S3, 2 - Innovation in 5: Stress Less About Finding Accessible Public Bathrooms with Ahoi and Momentum Refresh
Changing What's Possible: The Disability Innovation Podcast
Release Date: 06/21/2024
S3, 23 - Research Roundup: Shining A Light on Vision Problems in People With Cerebral Palsy
Changing What's Possible: The Disability Innovation Podcast
It’s estimated that anywhere from 75-90% of people with cerebral palsy (CP) have vision problems, and research aimed at better understanding vision in people with CP could help improve care and quality of life for these individuals. To wrap up our third season, Dr. Marie McNeely hosts this Research Roundup episode featuring three recent studies examining aspects of vision in people with CP. These studies highlight that cerebral (brain-level) visual impairment can change over time in people with CP, strabismus is very common in CP and affects millions of people worldwide, and different...
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S3, 22 - Research Roundup: Expanding Our Understanding of Physical Activity in Individuals With CP
Changing What's Possible: The Disability Innovation Podcast
Substantial and growing evidence supports the wide-ranging benefits of physical activity, but cerebral palsy (CP) and other disabilities can affect how a person engages in physical activity and what activities they should do to maximize their benefits. In this Research Roundup episode, Dr. Marie McNeely talks about three new studies that focused on physical activity in people with CP. The results from these studies give insights on physical activity and exercise in children with CP who can walk, children with CP who can’t walk, and adults with CP. The studies also draw attention to gaps in...
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S3, 21 - Feel the Rush of Action-Packed Parasports with the Game Phenoms from Big Karma
Changing What's Possible: The Disability Innovation Podcast
Adaptive sports are filled with thrilling moments and jaw-dropping athletic feats from amazing athletes. But these sports and the phenomenal athletes who are at the top of their game remain a relatively untapped source for game developers. Pascal Clarysse kicks off this episode by sharing more about Big Karma, one of the startup companies in the 2024 Remarkable US Accelerator Program. As a founder of Big Karma, Pascal is passionate about gaming and dedicated to improving representation of disabled people in gaming and entertainment. Their flagship game, Phenoms, features a diverse group of...
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S3, 20 - Research Roundup: Postural Differences May Impact Pain and Other Aspects of CP
Changing What's Possible: The Disability Innovation Podcast
The separate parts of our body are connected, and problems in one area can affect other aspects of our physical and mental health. Researchers are working to better understand the relationships between different symptoms of cerebral palsy (CP) and the impacts these symptoms can have on the everyday lives of people with CP. In this Research Roundup, Dr. Marie McNeely discusses three new research papers that examined relationships between posture and other aspects of CP like pain, balance, and quality of life. These studies investigated postural asymmetry, spine and pelvis alignment, and...
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S3, 19 - Understanding the Healthcare Needs and Research Priorities of Adults with CP with Cristina Sarmiento, MD
Changing What's Possible: The Disability Innovation Podcast
The majority of people living with cerebral palsy (CP) today are adults, and more research is finally being done to better understand the unique healthcare risks and needs of adults with CP. However, many gaps remain in both research and healthcare for adults with CP. Dr. Cristina Sarmiento is a clinician and researcher who focuses on the transition from pediatric to adult healthcare for adults with lifelong disabilities, particularly CP, with the ultimate goal of promoting overall health, well-being, and quality of life across the lifespan. She is part of a team of researchers...
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S3, 18 - Research Roundup: New Studies to Support Lifelong Management of CP
Changing What's Possible: The Disability Innovation Podcast
About 18 million people worldwide have cerebral palsy (CP). CP’s impacts span a person’s whole lifetime and will likely change with age. Thankfully, more recent research has been aimed at better understanding important issues related to managing CP throughout adulthood. This Research Roundup with Dr. Marie McNeely features three new research papers in this area. They examine important factors for people with more involved CP to consider when transitioning from assisted to independent living, functional decline in adults with CP living in the community, and dealing with and managing...
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S3, 17 - Opening Doors for Greater Accessibility with We Hear You
Changing What's Possible: The Disability Innovation Podcast
Technology can make it easier for people with disabilities to access and engage with their communities, and We Hear You is dedicated to building a world with diversity and inclusion as the foundation of innovation. In this episode, you’ll hear from Pierre Paul and Ashley Schreck. Pierre is Founder and CEO of We Hear You, a startup company in our 2024 Remarkable US Accelerator Program. Pierre shares the story of how the company began, the sign-language interpreter that got them started in disability tech, and their latest products, which focus on increasing accessibility by...
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S3, 16 - Paralympian Jeff Butler Shares Innovations in Accessibility Solutions From the 2024 Games
Changing What's Possible: The Disability Innovation Podcast
Tremendous progress has been made in the development of technology and other innovations to support people with disabilities and make the world more accessible, but we still have a long way to go. The Paralympic Games have been a key driver of innovation and are changing the way that people perceive disabilities and assistive technologies. In this episode, you’ll hear from Paralympic athlete Jeff Butler, a member of the USA Wheelchair Rugby Team and a three-time Paralympian. Jeff and his teammates took home the silver medal in the 2016 Games in Rio de Janeiro, the 2020 Games in Tokyo, and...
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S3, 15 - Changing Clinical Care to Better Treat Pain for People with CP — With Dr. Amy Bailes and Dr. Mary Gannotti
Changing What's Possible: The Disability Innovation Podcast
The vast majority of people with cerebral palsy (CP) experience chronic pain throughout their life. Even though this pain is incredibly common, it’s often not adequately treated or managed in regular clinical care. Pain treatment delays can lead to more severe pain or other health problems later on. To improve how clinicians treat pain, it’s essential for them to regularly screen patients for pain, classify what type(s) of pain someone has, and measure changes in pain over time. In this episode, Dr. Amy Bailes and Dr. Mary Gannotti discuss their ongoing CPARF-funded research focused...
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S3, 14 - Research Roundup: New Insights on Surgical Interventions and Medications for CP
Changing What's Possible: The Disability Innovation Podcast
For years, surgeries and medications have been used to manage different symptoms that people with cerebral palsy (CP) experience. As new surgical approaches are developed, new medications become available, and new data are collected on the effects of these treatments, clinical care continues to evolve. Hosted by Dr. Marie McNeely, this Research Roundup covers three recently published papers that share updates on surgical interventions and medications for managing symptoms of CP. The papers examined how hamstring lengthening surgery may impact pelvic tilt during walking in adults with CP,...
info_outlineWhether you’re planning to go to an event or even just catch up with friends over a cup of coffee, you shouldn’t have to worry about whether or not there will be a bathroom available that meets your needs. Even if public bathrooms comply with all of the Americans with Disabilities Act Standards for Accessible Design, they can still be difficult or impossible to use for people with cerebral palsy and other disabilities.
In this episode, Becky Hansen, Chief Strategy Officer at Momentum Refresh, and Jake Haendel, Founder of Ahoi, talk about their innovative approaches to making public bathrooms more accessible and inclusive. Momentum Refresh provides fully accessible, universally designed mobile bathrooms to empower people with limited mobility to more easily access community events, venues, and emergency services. Ahoi is a mobile app that leverages community-sourced photos and ratings about the accessibility of bathrooms to help people with disabilities find bathrooms in their area that have the features they need.