The Science of Rest— What the Lipkin Study Taught Us About ME/CFS
Release Date: 10/22/2025
Dear body, I’m listening
“A reaction is not a moral failure— it's information. Your body is just responding to something, and right now it's giving you signals that it doesn't want that or it needs some extra help.” —Donna Piper When every meal feels like a risk and symptoms seem to come out of nowhere, it can start to feel like the body has turned against us. Many in the chronic illness community are stuck between labels like “histamine intolerance” and “MCAS” while still getting no clear plan or validation. This conversation names what is happening in the body and why it is not “all in...
info_outlineDear body, I’m listening
“Rest isn't a character flaw. It's what your body needs in order to heal from these invisible illnesses. And for some of us, it's also a grief process, because we're not just resting from task; we’re resting from the version of ourselves who thought we had to earn love through output.” —Donna Piper Ep 36 Shownotes: Podcast Platforms We talk about rest like it is simple, but for many bodies it brings guilt, fear, and shame. When worth gets tied to productivity, stopping can feel dangerous even when the body is breaking down. This conversation meets the tension...
info_outlineDear body, I’m listening
“You're not making it up. You're not weak, you're not failing. Your body is working hard to keep you upright, and you deserve support that matches the reality of that.” —Donna Piper Standing up should not require strategy, recovery time, or mental math. When heart rate spikes, dizziness hits, and showers wipe us out, the hardest part is not the symptom. It is being told nothing is wrong while our body says otherwise. Donna shares lived experience with POTS, dysautonomia, and multiple comorbidities, blending physiology with trauma-informed insight. Her work is shaped by years...
info_outlineDear body, I’m listening
“If you're traveling with chronic illness, I want you to hear me. There is nothing wrong with you. You just have to prepare a little bit. You deserve to travel in a way that doesn't punish you, that helps you, that makes you feel good.” —Donna Piper Travel takes more out of the body than most people admit. For those living with chronic illness, the cost shows up before the suitcase is even packed. Energy drains through lines, noise, time pressure, swelling, and the fear of crashing far from home. Donna shares her real-time approach to spending a month in Germany while...
info_outlineDear body, I’m listening
“Movement and less pain is why I'm doing this and why I've chosen to go to Germany.” —Donna Piper Big life changes rarely wait their turn. When health decisions collide with exhaustion, logistics, and uncertainty, clarity matters more than certainty. Donna shares the personal and medical reasoning behind traveling to Germany for lipedema surgery while managing multiple chronic conditions. This episode traces how lived experience, failed conservative treatments, and the need for long-term care shaped a choice rooted in mobility, pain reduction, and nervous system safety. Press play...
info_outlineDear body, I’m listening
“Anything you choose is not weakness. It's the best for you… Instead of thinking surgery or no surgery, try this question: ‘What would make my next step safer?’... Safety is a step, not a switch.” —Donna Piper Pressure around medical choices can turn care into panic. When the body is complex and money, time, and fear are involved, certainty starts to feel like a deadline. This conversation slows that moment down and gives it room to breathe. In this episode, Donna shares her lived experience navigating lipedema and the long road of conservative care, research, and...
info_outlineDear body, I’m listening
“Lipedema is not a willpower issue. Shame is not a treatment plan. Late diagnosis does not mean late reality. It means late recognition. Your best advocate is yourself. There's nothing wrong with you. You've just been navigating a body that hasn't been understood by the medical world yet. Be gentle with your capacity. Meet yourself where you are.” —Donna Piper Bodies can change in ways that do not follow the rules we were taught. Pain, swelling, and heaviness show up, and the explanations never quite fit. Many women carry this quietly for years, assuming it is just weight or age....
info_outlineDear body, I’m listening
“Flares and trauma responses often look the same because fascia remembers, the nervous system protects, and the immune system overreacts to help defend itself, and the body is trying to keep you alive, not confused. So your job isn't to decode perfectly. Your job is to offer safety consistently, because when the body feels safe, the symptoms soften, and when the symptoms soften, the story changes, and when the story changes, the healing becomes possible.” —Donna Piper The body can shift from steady to overwhelmed without warning, leaving confusion about what just took over. Pain,...
