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Utilising Global Data Registries for MS Research

The ECTRIMS Podcast

Release Date: 06/29/2023

Artificial Intelligence in MS Research show art Artificial Intelligence in MS Research

The ECTRIMS Podcast

Artificial intelligence (AI) can be a powerful tool to help enhance our understanding of MS disease processes, improve our diagnostic accuracy, better predict disease course, and identify optimal treatments. How is AI being used in MS research currently and what may it be able to do in the future? Host Alan Thompson, Editor in Chief of MS Journal, talks with Arman Eshaghi of the Queen Square Institute of Neurology, University College London, and Daniel Ontaneda of the Cleveland Clinic Neurological Institute’s Mellen Center for Multiple Sclerosis in the United States.

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Prioritising Women's Health Topics in MS Research show art Prioritising Women's Health Topics in MS Research

The ECTRIMS Podcast

In a landscape where funding is increasingly difficult to obtain, the importance of conducting research that has the greatest impact has never been more important. In the case of women with MS, a large-scale scoping review,* conducted on behalf of the International Advisory Committee on Clinical Trials in MS, sheds light on the research gaps related to female health. ln this episode, host Brett Drummond of MSTranslate talks with two of its authors -- Lindsay Ross, an assistant professor at the Cleveland Clinic Lerner College of Medicine, and Ruth Ann Marrie, professor of medicine and community...

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Spotlight on Young MS Researchers show art Spotlight on Young MS Researchers

The ECTRIMS Podcast

The ECTRIMS Congress offers a valuable opportunity for young researchers to gain experience and exposure. Joonas Lehikoinen from Helsinki University Hospital and the University of Helsinki Neurocenter, along with Ahmed Abdelhak from the University of California, San Francisco, received poster abstract prizes at MSMilan2023. Host Brett Drummond from MSTranslate talks with them about their research, experiences, and advice for young researchers preparing abstracts for ECTRIMS2024.

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MS in the Black Community show art MS in the Black Community

The ECTRIMS Podcast

With the growing push towards taking a more personalised approach to the treatment and management of multiple sclerosis, it is important to understand the unique issues – both socially and clinically – that may arise among people of different ethnicities. In this episode, Natalie Bursari of The Nerve of My Multiple Sclerosis in the UK and Mitzi Joi Williams of Joi Life Wellness Multiple Sclerosis Center in the US discuss the issues faced by Black people living with MS, with host Brett Drummond of MStranslate. 

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Efforts Towards a Better MS Diagnostic Criteria show art Efforts Towards a Better MS Diagnostic Criteria

The ECTRIMS Podcast

Discussions are ongoing to change the way MS patients are diagnosed and treated. In this episode,  Xavier Montalban, Chair of the International Advisory Committee on Clinical Trials in Multiple Sclerosis, which is leading the discussions, explains the evolution of the McDonald criteria and why these proposed revisions are important for clinicians and patients alike.

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Factoring in Female Health in the MS Journey show art Factoring in Female Health in the MS Journey

The ECTRIMS Podcast

Recent global epidemiological data show that approximately 70% of people diagnosed with multiple sclerosis are women.  While this may tell us something about the mechanisms behind disease susceptibility, it also raises a number of unique challenges throughout the MS journey.  In this episode, Ruth Dobson, Professor of Clinical Neurology at Queen Mary University of London, and Emmanuelle Leray, Professor of Epidemiology at Ecole des hautes études en santé publique in Rennes, France, guide us through the different stages of this pathway and discuss the latest research findings that...

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The Importance of Patient Community Day show art The Importance of Patient Community Day

The ECTRIMS Podcast

The MSMilan Patient Community Day was designed for people living with multiple sclerosis and related neurological diseases and their caregivers to stay updated and involved in the advancements being made on their journey towards managing their conditions. In this episode, Tim Coetzee, Chief Advocacy, Services & Science Officer and Bonnie Higgins, Director of the National Multiple Sclerosis Society in the United States discuss their experiences at MSMilan Patient Community Day, their roles, and why they believe it is important to put people living with MS and other neurological...

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Genetics and MS Severity show art Genetics and MS Severity

The ECTRIMS Podcast

Why do some people with multiple sclerosis (MS) continue to run marathons while others are in wheelchairs years after diagnosis? Genetics partly explains why. Scientists have identified the first genetic marker for MS severity, which could pave the way for new treatments to prevent disease progression. Sergio Baranzini of University of California San Francisco and Adil Harroud of McGill University in Canada discuss their findings with host Brett Drummond of MS Translate.

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Defining MS Subtypes in Clinical Practice show art Defining MS Subtypes in Clinical Practice

The ECTRIMS Podcast

Descriptors of multiple sclerosis are currently based on a combination of clinical and MRI features, and include clinically isolated syndrome, relapsing-remitting, secondary and primary progressive subtypes. Accumulating evidence suggests that the clinical course of MS is better considered as a continuum, with contributions from concurrent pathophysiological processes that vary across individuals and over time. In this episode, MS Journal Editor in Chief Alan Thompson talks with neurologists Marcello Moccia of the Multiple Sclerosis Unit of the University of Naples Federico II and Angela...

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The Changing Role of MS Nurses show art The Changing Role of MS Nurses

The ECTRIMS Podcast

Two sessions at the 9th Joint ECTRIMS-ACTRIMS Meeting (MSMilan2023) focused on nursing. Nurses play a critical role throughout an MS patient's life. And in this episode, we discuss the changing role of MS nurses and the challenges they face, with guests Belinda Bardsley, an N-CRESS (Neuro-Immunology Clinical Research, Education and Support Service) Nurse Manager at Austin Health in Melbourne, Australia; and Ruth Stross, Head of Nursing at Neurology Academy in England. Hosted by Brett Drummond of MS Translate.

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More Episodes

The development of global databases that record and store large amounts of clinical data for people living with MS has made a significant difference to the MS research world.  In this episode, we talk to Izanne Roos of the University of Melbourne and Cyrus Daruwalla of the University of Cambridge about the types of registries that currently exist, the importance of collecting observational data and how they used both in their research, which was presented as part of the late-breaking session at ECTRIMS 2022.