Against the Odds: A Mother’s Journey with Breastfeeding and Cleft Palate Diagnosis with Anne Giocondini-Rodriguez
Our Forever Smiles with Laura Arroyo
Release Date: 06/19/2024
Our Forever Smiles with Laura Arroyo
In this inspiring episode of Our Forever Smiles, host Laura Arroyo is joined by Katie Manning, a trauma coach, artist, teacher, and cleft mom whose work is reshaping how we understand the emotional landscape of cleft parenting. Katie opens up about her experience raising a child with a cleft while also being married to someone who is cleft affected. Together, they discuss the internal tension Katie faced when sharing stories that weren’t fully her own and how she ultimately found purpose in building a platform for healing and connection. Katie shares the heart behind launching The 100 Cleft...
info_outlineOur Forever Smiles with Laura Arroyo
In this episode of Our Forever Smiles, Laura Arroyo sits down with Sam Rosen, a cleft lip and palate–affected adult who shares his remarkable journey from being adopted in Bulgaria to finding his voice and confidence through hockey. Sam opens up about what it was like navigating multiple identities, the unique challenges of growing up with a cleft, and how his mother’s unwavering love and his father’s sense of humor helped shape his outlook on life. This conversation is a powerful reminder of the resilience within our community and the strength that comes from being truly seen and...
info_outlineOur Forever Smiles with Laura Arroyo
In this eye-opening episode of Our Forever Smiles, host Laura Arroyo sits down with pediatric sleep expert Dr. Funke Afolabi-Brown to explore the often-overlooked connection between cleft lip and palate and sleep challenges in children. From airway obstructions and breathing difficulties to the emotional toll of sleep deprivation on families, Dr. Brown shares her expert insights on how cleft conditions can significantly disrupt sleep. Together, they dive into safe sleep practices for cleft-affected infants, what parents should know about sleep studies, and how to advocate for proper evaluation...
info_outlineOur Forever Smiles with Laura Arroyo
When Stacey Hussell learned that her son would be born with a cleft lip—just like she was—she was flooded with emotions. In this episode, she opens up about the weight of passing down her diagnosis, the fears and guilt that came with it, and how trauma coaching helped her navigate the emotional toll. Join Laura and Stacey for a raw and inspiring conversation about healing, acceptance, and finding strength as a cleft-affected mom raising a cleft-affected child. Links and Resources: ______________________________________________________________________________ Today's sponsor is sienna...
info_outlineOur Forever Smiles with Laura Arroyo
In this insightful episode of Our Forever Smiles, Laura sits down with Dr. Huay-Zong Law to explore his journey into cleft care and the deeper purpose that fuels his work. Dr. Law shares why he chose this specialty, his dedication to constantly improving as a surgeon, and how he has used social media to educate and connect with others in the cleft community. They also discuss the lifelong nature of cleft care, including the often-overlooked treatment of adult patients, and how each patient’s journey is truly unique. This conversation is a powerful look at dedication, purpose, and the lasting...
info_outlineOur Forever Smiles with Laura Arroyo
In this heartfelt episode of Our Forever Smiles, host Laura Arroyo sits down with fellow cleft mama Brittnie Hampson @britthampson to share their deeply personal experiences of discovering their daughters’ cleft palates at birth—both born at UNC. They reflect on the shock of an unexpected diagnosis, the overwhelming emotions that followed, and the immediate challenges they faced—especially with feeding. Laura and Brittnie open up about the lack of nurse education they encountered in the hospital and how unprepared many staff were to support a cleft palate diagnosis. Together, they talk...
info_outlineOur Forever Smiles with Laura Arroyo
In this powerful episode of Our Forever Smiles, Laura sits down with Erin Ulloa, a dedicated wife, mother, and full-time professional balancing life as a student and future history teacher. Erin shares her experience as an older mom navigating her son Oliver’s bilateral cleft lip diagnosis, the support she found through online communities and a colleague with a similar journey, and the challenges of balancing career, school, and motherhood. One of the most shocking moments in her journey came when she learned that, in California, termination must be offered by law when a child has a birth...
