#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro)
Release Date: 08/03/2023
#168 - Year End Update!
Down Syndrome Center Podcast
Listen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both! To learn more about the Down Syndrome Center, you can visit . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.
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#167 - Talk Tools (with Heather Vukelich)
Down Syndrome Center Podcast
Speech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome. Websites/Resources If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.
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#166 - Gigi's Playhouse (with Nanci Gianni)
Down Syndrome Center Podcast
Nancy Gianni, Founder and Chief Belief Officer of Gigi's Playhouse, joined the podcast as part of our "Meet The Nationals" series. Gigi's Playhouse provides free educational, therapeutic-based, and career development programs for individuals with Down syndrome, their families, and the community, through a replicable playhouse model. Their mission and purpose is to change the way the world views Down syndrome and to send a global message of acceptance for all. For more information on Gigi's Playhouse: Nancy Gianni's book: If you would like to suggest a topic for us to cover on the...
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#165 - Friendship Circle (with Rabbi Mordy Rudolph)
Down Syndrome Center Podcast
Rabbi Mordy Rudolph joined the podcast to discuss the Friendship Circle of Pittsburgh. This amazing organization was established in 2006 with the intention of creating a more inclusive community. It is a community-based program that brings together people of diverse abilities and interests. Information on the local chapter in Squirrel Hill PA can be found: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit ....
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#164 - Black Down Syndrome Association
Down Syndrome Center Podcast
Kelli Caughman and Crystal Lotterberry, founders of the Black Down Syndrome Association joined the podcast today to share their stories and how they led to the creation of this fantastic organization. For more information, go to . Co Founders General : Website: Instagram: @blackdownsyndrome Public Facebook Page: Private Online Support Group for Black Families: Black Down Syndrome Association PO Box 365 Fortville, Indiana 46040 Zeffy Donation: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail...
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#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause)
Down Syndrome Center Podcast
Dr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopause in Down syndrome. While I had these experts on the podcast, we also discussed other aging related topics in Down syndrome. For more information on the Adult Down Syndrome Center, go to: . To access the Down Syndrome Resource Library, go to: If you are a provider looking to discuss a patient with experts in Down syndrome, consider using Project Echo: To view the latest healthcare guidelines for...
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#162 - Is Homeschooling An Option for Children with Ds? (with LaTaasha Byrd)
Down Syndrome Center Podcast
LaTaasha Byrd joined the podcast today to answer listener questions about homeschooling. Is homeschooling a legitimate option for children with Down syndrome. If so, what are some important considerations that may be unique in this population? Countdown to K Countdown Academy Inclusion is for the Included Book
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#161 - Special Olympics
Down Syndrome Center Podcast
Gary Cimaglia, Special Olympics North America’s Vice President of Sports, joined the podcast today to give a broad overview of the Special Olympics and how you and your loved ones can be involved. For more information, go to . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.
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#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro)
Down Syndrome Center Podcast
Down Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnosed in people with Down syndrome. It is a topic in high interest amongst researchers in the field, including today's podcast guest Dr. Jon Santoro from Children's Hospital of Los Angeles. Dr. Santoro gave us a review of the topic as well as current research into the diagnosis and treatment of this condition. If you would like to suggest a topic for us to cover on the podcast, please send an...
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#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims)
Down Syndrome Center Podcast
Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims. So many people with Down syndrome have sensory difficulties with these tasks and Dr. Frank helped explain her approach to these situations. For fantastic caregiver resources on these types of topics, go to: Some examples of equipment discussed on the podcast: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with...
info_outlineDown Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnosed in people with Down syndrome. It is a topic in high interest amongst researchers in the field, including today's podcast guest Dr. Jon Santoro from Children's Hospital of Los Angeles. Dr. Santoro gave us a review of the topic as well as current research into the diagnosis and treatment of this condition.
If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected].
If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.
Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.