ATE - Ep. 38 - w/ Sharon Meyers (Part 2) - Get to Know the Expert
Ask The Expert Presents Hemophilia on Balance
Release Date: 04/30/2020
The Rare Factor – Deficiencies & Re-Balancing Strategies
Ask The Expert Presents Hemophilia on Balance
Join host Amy Board as we continue to dive into the evolving world of bleeding disorder treatments. This episode of Ask the Expert explores how emerging therapies—like rebalancing and non-factor agents—are tested, monitored, and kept safe. With insights from Drs. Mark Redding, Janice Stabler, and Tammy Singleton, we break down the complexities of dosing, breakthrough bleeds, and surgical planning, showing why safety checks and open communication with your care team are more critical than ever. Learn how these therapies fine-tune the clotting system without replacing missing factors and why...
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Women and Clotting - What You Need to Know
Ask The Expert Presents Hemophilia on Balance
In this episode of Ask the Expert, we focus on women with bleeding disorders — a group that has historically been overlooked in research and clinical care. Heavy menstrual bleeding, mild and moderate hemophilia, and von Willebrand disease have often gone underdiagnosed or mischaracterized, leaving many women without the care they need. Amy Board sits down with leading hematology experts to discuss emerging therapies, including replacement and rebalancing agents, the science behind how they work, and why representation in clinical trials matters. We also explore the challenges women face in...
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Inhibitors & Rares & Re-Balancing Explained
Ask The Expert Presents Hemophilia on Balance
This week on Ask The Expert, the script is being flipped for patients with inhibitors and rare factor deficiencies! For years, treatment options were scarce—or even nonexistent. Now, rebalancing agents are changing the game, restoring clotting balance without relying on replacement factors. Amy is joined by Dr. Ben Samuelson Jones, Dr. Tammy Singleton, Dr. Patrick Ellsworth, and Dr. Mark Redding as they take listeners on a journey through how these groundbreaking therapies are bringing new hope to people with hemophilia B, inhibitors, and ultra-rare bleeding disorders. From inhibitors to...
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Quick Recap! Your Clotting Cheat Sheet
Ask The Expert Presents Hemophilia on Balance
Rev your engines and put the pedal to the metal on a wild ride through the clotting cascade! Amy Board and a pit crew of medical experts take you on an uproarious recap journey through the first six episodes, using engines, dominoes, and treasure maps to drive their points home. But hold onto your helmets—there's fresh and exciting science just around the corner. It's a thrill ride through bleeding disorder mysteries—whether you're an old pro or new on the scene, this recap episode is the perfect pit stop before the high-speed chase into new discoveries. Presenting Sponsor: Presented...
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Fixing the Scales - How Re-Balancing Agents Work
Ask The Expert Presents Hemophilia on Balance
In this episode of Ask the Experts, host Amy Board breaks down one of the most exciting developments in bleeding disorders treatment — rebalancing agents. Think of your body’s clotting system like a seesaw: when everything’s working right, it’s balanced. But in bleeding disorders, the scale tips. Instead of adding what’s missing (like clotting factors), rebalancing agents work by removing what’s getting in the way — helping to restore that balance in a totally new way. Amy is joined by Dr. Ben Samuelson Jones, Dr. Patrick Ellsworth, and Dr. Tami Singleton for a deep dive into how...
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Hemostasis and Current Treatments
Ask The Expert Presents Hemophilia on Balance
In this episode, Amy trades medical jargon for construction metaphors as she takes us on a journey through hemostasis, the body’s natural way of stopping a bleed. But what happens when the repair crew is understaffed—or missing entirely? That’s where factor replacement therapy comes in. Amy and our experts explain how it works, why timing matters, and how it helps people with bleeding disorders live safer, fuller lives. Whether you're new to the community or a longtime listener, you'll walk away with a better understanding of how the body works—and why treatment makes such a big...
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Pump the Brakes! – How Anti-Coagulation Works
Ask The Expert Presents Hemophilia on Balance
On this exciting episode of Ask the Expert, join Amy as we delve into the fascinating world of blood clotting and anticoagulant therapy. We'll explore the clotting process with fun and relatable party analogies, featuring expert insights from Dr. Ben and Dr. Patrick. Discover how vital components like Protein C, Protein S, antithrombin, and TFPI work together to maintain the body's delicate clotting balance, and learn about the latest advancements in hemophilia treatment in this engaging and educational deep dive! Presenting Sponsor: Presented by #MyHemophiliaTruth. Real stories. Powered by...
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The Big Three – Factor 8 + Factor 9 = Thrombin
Ask The Expert Presents Hemophilia on Balance
Dive into the crucial roles of Factor VIII, Factor IX, and thrombin in the blood clotting process. Hosts Amy and Patrick introduce expert Dr. Benjamin J. Samelson-Jones to discuss the interplay between these factors, including how they activate each other and form clots. Featuring insights from Dr. Mark Reding on the myriad functions of thrombin, this episode breaks down complex biochemical processes into easily digestible information for all listeners. Perfect for anyone looking to understand hemostasis and thrombosis better. Presenting Sponsor: Presented by Show Notes: Ask the...
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Striking the Right Balance – Why Does it Matter in Hemophilia Treatment?
Ask The Expert Presents Hemophilia on Balance
This episode of "Ask the Expert" titled "Striking the Right Balance – Why Does it Matter in Hemophilia Treatment?" delves into the concept of rebalancing in hemophilia treatment. Hosted by Amy Bord, the episode features expert insights from Dr. Ben Samuelson Jones, Dr. Patrick Ellsworth, and Dr. Mark Redding. They explain how hemophilia treatments can go beyond merely replacing missing clotting factors by using rebalancing agents that adjust anticoagulant proteins. The conversation emphasizes the importance of understanding the delicate balance between bleeding and clotting in the body, why...
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How Does Your Blood Clot?–The Clotting Cascade Explained
Ask The Expert Presents Hemophilia on Balance
In this episode of 'Ask the Expert,' host Amy Board dives into the clotting cascade and explains how our blood clots. Alongside experts Dr. Ben Samuelson Jones, Dr. Amy Dunn, Dr. Mark Redding, and Dr. Patrick Ellsworth, Amy unpacks the complexity of the hemostatic system, discusses new treatments for hemophilia, and explores both the clotting and regulating parts of this vital bodily function. Tune in to understand how the clotting system works and the exciting potential of new therapies in the field. Presenting Sponsor: Presented by Show Notes: Ask the Expert is produced by , and is...
info_outlineJoin us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO of Hemophilia Federation of America (HFA), Sharon Meyers, as she begins her tenure at the organization. Sharon shares how she became involved in non-profit work, her passion and philosophy on fundraising, and how she became involved within the bleeding disorder community! Join us to hear more about Sharon’s personal journey and what makes her tick! A fun episode of Ask the Expert!
Welcome to Episode 38 - or our Get to Know the Expert Episode - of the Ask The Expert Podcast!
Check out the terrific resources from the Hemophilia Federation of America in the midst of COVID-19 outbreak:
Hemophilia Federation of America: https://www.hemophiliafed.org/
HFA COVID-19 Resources Page: https://www.hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/
HFA COVID-19 Relief Fund: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/covid-19-relief-fund/
HFA Helping Hands Financial Assistance Program: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/helping-hands-emergency-assistance/
NHF Informational Webinars during COVID Crisis: https://www.hemophilia.org/