info_outlineOur Forever Smiles with Laura Arroyo
In this eye-opening episode of Our Forever Smiles, Laura sits down with Dariyon Mendoza, a mom of three who proudly calls herself a “crunchy cleft mom.” Dariyon challenges the notion that a cleft diagnosis automatically means a high-risk pregnancy, sharing her journey of advocating for natural births and creating the birth experience she wanted—despite her baby’s diagnosis. She opens up about her own home birth experience and her mission to empower other moms to know that they have options. Tune in for an empowering conversation about informed choices, trusting your body, and...
info_outlineOur Forever Smiles with Laura Arroyo
In this touching episode of Our Forever Smiles, Laura sits down with Kimberly dela Concepcion, a mother of three children—each born with a cleft lip and Van der Woude syndrome. Kimberly shares the raw and emotional realities of navigating multiple cleft journeys, from the heartbreak of each diagnosis to the deep love and gratitude she’s found along the way. She reflects on the strength of her children, how this journey has shaped her as a mother, and the resilience and unwavering love that keeps her going. This is a conversation about finding beauty in the challenges, embracing every...
info_outlineOur Forever Smiles with Laura Arroyo
In this episode of Our Forever Smiles, host Laura Arroyo sits down with Meagan Hughes to discuss her journey after receiving a unilateral cleft lip diagnosis for her son in Canada. Meagan shares the emotions she experienced, how she navigated the healthcare system, and the challenges of learning about her son's diagnosis. She also opens up about life in a blended family and how finding community has been essential in her journey. Join us for an inspiring conversation about resilience, advocacy, and the power of support. Links and Resources: ...
info_outlineIn this heartfelt episode of Our Forever Smiles, host Laura Arroyo sits down with Anne Giocondini-Rodriguez, a fellow mother whose son was born with a cleft palate, just like Laura’s daughter. Together, they share their unique journeys, diving into the emotional complexities of receiving the diagnosis at birth and the challenges that followed.
Anne opens up about her unexpected C-section and the moment she first saw her son’s cleft palate. She candidly discusses the initial fears and uncertainties she faced as a new mom, particularly around feeding options. With resilience and determination, Anne shares her inspiring experience of navigating the hurdles of breastfeeding—a rare feat for mothers of children with cleft palates.
Join us for a touching conversation filled with insights, struggles, and triumphs as Anne offers hope and encouragement to others on similar paths. Whether you’re a parent or simply interested in powerful stories of perseverance, this episode is sure to resonate with you. Tune in for a journey of love, resilience, and the unwavering bond between mother and child.
Want to share your story? Email us at [email protected].
Want to be a show sponsor? Email us at [email protected]
Follow us @ourforeversmiles on social platforms
We know you will have questions! Join our FB Community to discuss the weekly episode and speak directly to our guests. https://www.facebook.com/groups/1081522212884073/
_______________________________________________________________________________
This podcast is completely free for you, but if you'd ever consider supporting the show, we truly appreciate it. One way you can do that is by using our affiliate links. These are links to products we've mentioned on the show, and if you make a purchase through one of them, we might earn a small commission at no extra cost to you. It's a great way to show your love for the podcast and help us keep creating content that educates, empowers, and strengthens the cleft lip and palate community!
First Bottle to Purchase After Palate Repair - Post Palate Repair Straw Trainer
Juselle’s Cleft Palate Bottle - Pigeon Bottle Specialty Feeder
Sippy Cup for Pre Palate Repair Prep - Munchkin 360
Weigh your Baby at Home - Weighted Feeds Scale
Squeezable Straw Training Bottle - Honey Bear Straw Cup
Free Flow Cup for Pre palate Repair Prep - Reflo Smart Cup
Pacifiers that have Worked for Cleft Lip and Palate Babies - Itzy Ritzy
Pacifiers that have Worked for Cleft Lip and Palate Babies - MAM
Pacifiers that have Worked for Cleft Lip and Palate Babies - Itzy Ritzy
Scar Cream Recommended by Alexis Garcia, Cleft Lip Mom - bioCorneum - Pricey**