Advocate Medical Group) National Council on Independent...

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#173 - Sexuality and Down Syndrome (with Terri Couwenhoven) show art #173 - Sexuality and Down Syndrome (with Terri Couwenhoven)

Down Syndrome Center Podcast

Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them.  She has been on the podcast before but joins us again to today for updates on the topic of sexuality and Down syndrome.     For more information on Terri, her amazing resources, book her as a speaker for your group, go to:  Resources discussed on the podcast: Terri's books! The Healthy Bodies Toolkit Planet Puberty Amaze   If you would...

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#172 - Hearing Health in Down Syndrome (with Dr. Heather Porter) show art #172 - Hearing Health in Down Syndrome (with Dr. Heather Porter)

Down Syndrome Center Podcast

Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome.  This is part 2 of the 2 part podcast.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.   

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More Episodes

Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims.  So many people with Down syndrome have sensory difficulties with these tasks and Dr. Frank helped explain her approach to these situations.

For fantastic caregiver resources on these types of topics, go to:
https://adscresources.advocatehealth.com/

Some examples of equipment discussed on the podcast:
3 Headed Toothbrush

Weighted Vest

Automatic Nail Trimmer

Hair Clipper

 

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected].

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.