Tell Us About Rett Syndrome
Let's Talk: Conversations with The Arc of NJ Family Institute
Release Date: 01/07/2022
Let's Talk: Conversations with The Arc of NJ Family Institute
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This episode features a conversation about Down Syndrome with Dr. Melissa Burgos, President of the Down Syndrome Association of Central New Jersey.
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This episode features a conversation about Prader-Willi Syndrome (PWS) and the different resources available for families who have a child with PWS. We were joined by Paige Rivard, CEO of the Prader-Willi Syndrome Association of the United States (PWSA-USA), and Dorothea Lantz, PWSA-USA's Community Engagement Specialist.
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info_outlineThis episode features a conversation with Gerard and Judy Saydah, board members of the New Jersey Rett Syndrome Association and members of the advisory board of the Program for Research and Support for Rett Syndrome at Monmouth University.