#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro)
Release Date: 08/03/2023
#201 - Shoes and Orthotics (with Dr. Sarah Mann)
Down Syndrome Center Podcast
Dr. Sarah Mann joined the podcast today to discuss foot issues in Down syndrome and the role for supportive shoes and orthotics. For more information on the Mann Method Therapy Network: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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#200 - The Next Generation!
Down Syndrome Center Podcast
In honor of the 200th episode of the podcast, three very special guests joined the podcast today to share their memories and the impact that their Uncle Das has had on their lives.
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#199 - Update on Down Syndrome Regression Disorder (DSRD)
Down Syndrome Center Podcast
Dr. Robyn Filipink, part of our Down Syndrome Center team, joined the podcast to talk about the latest information on Down Syndrome Regression Disorder. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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#198 - Happy World Down Syndrome Day!
Down Syndrome Center Podcast
Happy World Down Syndrome Day! Hug that special someone with Down syndrome who you love today! If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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#197 - National Down Syndrome Congress (NDSC)
Down Syndrome Center Podcast
The Executive Director of the National Down Syndrome Congress, Jim Hudson, joined the podcast to talk about the upcoming NDSC Convention and let us know about the important work that the organization is doing. For more information: NDSC NDSC Convention Registration NDSC Policy and Advocacy If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that...
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#196 - Advocacy 101
Down Syndrome Center Podcast
Advocating for your loved one with Down syndrome can sometimes feel overwhelming. Where do you start? How do you do it effectively? Mitch Rothholz and Julie Gerhart-Rothholz joined the podcast today to share their experiences in advocacy, including experiencing their son Evan as he has become a powerful self-advocate himself. FIND YOUR LEGISLATORCongress: HELPFUL NATIONAL ORGANIZATIONSNDSC: NDSC NDAC: NDSS: Global...
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#195 - 2025 Update - Down Syndrome Association of Pittsburgh!
Down Syndrome Center Podcast
Cherese Sandrock (Executive Director) and Greg Coni (Board President) of the Down Syndrome Association of Pittsburgh joined the podcast today to let us know about what's coming up for our local Pittsburgh community in 2025! Down Syndrome Association of Pittsburgh (DSAP) E-mail: Phone: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that...
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#194 - Mental Health Therapy in Down Syndrome
Down Syndrome Center Podcast
Dr. Susan Fawcett, PhD, RSLP is the Director or Therapy, Behaviour, and Family Support at the Down Syndrome Resource Foundation (). Dr. Fawcett joined the podcast to discuss mental health and therapy approaches in people with Down syndrome. For more information: Down Syndrome Resource Foundation Adult DS Center Mental Wellness in Adults with Down Syndrome (book) Down Syndrome Connection of the Bay Resources Social Thinking
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#193 - Personalized Medicine in Down syndrome?
Down Syndrome Center Podcast
Dr. Joaquin Espinosa of the Linda Crnic Institute joined the podcast again today to answer a listener question on a recent scientific study published in the prestigious journal of Nature. . Listen as he explains what could one day be the future of personalized medicine in Down syndrome. Will we one day be able to reliably predict which conditions a person with Down syndrome may be more likely to have? For more information on the Linda Crnic Institute for Down Syndrome: For more information on the Human Trisome Project: If you would like to suggest a topic for us to cover...
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#192 - Year End Guest!
Down Syndrome Center Podcast
To commemorate the year-end of 2024, Liz Sattler joined us on the podcast. Liz is a self-advocate who has worked in our Down Syndrome Center for many years. Liz's position, like all of our roles at the Down Syndrome Center, was made possible through generous philanthropic giving. We are only able to do what we do at our Center because of ongoing support through 1000s of donors over the years. If you would like to partner with the Down Syndrome Center, including this podcast, please visit . If you would like to suggest a topic for us to cover on the podcast, please send...
info_outlineDown Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnosed in people with Down syndrome. It is a topic in high interest amongst researchers in the field, including today's podcast guest Dr. Jon Santoro from Children's Hospital of Los Angeles. Dr. Santoro gave us a review of the topic as well as current research into the diagnosis and treatment of this condition.
If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected].
If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.
Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.