School-Age Cleft Journeys: Stacy Swope on Buccal Flap & Bone Graft Success with Son Benjamin
Our Forever Smiles with Laura Arroyo
Release Date: 10/28/2025
Our Forever Smiles with Laura Arroyo
In this episode of Our Forever Smiles, Laura sits down with Stephanie, a cleft mom and Executive Director of the Face-to-Face Foundation. Stephanie shares her family’s prenatal cleft diagnosis journey, the realities of cleft care, and how lived experience led her into advocacy work. Together, they discuss the importance of community connection, medical grants, and supporting families beyond surgery. This conversation offers reassurance, perspective, and hope for parents navigating a cleft diagnosis at any stage. Links:
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In this episode of Our Forever Smiles, Laura sits down with Natalie, a mom of two whose son was prenatally diagnosed with a cleft lip. Natalie shares the emotional journey from receiving the diagnosis at 16 weeks to preparing for surgery and finding peace in the unknown. She opens up about anxiety, faith, choosing the right cleft team, and what helped her feel grounded during pregnancy. This conversation offers reassurance and hope for families navigating a prenatal cleft diagnosis. Links:
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Brooklyn joins Our Forever Smiles to share her experience as a cleft mom navigating diagnosis, surgery, and motherhood with resilience and honesty. She opens up about the emotional ups and downs of the cleft journey and the importance of community support. This episode centers on growth, advocacy, and learning to trust yourself as a parent. A comforting and relatable conversation for moms at any stage of the cleft journey. Links:
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In this inspiring episode, Laura speaks with Charlotte, a 17-year-old cleft-affected individual and the creator of Stitches by Charlotte. Born with a cleft lip and palate, Charlotte shares her lived experience and how she began creating surgery companion dolls to help children feel seen and supported. She also discusses advocacy, confidence, and using her voice to create change in the cleft community. This conversation is a reminder of the power of representation and lived experience. Links:
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Jessica shares her story of becoming a first-time mom and learning about her child’s cleft palate after birth, followed by an unexpected NICU stay. She reflects on the shock, fear, and isolation that came with leaving the hospital without her baby. This episode highlights the emotional realities of NICU life, navigating a cleft palate diagnosis, and finding strength in the hardest moments. A powerful listen for parents facing medical trauma and uncertainty. Links:
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In this special solo episode, Laura Arroyo sits down to reflect on the past year of the OFS Podcast and share an honest, behind-the-scenes look at where we are and where we’re headed. Laura highlights the conversations that made an impact, the lessons learned, and the themes emerging from our community. She also offers a sneak peek at upcoming topics, new initiatives, and how we’re continuing to elevate support for women, moms, and families. Whether you’re a longtime listener or just tuning in, this episode is a heartfelt, transparent update on the journey so far—and an exciting look...
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In this returning episode, Laura Arroyo sits down with Brittnie Hampson to continue the conversation about life after a surprise cleft palate diagnosis. Brittnie shares an honest look at raising her two-year-old daughter, Ava, and how her journey has evolved since her last appearance on the podcast. She opens up about the emotional shift from confidently breastfeeding her first two children to learning entirely new ways to feed a cleft-affected baby, and the steep learning curve that came with it. Brittnie also shares how she’s turned her experience into advocacy by educating nurses through...
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Laura Arroyo talks with Dr. Richard Kirschner and Catherine Bingham about the Magical Moments Foundation, a wish-granting organization for children with facial differences. Brought to you by the ACPA — the American Cleft Palate Craniofacial Association, supporting interdisciplinary cleft and craniofacial teams. Links and Resources:
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Laura Arroyo sits down with Dr. Renie Daniel, a fellowship-trained, dual-degree, board-certified cleft and craniofacial surgeon in Minneapolis and director of the University of Minnesota Cleft and Craniofacial Team. Dr. Daniel shares what inspired her to pursue cleft care, her favorite surgeries, and how her multidisciplinary team works together to educate, advocate, and empower children and adults with facial differences — all to ensure the best outcomes for families across Minnesota. Links and Resources:
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At the ACPA Annual Meeting, we sat down with Nancy Rowan and Rachel Chiavatti to discuss groundbreaking advancements in cleft care for Pierre Robin Sequence (PRS). Both mothers to sons born with cleft palate and PRS in the fall of 2022, they share their journeys as parents and advocates. Together, they co-founded HOAP for PRS (Healing with the Orthodontic Airway Plate for Pierre Robin Sequence), a nonprofit organization dedicated to improving outcomes for PRS patients. They also highlight the pioneering work of Dr. HyeRan Choo at Stanford, who is leading the way in creating less invasive...
info_outlineIn this inspiring episode, Laura Arroyo sits down with Stacy Swope — special education teacher, mom of two, and first-time author — to share the story of her son Benjamin’s cleft journey. From infancy through the school years, Benjamin has undergone a series of life-changing treatments and surgeries, including NAM, ear tubes, cleft lip and palate repairs, a two-part buccal flap procedure to improve speech and lengthen his palate, and two bone grafts using both hip and cadaver bone.
Stacy opens up about what it’s like to navigate the evolving medical needs of school-aged children affected by cleft lip and palate, the challenges and victories along the way, and the importance of creating supportive communities for families. She also gives us a glimpse into her upcoming children’s book designed to encourage and empower cleft-affected kids and their families.
Whether you’re a parent, caregiver, or advocate, this conversation is filled with hope, resilience, and practical insight for every stage of the cleft journey.
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