Patrick’s Surgery and Ed Rogoff’s book
BloodStream
Edward Rogoff, Blood Brother, NY chapter board member, and author of Scary Diagnosis, joins us on today’s BloodStream. We hear the powerful stories behind community tattoos and get an update from PJL on his ankle surgery and recovery. This episode is full of resilience, creativity, and the strength we find in unexpected places. Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: Connect with BloodStream Media:
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Gene Therapy Around the World
BloodStream
Do you ever wonder who’s actually getting gene therapy around the world? So have we! Dr. Hank Greely from Stanford and Simon Fletcher, a nurse and PhD Candidate from Oxford, break it down in a way that’s eye-opening and real. Then stick around for Dr. Radek Kaczmarek’s update on the latest game-changing research. Two fascinating chats, one episode, this is BloodStream you don’t want to miss! Presenting Sponsor: Takeda, visit to learn more. It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B...
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Actress Sami Rappoport’s short film, VIII. Plus Jeff & Barb with Dr. Joanna Davis
BloodStream
What do a heartfelt short film, a Hollywood actress, and a powerful community story all have in common? This week’s BloodStream Podcast. Actress Sami Rappoport shares how her grandfather’s life with hemophilia inspired her latest project, and Dr. Joanna Davis sits down with Barb Forss and Jeffrey Moualim for a conversation you won’t want to miss. Jeffrey Moualim, Barbara Forss and Joanna Davis, M.D., discussion is in conjunction with / Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: Connect with BloodStream Media:
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Bleeding Disorders Conference preview with NBDF’s Phil Gattone
BloodStream
Phil Gattone joins the latest BloodStream Podcast to preview NBDF’s upcoming Bleeding Disorders Conference, coming mid-August. Plus, Amy and Patrick take a trip down camp memory lane, sharing summer stories from their days at hemophilia camp. Tune in for a mix of updates and nostalgia. Presenting Sponsor: Takeda, visit to learn more. Segment is brought to you by Genentech: Visit to watch the short film. Show Notes: Subscribe: Connect with BloodStream Media:
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Hemophiliac of Love with Max Feinstein (!!)
BloodStream
Our bud, Max Feinstein, is back with us to share the outcome of his elbow surgery and he surprises us with a cover of Hemophiliac of Love (!!). Plus, the most pressing question when it comes to gene therapy for hemophilia B: How long does it last? Hanna does a deep dive into that very question with guest, Dr. Andrew Davidoff. Presenting Sponsor: Takeda, visit to learn more. It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit or download B SUPPORT wherever you get your apps for more...
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Type 3 vWD, growing up and out with Rick Lindfors
BloodStream
Rick Lindfors is cool. He lives with Type 3 von Willebrand and is in the Minnesota Search and Rescue Dog Association. He sits down with Patrick to chat about how he saw it as an opportunity to give back to his younger self, who, for a time, didn't have anyone coming to rescue them. Listen in to his inspiring story - only on BloodStream! Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: Connect with BloodStream Media:
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Dr. Erik Berntorp (the best-kept secret in vWD) and cancer podcasting legend, Matthew Zachary
BloodStream
Dr. Erik Berntorp (medical doctor, researcher, and professor at Lund University in Sweden) joins us to discuss something special related to von willebrand disease and Matthew Zachary, award-winning Cancer Maverick, Keynote Speaker, and Pioneering Podcaster sits down with Patrick to chat all things advocacy and media! Presenting Sponsor: Takeda, visit to learn more. Show Notes: Subscribe: Connect with BloodStream Media:
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New Treatment Options and Trials
BloodStream
New treatment options are here for the hemophilia community! Learn more in Patrick’s conversation with Craig Benson and our latest Gene therapy segment that focuses on the psychological impact of gene therapy. Plus, we share news about the Genentech and Spark integration. Presenting Sponsor: Takeda, visit to learn more. It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit or download B SUPPORT wherever you get your apps for more information. Segment is brought to you by Genentech:...
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Stop the Bleeding!, a retrospective
BloodStream
Stop the Bleeding! is celebrating 14 seasons of using comedy and entertainment to raise awareness and educate about hemophilia and other bleeding disorders. Join creator, director, and star, Patrick James Lynch, in a retrospective with director and writer Jim Fagan as they reminisce about the show’s characters and conflicts, and how entertainment & digital media was used to engage, educate, and inspire people with chronic conditions. Presenting Sponsor: Takeda, visit to learn more. Watch the trailer for the latest season! AWARDS & HONORS 2018 LA Web Fest - Best...
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Aging with a Bleeding Disorder
BloodStream
Join us for an episode dedicated to aging with hemophilia, with several stories from our community. We hear from Jeffrey Moualim & Barb Forss, and Patrick sits down with Prisilla Oren, while Hanna chats with Walter Justus. It’s a special episode to celebrate the strength of our community. Presenting Sponsor: Takeda, visit to learn more. Segment is brought to you by Genentech: Visit to watch the short film. Show Notes: Subscribe: Connect with BloodStream Media:
info_outlineNatalie and Patrick catchup over Zoom with their mothers, who are working with COVID patients inside Ohio and New York City hospitals, respectively.
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