098 Parkinson's Together Student Power
The Parkinson's Experience podcast
Last episode we spoke with a MDS and Assistant Professor at Vanderbilt University about integrative medicine. This episode is a great follow up to the previous one. This time it is student at the University of Cincinnati leading the charge to bring an integrated approach to Parkinson’s care. She formed a not-for profit organization called Parkinson’s Together. It brings students from multiple disciplines to help with patient care. That may include law students, engineers, finance but mainly students interested in the medical field and with interest in helping others. I had a...
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097 Benefits of Integrative Medicine
The Parkinson's Experience podcast
What is integrative medicine and how is it different than what we are used to which is mostly silos of care and mostly Western medicine? My guest today will offer an alternative to this, a better way to treat a patient with a condition or disease. Dr. Britt Stone, an Assistant Clinical Professor at Vanderbilt Medical Center, spent her pandemic time pursuing a fellowship in Integrative Medicine at University of Arizona. She will describe how clinicians can work together with the families of people with Parkinson’s to make for a better experience and a healthier outcome. She believes treatment...
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096 Living with PD and Finding Love
The Parkinson's Experience podcast
In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a diagnosis of Young Onset Parkinson's Disease (YOPD). It took another 4 1/2 years, and 2 1/2 months after Allison's divorce before she, too, was diagnosed with YOPD New Year's Eve of 2014. Allison went on to make history by becoming the first person...
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095 Parkinson's Stages Explained
The Parkinson's Experience podcast
What stage are you in? Do people ask you that question? If so, do you tell them? Do you even know? What are the stages and what do they mean? Frankly, I have never asked my movement disorder specialist neurologist what stage I am in. I don’t know why. We have never discussed it. However, learning and knowing more about how your doctor is tracking the progression of the disease is, I think, important. So, today we are going to speak with a movement disorder specialist. He will explain the stages of Parkinson’s disease. What they are and what that means to individuals and their...
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094 Answers in the Skin
The Parkinson's Experience podcast
Earlier this season on episode number 088 titled “the Skinny on Skin” we learned about the various skin disorders that can manifest in people with Parkinson’s. Well, on the flip side, the skin is the largest organ in our body. It must hold all kinds of secrets to our health. It turns out alpha-synuclein gets deposited in the skin of patients with synucleinopathies, which includes Parkinson’s and related diseases. Therefore, a skin biopsy can be used to diagnose and confirm these diseases. Not only can this advancement in the diagnosis important, the skin biopsy can also be...
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093 Follow Your Gut - The Importance of your microbiome on your health
The Parkinson's Experience podcast
What do you know about your gut? In the last several years, research has led us to a more detailed understanding of the role of the gut – which includes the stomach, intestines, and colon. This isn’t your father’s understanding of the gut. So, what does the gut have to do with it? It being the possible cause of many diseases including Parkinson’s disease. In this episode we will learn about how the gut has a direct communication with the brain. We all know the saying, “follow your gut”. The direct connection explains why this saying is meaningful. In addition, we will learn the...
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092 Innovative Approach for Bladder Relief
The Parkinson's Experience podcast
The topic today is one of those difficult to discuss symptoms that most of us try to avoid and deal with it on our own. Not a great idea. So, let’s learn about and discuss our bladders. You might have an overactive one which is also referred to as hyperactive or underactive one also referred to as hypoactive. Unfortunately, the probably of anyone having bladder problems grows as we get older. However, people with Parkinson’s have an even higher incident. Listen on to learn why bladder problems occur in people with Parkinson’s and treatments available. I think you will find the treatment...
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091 The Dean Team - Exercise Part 3
The Parkinson's Experience podcast
Welcome to the third episode in our three-episode series on exercise. During the process of researching for this episode, I have found more and more studies showing that exercise does help reduce symptoms of PD. Very exciting to be able to take control of your journey by including certain exercises in your day and week. My guest today, Dean Laws, did just that. After a period of denial and apathy, his buddies, or mates since Dean lives in Australia, urged him to take control and start running again. They went even further and formed The Dean Team to support Dean and the whole PD community. ...
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090 Exercise Cocktail Part 2
The Parkinson's Experience podcast
Welcome to part two in our series on exercise and how it has been proven to reduce the symptoms of PD. As one of my guests, Dr. Daniel Corcos, explains, “It is crystal clear, exercise slows the progression of Parkinson’s.” In this episode, Kristine Meldrum and Dr. Corcos, authors of the book “Parkinson’s: How to Reduce Symptoms Through Exercise,” continue to discuss the research and real life experiences of the positive effects realized from a personalized exercise “cocktail”. What should PWP be focused on achieving with our exercise cocktail in order to maximize our time and...
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089 Exercise Cocktail Part 1
The Parkinson's Experience podcast
OK, I know what you are thinking. Another exercise episode, really? Yes, but this isn’t your run of the mill plead for people with Parkinson’s to exercise more. Up until now, we have been told to exercise but not given any direction on which exercises are best for us. Recently friends recommended a book that is filling this deficit. It is based on research completed over 30 years in this area. As one of my guests, Dr. Daniel Corcos, explains, “It is crystal clear, exercise slows the progression of Parkinson’s.” I found the book very useful. The author, Kristine Meldrum uses real...
info_outlineWhen you or a loved one has a chronic condition, where do you go to find support, information and your “community”? People with Parkinson’s may not all have the combination of symptoms, but we are all better off when we seek out and find others like us who will be there for you and lift you up. I am grateful to have found a couple groups that have helped me along the way. I’ve formed friendships that go beyond the confines of my disease journey. As I have heard others say, I didn’t want Parkinson’s disease, but the Parkinson’s community is very special and caring.
I happened to randomly get introduced to and invited to join a women-only group which meets on Zoom every other week. Most of these women are located on the East Coast – mostly in the tristate area of NY, NJ, Connecticut. I love this group and the women. We have honest, open and real conversations, and we laugh. We are all there to support each other, share our experiences and help in any way we can. No topic is prohibited.
I so enjoy this community, I wanted to share with you. So, I asked four members of the group if we could record what our conversations are like and release it as an example for others to recreate if they want. What follows is this recording. I think you will really enjoy the conversation.