Libsyn Directory

AliveAndKickn Podcast - Dr Matthias Kloor

AliveandKick'n the podcast

I sit down with Dr. Matthias Kloor, Acting Medical Director Applied Tumor Biology at Heidelberg University. We discuss the thought process followed by the hurdles faced in trying to get a Lynch Syndrome vaccine, through the phases, to potentially the proverbial bedside. We discussed collaboration with the NCI in bringing this and other projects to market. We also talk about the European Hereditary Tumor Group, whose conference this year is also in Heidelberg. EHTG is a great group, one that has embraced the advocacy community, similar to CGAIGC and InSIGHT.

AliveAndKickn Podcast - Sandra and Javier Corrales

AliveandKick'n the podcast

I sit down with Sandra and Javier Corrales, who share their Lynch Syndrome story. Javier has been open with his diagnosis so his family can be proactive in their care. Sandra, who has a history of cancer in her family as well, has been the teammate in this process every step of the way. With the Lynch Syndrome diagnosis, they now see a path forward. They share how they deal with family, including the kids, and having age-appropriate conversations. Besides participating in AliveAndKickn's Living with Lynch annual program, they coordinated a community...

AliveAndKickn Podcast - Dr Jen Hartstein

AliveandKick'n the podcast

I sit down with Dr Jen Hartstein, lynch syndrome previvor and clinical psychologist in New York City. We both hope that others can take away something from us that helps them with their day and daily lives. She also has a media career talking about life, mental health and her own company working with companies to help them identify and work with neurodiverse populations. How do we discuss all of the stuff being thrown at us during these trying times? How do we remain informed without being overwhelmed? Finding communities and not getting stuck in our own heads may...

AliveAndKickn Podcast - Junius Nottingham Jr

AliveandKick'n the podcast

I sit down with Junius Nottingham Jr, founder of JNottGTT, a non-profit for Lynch Syndrome awareness. Junius tells the story of his son Jeremy, who was a secret service agent and so much more, who passed at age 30. Junius discovers his own colon cancer after his son's diagnosis, but it was found early, and he was ok just after surgery. As a parent, I feel that level of guilt and responsibility, and I applaud Junius for staying in this, and using his platform to help others. Junius reminds us that it's ok not to be ok, and thanks God for keeping him going, even when...

AliveAndKickn Podcast - Dr William Oh

AliveandKick'n the podcast

I sit down with Dr William Oh, newly appointed Precision Medicine Director at Yale Cancer Center. Dr Oh is a Medical Oncologist who has focused mainly on Genitourinary cancers, so we of course talk about prostates. We discuss high risk populations and of course finding cancer early, knowing family histories and decision making about having surgery.

AliveAndKickn Podcast - Dr Mohammad Ali Abbass

AliveandKick'n the podcast

I sat down with MSK's colorectal surgeon Dr. Mohammad Ali Abbass just before CGAIGC, the Collaborative Group of the Americas on Inherited GI Cancers. At CGA, Dr Abbass moderated a discussion around colon resection for Lynch Syndrome patents. Dr Abbass and I also discussed a study around the outcome of surgical decisionmaking for those who have had germline testing before surgery vs those that have not. Of course we talk aspirin, vaccines and exercise and our lives in the "Lynch Syndrome bubble" and while some changes have been glacial, others have moved forward more...

AliiveAndKickn Podcast - Cathy Nobil-Dutton

AliveandKick'n the podcast

From a warm summer day, I sat down with Cathy Nobil-Dutton, lynch syndrome survivor, wellness coach and more. Cathy is the only person I've met who had almost melanoma, sort of. Our conversation is all over the place, as it should be when discussing living with lynch syndrome. Wouldn't have it any other way.

AliveAndKickn Podcast - Dr. Patrick Soon-Shiong

AliveandKick'n the podcast

I sit down with Dr. Patrick Soon-Shiong, Executive Chairman and Global Chief Medical and Scientific Officer for Immunity Bio, and we talk everything cancer vaccines scientifically, including the potential Lynch Syndrome vaccine. A new term is announced on our podcast, Tumor Educated Lymphocytes. Dr Soon-Shiong, succinctly summarized a very complicated vaccine space, which will be important as more patients enroll in trials and learn about their genetics.

AliveAndKickn Podcast - Diane Hardesty

AliveandKick'n the podcast

I sit down with a reluctant guest, Diane Hardesty finally, Lynch Syndrome patient, speaker and a self-proclaimed Valley Girl. Before Diane's genetic testing results, 10 people in her family had passed away from cancer. Diane's son did not inherit her mutation so it ends with her. Diane is still a previvor, as she has not had cancer, but not for a lack of looking. Diane's sister has had cancer 18 times and she is still with us. How can she NOT do this? - is Diane's mantra when asked how she can talk about Lynch Syndrome when so many have been affected.

AliveAndKickn Podcast - Robin Centner APRN, CNM, MSN

AliveandKick'n the podcast

I sit down with Robin Centner, Lynch Syndrome survivor, who talks about how she had a conversation with Dr Henry Lynch himself, her family history, and how she made it her mission to take of her family and make sure they had all the information they needed to take care of their health. Robin feels fortunate to be able to do what she does in her home state of Kentucky and beyond.

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