Episode 486 - Scott E. Olitsky, MD
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 09/16/2024
Carol Stokley - phaware® interview 575
I'm Aware That I'm Rare: the phaware® podcast
A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppable, until the day she couldn’t breathe. After months of being told nothing was wrong, she collapsed into ICU with life-threatening clots in her lungs. Hear how a once-in-a-lifetime surgery gave her breath, strength, and life back. I'm Carol Stokley. I'm from Brights Grove, Ontario which is just outside of Sarnia, Ontario, a small community. How I got on this path was through a CTEPH diagnosis. Basically, I just couldn't breathe. For my age in excellent...
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Episode 575 - Carol Stokley
I'm Aware That I'm Rare: the phaware® podcast
A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppable, until the day she couldn’t breathe. After months of being told nothing was wrong, she collapsed into ICU with life-threatening clots in her lungs. Hear how a once-in-a-lifetime surgery gave her breath, strength, and life back. Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: . #CTEPH
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Jenny Yang, MD - phaware® interview 574
I'm Aware That I'm Rare: the phaware® podcast
From “Untreatable” to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks “normal” but they still can’t breathe? Dr. Jenny Yang explains how new testing and team-based care are solving one of pulmonary medicine’s most overlooked mysteries and changing what’s possible for CTEPH patients. This Special Edition episode is sponsored by . My name is Dr. Jenny Yang. I'm an Associate Professor of Medicine at the University of California, San Diego. I did all my training at UCSD. I did my residency and fellowship and graduated in 2021 and...
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Episode 574 - Jenny Yang, MD
I'm Aware That I'm Rare: the phaware® podcast
From “Untreatable” to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks “normal” but they still can’t breathe? Dr. Jenny Yang explains how new testing and team-based care are solving one of pulmonary medicine’s most overlooked mysteries and changing what’s possible for CTEPH patients. This Special Edition episode is sponsored by . Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: . #phawareMD #CTEPH
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Eric Borstein - phaware® interview 573
I'm Aware That I'm Rare: the phaware® podcast
Why “The Walking Guy” Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step pulling “EB” further from an ICU bed and closer to an identity that isn’t defined by illness. Mental health has reshaped his recovery, and has become one of the lifelines he believes should be prescribed alongside life-saving therapies. I'm Eric Borstein. Five years ago, I was diagnosed with pulmonary arterial hypertension. I collapsed and nearly died. I spent 16...
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Episode 573 - Eric Borstein
I'm Aware That I'm Rare: the phaware® podcast
Why “The Walking Guy” Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step pulling “EB” further from an ICU bed and closer to an identity that isn’t defined by illness. Mental health has reshaped his recovery, and has become one of the lifelines he believes should be prescribed alongside life-saving therapies. Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow...
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Nicole Dempsey - phaware® interview 572
I'm Aware That I'm Rare: the phaware® podcast
Don’t Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world, raise her family, and find freedom beyond fear, proving that even with a rare disease, life doesn’t have to stop. My name is Nicole Dempsey. I'm from Cambridge, Ontario, Canada. And I have pulmonary arterial hypertension. I was diagnosed 12 years ago. Today, I want to talk to you a little bit about traveling with PH. When I was diagnosed, I...
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Episode 572 - Nicole Dempsey
I'm Aware That I'm Rare: the phaware® podcast
Don’t Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world, raise her family, and find freedom beyond fear, proving that even with a rare disease, life doesn’t have to stop. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Florin Dumitrescu - phaware® interview 571
I'm Aware That I'm Rare: the phaware® podcast
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and community carried his family through their darkest moment and how survival transformed into advocacy for pulmonary hypertension patients across Europe. #WorldPHDay2026 My name is Florin Dumitrescu, I'm 56. I'm from Romania, currently living in Austria, in Vienna. We are a family that entered the pulmonary hypertension influence four years ago when my wife got this diagnosis. Unfortunately, in Romania...
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Episode 571 - Florin Dumitrescu
I'm Aware That I'm Rare: the phaware® podcast
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and community carried his family through their darkest moment and how survival transformed into advocacy for pulmonary hypertension patients across Europe. #WorldPHDay2026 Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
info_outlineIn this episode, Dr. Scott Olitsky, the Global Center of Excellence Outreach Director for Cure HHT, discusses hereditary hemorrhagic telangiectasia (HHT), a genetic disease characterized by abnormal blood vessel development. HHT can cause bleeding in various parts of the body, with nosebleeds being the most common symptom. In some cases, HHT can lead to the development of pulmonary arterial hypertension (PAH). Medications that dilate blood vessels can worsen bleeding in HHT patients. Dr. Olitsky shares his personal connection to HHT and PAH and highlights the efforts of Cure HHT to improve diagnosis and treatment options for patients.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.com @curehht