info_outlineDear body, I’m listening
“Move forward, take action. It may happen, it may not, but it's just about putting one step in front of the other— doing that is so important. When you go forward, you realize, ‘oh, that's not for me’, but in the process, you discover what is.” —Didi Selwa Drop the guilt of being stuck and discover a movement that meets your body where it is. Press play to hear how embodiment, faith, and small practical steps shift shame, chronic illness limits, and stalled dreams into forward motion. Didi Selwa went from a 25-year banking career to a Certified Transformational Life...
info_outlineDear body, I’m listening
"We are the experts in our well-being and our own bodies, and it's important for us to advocate for ourselves. We're not defined by our past. Our past is gone. It's in the past, and the beliefs we formed about ourselves based on what we've been told by other people or experienced in the past aren't necessarily true." —Ann Diment Some seasons of life push us past our limits, and the body keeps score long before we understand why. Many of us try to outwork the chaos, yet the real shift begins when we finally question the version of resilience we were taught to admire. There is a quieter...
info_outline“Pace first, safety builds capacity.” —Donna Piper
There’s a kind of tired that sleep can’t fix, a crash that feels invisible to everyone but you. You push, you pace, you try to “do all the right things,” yet your body still calls a timeout. Maybe it’s not weakness or lack of willpower. Maybe your body’s simply working harder than anyone realizes.
In this episode, Donna unpacks a revolutionary study on chronic fatigue, the real science behind “the crash,” and why pacing, rest, and nervous system care are the new power moves for healing. Expect myth-busting, practical science, and the kind of honesty your exhausted body has been waiting for.
Connect with Donna:
Website: https://www.donnapiper.com/
LinkedIn: https://www.linkedin.com/in/donnapiper
Instagram: https://www.instagram.com/lipedema_donna
Facebook: https://www.facebook.com/thedonnapiper
YouTube: https://www.youtube.com/@thedonnapiper
Episode Highlights:
01:48 Not Lazy, You’re Overloaded
04:17 What Science Says
07:09 Crash Under the Microscope
09:48 Myths vs Truths
14:31 Trade Crashes with Capacity
Resources:
🤔Got a question for me? Every month, I do a listener coaching episode—and I’d love to hear from you!
Send your questions, stories, or flare-up confessions to donna@donnapiper.com, and you just might hear your answer on the show.
🔎Research and Studies
- Screaming Immune Activation — Health Rising blog
- Lipkin et al. ME/CFS study — Cell Host & Microbe, 2023
X:
Rest is not optional when your body’s in survival mode. Learn how science is finally mapping the truth about chronic fatigue and the power of real rest. #DearBodyImListeningPodcast #BodyConfidence #ChronicIllness #ChronicFatigueSyndrome #RestIsMedicine #MindBodyHealing #NervousSystemHealing
Quotes:
01:48 “There's actual science proving that for people with ME/chronic fatigue syndrome, your body isn't lazy, it's overloaded.” —Donna Piper
03:14 “A lot of the prescription to help you heal is rest.” —Donna Piper
07:59 “Your body isn't weak, it's working overtime in every direction just to maintain balance.” —Donna Piper
09:56 “Pace first, safety builds capacity.” —Donna Piper
09:59 “Myth: It’s just anxiety. Truth: immune activation and metabolic strain show up in labs. This is biology, not mindset.” —Donna Piper
10:26 “Subgroups differ in age, sex, and root drivers matter. Personalize everything.” —Donna Piper
11:00 “Rest isn't laziness; it is a biological necessity.” —Donna Piper
13:49 “Taking my perspective and intentionally resting is a game-changer.” —Donna Piper
14:33 “Your crashes are not character flaws, they are a multi-system response that science is finally mapping out.” —Donna Piper
Your Host:
Donna Piper is a Relationship Coach, Trauma Expert, and Akashic Records Healer dedicated to empowering successful single women to transform their love lives and attract fulfilling partnerships without sacrificing their professional ambitions.
With a holistic approach blending therapeutic coaching, trauma-informed techniques, and Akashic Records wisdom, she guides clients to release limiting beliefs, heal emotional blocks, and cultivate unshakable self-trust. Her work focuses on aligning mind, body, and spirit to create lasting change—helping clients refine communication, deepen self-worth, and build the foundation for healthy, loving relationships.
Donna’s sessions are a safe haven for those ready to break cycles, embrace vulnerability, and design a love life that harmonizes with their thriving careers. For women committed to both personal and professional fulfillment, she offers tailored strategies to unlock their full potential and step into the relationship of their dreams.