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There But Not There

Caregiving For Dementia

Release Date: 07/08/2019

27 Months Without Mommy show art 27 Months Without Mommy

Caregiving For Dementia

This is just an update of the family. 27 Months after losing Mommy!

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Life After Caregiving Part 2 show art Life After Caregiving Part 2

Caregiving For Dementia

This Episode is a continuation of what went on after Mommy was picked up.

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Life After Care Giving show art Life After Care Giving

Caregiving For Dementia

This is the first of a few episodes that goes through what you may feel right immediately after your loved one passes away. There's not a whole lot of show notes of these episodes it's just me talking about what happened immediately after mommy's death. What I thought would happen that didn't and that kind of thing. I hope these few episodes help you get along for a few months immediately following your loved one's death.

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A Happy Thanksgiving Message show art A Happy Thanksgiving Message

Caregiving For Dementia

This episode is a brief message to all those who are still downloading the podcast happy Thanksgiving to all

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Caregiving journey ended show art Caregiving journey ended

Caregiving For Dementia

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The hardest talk a family can never have. show art The hardest talk a family can never have.

Caregiving For Dementia

Episode # 93 There comes a time in caregivers journey that they know time is very close to running out. We hear caregiving for dementia have realized that fact. The past five days Mama has not eat anything at all, the past four days Mama has not drank anything, and for the past three days Mama’s been very hard to wake up at all. When she is awake it’s about two minutes and she’s right back out. Mamas, breathing has also changed its no longer normal breathing. Doesn’t look the same, doesn’t sound the same as the normal breathing does Mama breeze through her mouth...

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Things we take for granted as Caregivers show art Things we take for granted as Caregivers

Caregiving For Dementia

Episode #92 Show Notes There are so many things in life that normal people take for granted. This becomes more apparent the longer you take care of your loved one. There are things that I take for granted because there things that come natural to me that Mama can no longer do for herself. Mama can no longer wash her face, brush her hair, brush her teeth, or even talk. Mama tries so hard to talk to us and you can see the frustration in her face as she tries to say something and can’t. Mama tries to hold a cup of something to drink and because of her Parkinson’s she...

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Caregiving Mistakes,Regrets show art Caregiving Mistakes,Regrets

Caregiving For Dementia

In your caregiving a lot of times you do things in the heat of the moment. After time goes by you wonder whether or not what you did was the right thing to do.

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Caregiving Mistakes/Regrets show art Caregiving Mistakes/Regrets

Caregiving For Dementia

Episode #91 Show Notes In your caregiving a lot of times you do things in the heat of the moment. After time goes by you wonder whether or not what you did was the right thing to do. A lot of caregivers won’t tell you everything that they go through in their caregiving. I am one of those people who won’t tell you every little thing that goes on in in the house with the caregiving I am one that won’t tell you what Mama has done to us I won’t tell you what we’ve done to Mama. What I tried to do in this podcast is tell you what we do and what we don’t do because...

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Know It All Doctors show art Know It All Doctors

Caregiving For Dementia

While in your caregiving journey there will be a lot of things that happened that you don’t understand. I know when not when we first started there was a whole lot that went on that we didn’t understand there’s a whole lot that I haven’t gone into with this podcast that went on when Mama first got dementia. That’s one reason why I started this podcast

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More Episodes

Episode # 88

There are times when mama just seems to be staring out into
space. There are times when mama doesn’t look at you but she looks through you.
She doesn’t realize there’s anything going on around her.

Over the Fourth of July weekend mamas great-granddaughter
come to see her. Not mama seem to be fixated on the granddaughter but I’m not
sure whether she realized it was her granddaughter or if she just realized that
somebody different was in the house.

Mama was not afraid of the granddaughter because she did
allow the granddaughter to feed her some food, she did talk to the
granddaughter, she did hold the granddaughter’s hand. Which I believe told us
that mama was not afraid of the granddaughter.

Mama was never one for the fireworks even before she got
dementia now she would take us kids to see the fireworks are let us kids have
fireworks at the house for the Fourth of July especially sparklers but that was
back before the government said you couldn’t have a said the fireworks were
dangerous. So mama didn’t even acknowledge the fact that the fireworks were on
the TV this year the didn’t seem too upset her at all she didn’t react to them
at all and didn’t seem to anyway.

When mama first got her dementia I would always tell her that
I love her I still do that today but I used to get on I love you too or a me
too however I am no longer getting tighter those all I’m getting now is oh
okay. There are times when I don’t even get that all I get is the blank stare.

I understand that this dementia will eventually take
everything away from mama. I’m wondering if this blank stare into space is part
of the dementia taking everything away from mama. It’s a stare of almost
looking through you instead of at you.

When mama broke her hip the insurance company sent in some
therapist in nurses and stuff and one of the therapists worked with mom’s legs
and showed Stephanie and I how to do some exercises with mom’s legs and mama
reacts to those exercises especially the lake that has the broken hip. Now I
don’t think the exercises are actually hurting the hip however I do believe
that they are making mama a little more uncomfortable because of mama’s
reaction.

I do believe that the blank stares or the stare into space is
happening a little more frequent it last a little longer and it takes a little
bit more to get a reaction out of mama than normal. However fortunately it
doesn’t seem to last very long once we start moving mama around a little bed
once we start talking to mom once we start Robin mama’s back mama comes to her
self for lack of a better description.

I have not been able to pinpoint any trickier that causes
this blank stare. The stare is just there at any time and I have not been able
to figure out anything that’s causing it nothing that mama does nothing that’s
on the TV nothing that we do here to house so I’m not sure where the stare
comes from it just appears out of nowhere for no reason.