Carly talks about Anxiety
Your Voice Matters
"Anxiety is more than nothing. It's extremely exhausting and debilitating. It's okay not to be okay." Anxiety doesn't always need a reason and it's never "nothing." In this episode of Your Voice Matters, Asma Jacob speaks with Carly Considine, an autistic adult and mother of autistic children, about the reality of living with heightened anxiety. Carly shares personal stories of panic attacks, the struggle to find rationality in anxious moments, and practical coping strategies that help her family navigate daily challenges. From mindfulness techniques to the exhaustion of masking,...
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Music, Regulation & Play with Bella Ely
Your Voice Matters
"We sing, we create, we play, we have fun and it can't be one without the other." In this episode of Your Voice Matters, Asma Jacob speaks with Bella Ely, a music teacher with 23 years of teaching experience who specialises in working with autistic children. Bella shares how she discovered the power of music as a tool for emotional regulation early in her career, working with vulnerable children in foster care and orphanages. She explains her unique approach to online music sessions that combine creativity, play, and emotional regulation strategies, helping children and their families...
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Malaika (MK) on Life in our Shoes & Finding your Spark
Your Voice Matters
Trigger warning: This episode discusses childhood trauma, sexual abuse, medical trauma, paralysis, and societal discrimination. Living with a disability and neurodivergence while defying the odds, Malaika (MK) proves that medical expectations don’t define your journey and achievements. "Find your spark. Go make your soul happy. Do what you love, and let's heal this world together." - Malaika (MK) In this episode of Your Voice Matters, Asma Jacob chats with Malaika, a multi-creative advocate who shares their journey of navigating multiple disabilities, childhood trauma, and discovering...
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Strength and Resilience in Neurodivergence with Belinda Moscoso
Your Voice Matters
Trigger warning: This episode includes honest discussion about isolation, stigma, and the challenges of living with chronic illness. In this episode of Your Voice Matters, Asma Jacob speaks with Belinda Moscoso, a passionate advocate for the neurodivergent and SEND communities. Belinda shares her journey of receiving a late diagnosis of ADHD and autism alongside her son, as well as her experiences of living with chronic illness. Together, they explore the importance of acceptance, resilience, inclusivity, and the power of advocacy in breaking down stigma. This episode...
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Connecting with Children through Theatre and Play with Mick Collins
Your Voice Matters
Trigger warning: This episode touches on themes of trauma, isolation, and the impact of the pandemic on children’s mental health. Please take care while listening. In this episode of Your Voice Matters, Asma Jacob chats with Mick Collins, a storyteller, theatre practitioner, leading practitioner in Trauma Informed Practice, and educator. Mick shares his creative and compassionate approach to working with SEND children and children with trauma backgrounds, showing how theatre, play, and sensory experiences can open up communication and connection. Together, they explore the importance of safe...
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The Passion That Drives My Music with Dale Dixon
Your Voice Matters
Trigger warning: This episode briefly discusses challenges faced by disabled and neurodivergent individuals, including social isolation and stigma. In this episode of Your Voice Matters, Asma Jacob speaks with Dale Dixon, a passionate musician and advocate from the neurodivergent community. Dale shares how his love for music began with his mother’s influence, the challenges and joys of his musical journey, and his dreams of performing around the world. "We can tell our own self that we love our own disability, whether you're blind or visually impaired or whatever your disability is. Be...
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Neurodiversity and Friendship with MissNatasha Connects
Your Voice Matters
Trigger warning: This episode includes discussions around friendship challenges, feelings of isolation, and the emotional impact of not being accepted for who you are. While the conversation is uplifting, some listeners may find these themes emotionally sensitive. In this episode of Your Voice Matters, host Asma Jacob speaks with MissNatasha Connect, an author, digital educator, and passionate advocate for neurodivergent communities. Together, they explore what real, affirming friendship looks like for neurodivergent people. “Having someone that really accepts you for you, your whole....
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ADHD, education, coming out, and the LGBTQA community with Andrea Schiff
Your Voice Matters
Trigger Warning: This episode includes discussions of isolation, stigma, and the emotional challenges of coming out. Listener discretion advised. In this episode of Your Voice Matters, Asma Jacob speaks with Andrea Schiff, a proud trans woman, neurodivergent advocate, and creative spirit. Andrea shares her journey navigating life with ADHD and dyslexia while exploring gender identity in a world that often misunderstands both. Together, they reflect on the power of supportive communities, the need to challenge harmful narratives, and the importance of being truly seen and accepted. This...
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Riko Ryuki’s journey and the link with the LGBTQ+ community
Your Voice Matters
Trigger Warning: This episode explores themes of identity, including autism, gender, and asexuality. It touches on feelings of isolation, confusion, and the emotional impact of not having the language to describe one’s experience. These topics may be sensitive for some listeners. Please listen with care. In this episode of Your Voice Matters, Asma Jacob speaks with Riko Ryuki, a neurodivergent parent, advocate, and writer, about their journey through autism, gender, and identity. Riko shares how discovering they are agender and asexual helped them feel more whole, and why language and...
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Navigating Parenthood with PDA and Autism with Nia Zihni
Your Voice Matters
Trigger Warning: This episode discusses the emotional challenges of parenting a neurodivergent child, including topics such as burnout, meltdowns, sensory overload, and parental guilt. Some listeners may find these themes emotionally sensitive or triggering. Please take care while listening. In this episode of Your Voice Matters, Asma Jacob speaks with Nia Zihni, a neurodivergent parent navigating life with her autistic son, who has a PDA (Pathological Demand Avoidance) profile. Nia shares the emotional and practical realities of parenting, including managing sensory needs, meltdowns, and...
info_outlineTrigger warning: This episode includes discussions of chronic illness, physical pain, medical trauma, and the emotional impact of living with invisible conditions. Listener discretion is advised.
“The more experience you have with something, the less hard it gets. The more knowledge, the more wisdom you have about it. It's freeing your mind.” — Carolyne Shallop
In this episode, host Asma Jacob speaks with her niece, Carolyne Shallop, about life with two autoimmune conditions: rheumatoid arthritis and vasculitis.
Carolyne opens up about her journey from diagnosis to acceptance, the emotional toll of chronic illness, and how her support network helped her find strength and purpose.
This conversation highlights the power of shared experience and the importance of being seen and understood. Whether you're living with an invisible condition or supporting someone who is, this episode offers hope, honesty, and connection.
Key Takeaways:
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It’s okay to do what works best for you, even if it looks different from others.
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Leaning on trusted people can bring comfort, clarity, and strength.
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Find supportive healthcare professionals who truly listen and advocate for you.
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Connecting with others who have similar experiences can help ease feelings of isolation.
About Carolyne Shallop:
Carolyne Shallop was born in Sierra Leone to Lebanese parents. She moved to England aged 12, with her mum and siblings. For the past 13 and a half years, Carolyne has been living with 2 Autoimmune Disorders. In December of 2008, at the age of 21, she was diagnosed with Rheumatoid Arthritis, after about 9 months of symptoms the majority of which was joint pain. In January of 2014, Carolyne was diagnosed with Vasculitis, after a major flare-up, and in April of 2014, she was told the type of Vasculitis she has is Microscopic Polyangiitis.
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