Are Clinical Trials For Me?
BloodStream
Would you participate in a clinical trial? On the latest episode of BloodStream, Patrick and Amy explore the personal decisions behind research participation. Kevin Finkle joins the I’m Fine segment to share his experience participating in multiple clinical studies and what has shaped his decision to keep getting involved. Later, Benny Sorensen, MD, PhD, CEO of Hemab Therapeutics, offers a look at the role patients play in moving research forward and why asking questions matters. Whether you've participated in research, are considering a study, or have simply wondered, “Are clinical trials...
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Introducing: Movers & Shakers in Rare!
BloodStream
What does it take to create a more connected rare disease community? On the latest episode of BloodStream, Gorana Dasic of Kedrion Biopharma is featured on Movers & Shakers of Rare, and Archit Gupta from Zebra for Care joins Patrick James Lynch and Amy Board to explore the ideas, innovations, and collaborations helping create a more connected experience for patients and families. Archit Gupta from Zebra for Care joins the conversation to discuss a new model for supporting patients and building resources that meet people where they are in their healthcare journey. From advocacy and...
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The Jonathan James episode!
BloodStream
Living with a bleeding disorder can feel isolating, but finding people who truly understand your experience can change everything. On the latest episode of BloodStream, Patrick James Lynch and Amy Board sit down with Jonathan James, founder and CEO of Hope Charities, to explore how connection, community, and shared experiences can make a lasting difference for patients and families. Jonathan shares the story behind Hope Charities, the relationships that inspired its mission, and why creating spaces where people feel seen and supported matters just as much as the programs themselves. Whether...
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Chris Bombardier returns to BloodStream!
BloodStream
Chris Bombardier is back on the podcast! On the latest episode of BloodStream, Chris returns for another Zebra for Care conversation, sharing why awareness, advocacy, and making sure people living with bleeding disorders feel seen and supported matters now more than ever. Patrick James Lynch and Amy Board also reflect on the conversations and connections shaping this year's Bleeding Disorders Conference (BDC), sharing what they hope to learn and bring back to patients and families. In the I'm Fine segment, Carrera Christman opens up about the pressure of always being the strong one and how she...
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Supporting Hemophilia Care Transitions: Insights from a Social Worker
BloodStream
Please see for Full PI #HYMPAVZISponsored Mosi Williams, PsyD, lives with hemophilia and has served in the Bleeding Disorders Community for the past 30 years. He is currently a Licensed Clinical Social Worker for the UCSF Adult Hemophilia Treatment Center. Mosi joins Patrick to explore the evolving treatment landscape and the anxiety that critical moments that shape life with hemophilia—like going back to school, starting a new job, or planning a wedding—can bring, and how they can prompt deeper consideration of a treatment change. We’ll provide...
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Hemophilia B and Telemedicine with Zebra For Care!
BloodStream
Could new research change the way hemophilia B carriers are cared for during pregnancy? On this episode of BloodStream, Patrick and Amy explore emerging research that challenges long-held assumptions about factor IX levels during pregnancy and what it could mean for patients and providers. Nathan Mermilliod shares his experience living with hemophilia B, and Dr. Steven Fein discusses the evolving landscape of telemedicine in partnership with Zebra for Care. From new discoveries to lived experiences, this episode highlights the stories and science moving the bleeding disorders community...
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Navigating the Hemophilia Journey: A Conversation with Dr. Singleton and Peter Fischer
BloodStream
Please see for Full PI On this episode of BloodStream, Patrick facilitates a conversation between Peter, who is living with hemophilia A, and Dr. Tammuella Chrisentery-Singleton, a board-certified hematologist and Chief Science Officer (CSO) for The American Thrombosis and Hemostasis Network (ATHN), to explore the shared decision-making process and why it matters. We’ll provide listeners with the latest on HYMPAVZI (marstacimab-hncq) and highlight the value of shared decision-making. HYMPAVZI may cause serious side effects, including blood clots (thromboembolic events). HYMPAVZI may...
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Another Barb & Jeff Interview with Gary McLain
BloodStream
On the latest episode of BloodStream, Patrick sits down with Cassie Miller, a parent raising two daughters with von Willebrand disease. Together, they talk about staying solution-focused, trusting your instincts, and advocating when the path forward isn't clear. Jeff and Barb return to the podcast with therapist Gary McClain for a thoughtful conversation about the emotional side of living with a rare disease, exploring resilience, difficult emotions, and how we support ourselves and one another. Show Notes: LevelsMatter.com Presenting Sponsor: Takeda, visit to learn more. I’m...
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How the Patient Perspective Led to a Hemophilia Medical Breakthrough
BloodStream
Please see for Full PI. #HYMPAVZISponsored William S. Somers, Ph.D., was a biotherapeutics research and development leader with more than 30 years of experience across biotechnology and pharmaceutical organizations, including Pfizer. As a scientist living with hemophilia, Dr. Somers played a key role in driving the patient-centric and purposeful design of HYMPAVZI (marstacimab-hncq). This episode will explore how the patient perspective influenced the scientific journey, with a special focus on Will’s research and why it was personally important for him to bring HYMPAVZI to people with...
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FLOW Podcast Has a New Look!
BloodStream
On the latest episode of BloodStream, Patrick and Amy introduce rebrand, preview our upcoming Hemophilia B series with , and share the latest hot tips for sending your kids to camp. Listen now and subscribe to wherever you get your podcasts so you do not miss what is coming next. Show Notes: Presenting Sponsor: Takeda, visit to learn more. Subscribe: Connect with BloodStream Media:
info_outlineThis episode of the Bloodstream Podcast continues the Blood Brother Collaboration, featuring candid conversations among men living with bleeding disorders. Guests share personal stories of resilience, complicated grief, and the importance of community support. The discussion highlights the unique challenges faced across the lifespan, from childhood through aging, and emphasizes the value of open dialogue and mental health awareness. Listeners are encouraged to connect, share, and support one another through the Blood Brotherhood program and broader community resources.
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
Show Notes:
To meet members of the community and to hear more about their hemophilia A journey, head
to www.hemophiliacommunity.com
Subscribe:
Connect with BloodStream Media: