I'm Aware That I'm Rare: the phaware® podcast
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: #phawareMD #CTEPH ...
info_outlineI'm Aware That I'm Rare: the phaware® podcast
The One Type of PH You Can Actually Cure Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis. My name is Jenny Yang. I am currently at UC San Diego. My background is in pulmonary and critical care. I did all of my training at UC San Diego and was exposed to pulmonary hypertension there throughout my training and really fell in love with the disease process of PAH and CTEPH. So, when I...
info_outlineI'm Aware That I'm Rare: the phaware® podcast
The One Type of PH You Can Actually Cure Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: #phawareMD #CTEPH
info_outlineI'm Aware That I'm Rare: the phaware® podcast
The Diagnosis Delay That’s Still Hurting Patients Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed and how both patients and doctors can work together to catch pulmonary hypertension earlier. I'm Dr. Victor Test, the Chief of Pulmonary Medicine and Critical Care at Texas Tech University in Lubbock, Texas, and Director of the Pulmonary Vascular Program. I've been a pulmonary hypertension doctor since the year...
info_outlineI'm Aware That I'm Rare: the phaware® podcast
The Diagnosis Delay That’s Still Hurting Patients Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed—and how both patients and doctors can work together to catch pulmonary hypertension earlier. Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: . #phawareMD
info_outlineI'm Aware That I'm Rare: the phaware® podcast
How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. My name is LaRae Hacker. I am a mother of a four-year-old little girl who has pulmonary hypertension as the result of a genetic mutation in the TBX4 gene. We live in Sacramento, California, and I'm here to share a little bit about our story. Kate was...
info_outlineI'm Aware That I'm Rare: the phaware® podcast
How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outlineI'm Aware That I'm Rare: the phaware® podcast
How I Survived Meth Addiction, Lung Failure, and Found Purpose Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnosed with PH after years of drug use, his story spiraled from homelessness to hospice. But a double lung transplant and a deep surrender to recovery transformed everything. This Special Edition Episode Sponsored by: My name is Anthony Carrasco. I'm from the Bay Area, born and raised there. I'm here to discuss what my part in the pulmonary hypertension world was like. Basically, I am a bilateral transplant post-patient, so I had my lung transplant last year. I...
info_outlineI'm Aware That I'm Rare: the phaware® podcast
How I Survived Meth Addiction, Lung Failure, and Found Purpose Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnosed with PH after years of drug use, his story spiraled from homelessness to hospice. But a double lung transplant and a deep surrender to recovery transformed everything. This Special Edition Episode Sponsored by: Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outlineI'm Aware That I'm Rare: the phaware® podcast
Treating Meth-Associated PAH Without Judgment Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmonary arterial hypertension. From misdiagnoses to under-prescribing life-saving therapies, he lays out the systemic gaps and stigmas preventing patients from getting the care they need. This Special Edition Episode Sponsored by: My name is Brandon Jakubowski. I'm an Assistant Professor of Internal Medicine at the University of Texas at Southwestern Medical Center here in Dallas, Texas. Ever since med school, I was actually interested in pulmonary...
info_outlineThe One Type of PH You Can Actually Cure
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.com #phawareMD @UCSDHealth #CTEPH @JennyYangMD