Libsyn Directory

Episode 475 - Robert Frantz, MD

I'm Aware That I'm Rare: the phaware® podcast

Release Date: 07/01/2024

Thekla McGinley - phaware® interview 484

I'm Aware That I'm Rare: the phaware® podcast

Thekla McGinley, a PAH patient and advocate, shares her journey with pulmonary arterial hypertension (PAH) and the changes she has witnessed in the treatment options and education for medical professionals. She emphasizes the importance of raising awareness and ensuring that patients have access to proper treatment. Thekla also discusses her role as a support group leader and encourages patients to communicate with their doctors to advocate for themselves in order to receive the best care. My name is Thekla McGinley, I’m from Bryant Arkansas. My connection to the PH community is I am a PAH...

Episode 484 - Thekla McGinley

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Thekla McGinley, a PAH patient and advocate, shares her journey with pulmonary arterial hypertension (PAH) and the changes she has witnessed in the treatment options and education for medical professionals. She emphasizes the importance of raising awareness and ensuring that patients have access to proper treatment. Thekla also discusses her role as a support group leader and encourages patients to communicate with their doctors to advocate for themselves in order to receive the best care. Learn more about pulmonary hypertension trials at . Follow us on social @phaware ...

Dr. Morris Salem - phaware® interview 483

I'm Aware That I'm Rare: the phaware® podcast

Dr. Morris Salem is a pediatric congenital cardiologist and adult congenital heart disease specialist at Kaiser Permanente in Southern California. He takes care of patients of all ages, from fetuses to elderly individuals. Dr. Salem's primary focus is interventional cardiac catheterization, specifically the closure of holes in the heart. He also deals with pulmonary hypertension and collaborates with referring physicians throughout Southern California. Dr. Salem works within the Kaiser system, which provides care to all patients regardless of age, race, or financial abilities. My name is Dr....

Episode 483 - Dr. Morris Salem

I'm Aware That I'm Rare: the phaware® podcast

Claire Champion, MSN, APRN, CPNP - phaware® interview 482

I'm Aware That I'm Rare: the phaware® podcast

Claire Champion is a nurse practitioner at Texas Children's Hospital, specializing in pulmonary hypertension. As a nurse practitioner, she has the opportunity to see some of the patients as outpatients, which allows her to witness positive outcomes and the resilience of children. She also highlights the need for nurses to have a support system to cope with the emotional toll of the job. Claire encourages families to be open about their ongoing issues so that the healthcare team can provide the necessary support. My name is Claire Champion. I am now a nurse practitioner at Texas Children's...

Episode 482 - Claire Champion, MSN, APRN, CPNP

I'm Aware That I'm Rare: the phaware® podcast

Claire Champion is a nurse practitioner at Texas Children's Hospital, specializing in pulmonary hypertension. As a nurse practitioner, she has the opportunity to see some of the patients as outpatients, which allows her to witness positive outcomes and the resilience of children. She also highlights the need for nurses to have a support system to cope with the emotional toll of the job. Claire encourages families to be open about their ongoing issues so that the healthcare team can provide the necessary support. Learn more about pulmonary hypertension trials at . Follow us on social @phaware...

Charles Burger, MD - phaware® interview 481

I'm Aware That I'm Rare: the phaware® podcast

Dr. Charles Burger, the medical director of the Pulmonary Vascular Center at Mayo Clinic in Jacksonville, Florida, discusses the importance of patient registries, specifically the Pulmonary Hypertension Association’s for pulmonary hypertension. This registry collects clinical information and surveys from patients to understand their characteristics, treatment options, and outcomes. The PHAR registry also provides opportunities for research on topics like social determinants of health and newly diagnosed patients. My name is Dr. Charles Burger. I work at Mayo Clinic in Jacksonville,...

Episode 481 - Charles Burger, MD

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Dr. Charles Burger, the medical director of the Pulmonary Vascular Center at Mayo Clinic in Jacksonville, Florida, discusses the importance of patient registries, specifically the Pulmonary Hypertension Association’s for pulmonary hypertension. This registry collects clinical information and surveys from patients to understand their characteristics, treatment options, and outcomes. The PHAR registry also provides opportunities for research on topics like social determinants of health and newly diagnosed patients. Learn more about pulmonary hypertension trials at ....

Dr. Dunbar Ivy - phaware® interview 480

I'm Aware That I'm Rare: the phaware® podcast

Dr. Dunbar Ivy, a pediatric cardiologist, discusses the value of repeat heart catheterization in patients with pulmonary hypertension. He highlights a recent study that compared the findings of the first and second heart catheterizations. The study showed that while the first heart catheterization is important for diagnosis and choosing the best therapies, it is not the best predictor of long-term outcomes. Dr. Ivy emphasizes that the decision to perform a second heart catheterization should be individualized and discussed with the patient's pulmonary hypertension physician. He also mentions...

Episode 480 - Dr. Dunbar Ivy

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Dr. Dunbar Ivy, a pediatric cardiologist, discusses the value of repeat heart catheterization in patients with pulmonary hypertension. He highlights a recent study that compared the findings of the first and second heart catheterizations. The study showed that while the first heart catheterization is important for diagnosis and choosing the best therapies, it is not the best predictor of long-term outcomes. Dr. Ivy emphasizes that the decision to perform a second heart catheterization should be individualized and discussed with the patient's pulmonary hypertension...

More Episodes

In this episode, Dr. Robert Frantz, a cardiologist at the Mayo Clinic, discusses current and upcoming clinical research in pulmonary arterial hypertension (PAH). He emphasizes the low participation rate of PAH patients in clinical trials and encourages patients to consider participating, as it not only benefits themselves but also helps advance medical knowledge.

@MayoClinic @MayoMedEd

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
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