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Episode 457 - Cam Wells

I'm Aware That I'm Rare: the phaware® podcast

Release Date: 02/26/2024

Joellen Brown - phaware® interview 465 show art Joellen Brown - phaware® interview 465

I'm Aware That I'm Rare: the phaware® podcast

Joellen Brown shares her experience with pulmonary hypertension (PH) on the 15th anniversary of her diagnosis. Joellen was born with a hole in her heart and had her first open heart surgery at the age of two and a half. She believes she may have had PH since birth, but was not aware of it due to limited research in the 1950s. Joellen emphasizes the importance of having a supportive medical team and family, as well as being proactive in advocating for one’s own health. She encourages newly diagnosed individuals to seek out support groups and emphasizes the need for early and appropriate...

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Episode 465 - Joellen Brown show art Episode 465 - Joellen Brown

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Joellen Brown shares her experience with pulmonary hypertension (PH) on the 15th anniversary of her diagnosis. Joellen was born with a hole in her heart and had her first open heart surgery at the age of two and a half. She believes she may have had PH since birth, but was not aware of it due to limited research in the 1950s. Joellen emphasizes the importance of having a supportive medical team and family, as well as being proactive in advocating for one's own health. She encourages newly diagnosed individuals to seek out support groups and emphasizes the need for early and...

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Chelsea Price - phaware® interview 464 show art Chelsea Price - phaware® interview 464

I'm Aware That I'm Rare: the phaware® podcast

Chelsea Price shares her experience living with pulmonary arterial hypertension (PAH). She emphasizes the importance of having a good support system, including her church community and connecting with other friends with PAH. Chelsea is grateful for the good days she has and strives to be an active mom for her children. Learn even more about Chelsea and PAH at .  My name is Chelsea Price. I live in St. Louis, Missouri, and I have pulmonary arterial hypertension (PAH). Shortly after I had my second son, I noticed that my endurance had decreased. I grew up playing soccer, competitive...

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Episode 464 - Chelsea Price show art Episode 464 - Chelsea Price

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Chelsea Price shares her experience living with pulmonary arterial hypertension (PAH). She emphasizes the importance of having a good support system, including her church community and connecting with other friends with PAH. Chelsea is grateful for the good days she has and strives to be an active mom for her children. Discover even more about Chelsea and PAH at   Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:    

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Rajan Saggar, MD - phaware® interview 463 show art Rajan Saggar, MD - phaware® interview 463

I'm Aware That I'm Rare: the phaware® podcast

Dr. Rajan Saggar, a pulmonologist at the University of California in Los Angeles, discusses the complications of pulmonary hypertension in various lung diseases. He explains that pulmonary hypertension can either be its own disease or can complicate other conditions such as heart disease or lung tissue diseases like emphysema or fibrosis. Dr. Saggar mentions a recent FDA-approved medication for pulmonary hypertension complicating lung tissue diseases, and ongoing research to develop more treatments. My name is Rajan Saggar. I'm a pulmonologist. I work out of the University of California in...

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Episode 463 - Rajan Saggar, MD show art Episode 463 - Rajan Saggar, MD

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Dr. Rajan Saggar, a pulmonologist at the University of California in Los Angeles, discusses the complications of pulmonary hypertension in various lung diseases. He explains that pulmonary hypertension can either be its own disease or can complicate other conditions such as heart disease or lung tissue diseases like emphysema or fibrosis. Dr. Saggar mentions a recent FDA-approved medication for pulmonary hypertension complicating lung tissue diseases, and ongoing research to develop more treatments.  Learn more about pulmonary hypertension trials at . Follow us on...

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Sandeep Sahay, MD - phaware® interview 462 show art Sandeep Sahay, MD - phaware® interview 462

I'm Aware That I'm Rare: the phaware® podcast

Dr. Sandeep Sahay, a pulmonologist at Houston Methodist Hospital, discusses the concept of disease modification in the treatment of pulmonary hypertension (PH). He explains how traditional PH therapies focus on vasodilation, reducing pressure in the pulmonary artery by dilating blood vessels. However, newer therapies, such as sotatercept, work in different ways to reduce smooth muscle proliferation and thickness of the artery walls. Dr. Sahay suggests that if a drug is labeled as disease-modifying, it may be used in combination with existing PH medications from the beginning of treatment....

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Episode 462 - Sandeep Sahay, MD show art Episode 462 - Sandeep Sahay, MD

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Dr. Sandeep Sahay, a pulmonologist at Houston Methodist Hospital, discusses the concept of disease modification in the treatment of pulmonary hypertension (PH). He explains how traditional PH therapies focus on vasodilation, reducing pressure in the pulmonary artery by dilating blood vessels. However, newer therapies, such as sotatercept, work in different ways to reduce smooth muscle proliferation and thickness of the artery walls. Dr. Sahay suggests that if a drug is labeled as disease-modifying, it may be used in combination with existing PH medications from the beginning...

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UNISUS PAH Clinical Trial - phaware® interview 461 show art UNISUS PAH Clinical Trial - phaware® interview 461

I'm Aware That I'm Rare: the phaware® podcast

  SPECIAL EDITION Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s . Learn more about UNISUS Study with the . Steve Van Wormer: Hello, and welcome to, I’m Aware That I’m Rare, the phaware® podcast. I’m your host, Steve Van Wormer, from Phaware Global Association. Today, I am...

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Episode 461 - UNISUS PAH Clinical Trial show art Episode 461 - UNISUS PAH Clinical Trial

I'm Aware That I'm Rare: the phaware® podcast

SPECIAL EDITION: Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s . Learn more about UNISUS Study with the . Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  

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More Episodes

In this episode, stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media.

Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with disabilities.

Cam believes that disabilities and rare conditions affect everyone in some way and advocates for inclusivity and respect. #RareDiseaseDay

@RareDiseases @DRPI_global @EasterSeals @CJAMFM 

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: [email protected]