Hemophilia B and Telemedicine with Zebra For Care!
BloodStream
Could new research change the way hemophilia B carriers are cared for during pregnancy? On this episode of BloodStream, Patrick and Amy explore emerging research that challenges long-held assumptions about factor IX levels during pregnancy and what it could mean for patients and providers. Nathan Mermilliod shares his experience living with hemophilia B, and Dr. Steven Fein discusses the evolving landscape of telemedicine in partnership with Zebra for Care. From new discoveries to lived experiences, this episode highlights the stories and science moving the bleeding disorders community...
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Navigating the Hemophilia Journey: A Conversation with Dr. Singleton and Peter Fischer
BloodStream
Please see for Full PI On this episode of BloodStream, Patrick facilitates a conversation between Peter, who is living with hemophilia A, and Dr. Tammuella Chrisentery-Singleton, a board-certified hematologist and Chief Science Officer (CSO) for The American Thrombosis and Hemostasis Network (ATHN), to explore the shared decision-making process and why it matters. We’ll provide listeners with the latest on HYMPAVZI (marstacimab-hncq) and highlight the value of shared decision-making. HYMPAVZI may cause serious side effects, including blood clots (thromboembolic events). HYMPAVZI may...
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Another Barb & Jeff Interview with Gary McLain
BloodStream
On the latest episode of BloodStream, Patrick sits down with Cassie Miller, a parent raising two daughters with von Willebrand disease. Together, they talk about staying solution-focused, trusting your instincts, and advocating when the path forward isn't clear. Jeff and Barb return to the podcast with therapist Gary McClain for a thoughtful conversation about the emotional side of living with a rare disease, exploring resilience, difficult emotions, and how we support ourselves and one another. Show Notes: LevelsMatter.com Presenting Sponsor: Takeda, visit to learn more. I’m...
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How the Patient Perspective Led to a Hemophilia Medical Breakthrough
BloodStream
Please see for Full PI. #HYMPAVZISponsored William S. Somers, Ph.D., was a biotherapeutics research and development leader with more than 30 years of experience across biotechnology and pharmaceutical organizations, including Pfizer. As a scientist living with hemophilia, Dr. Somers played a key role in driving the patient-centric and purposeful design of HYMPAVZI (marstacimab-hncq). This episode will explore how the patient perspective influenced the scientific journey, with a special focus on Will’s research and why it was personally important for him to bring HYMPAVZI to people with...
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FLOW Podcast Has a New Look!
BloodStream
On the latest episode of BloodStream, Patrick and Amy introduce rebrand, preview our upcoming Hemophilia B series with , and share the latest hot tips for sending your kids to camp. Listen now and subscribe to wherever you get your podcasts so you do not miss what is coming next. Show Notes: Presenting Sponsor: Takeda, visit to learn more. Subscribe: Connect with BloodStream Media:
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A candid convo with HTC nurse practitioner, Joe Stanco
BloodStream
The FED UP Act is headed to Congress and could reshape how women and girls with bleeding disorders are diagnosed, treated, and supported! On the latest episode of BloodStream, Amy and Patrick sit down with Joe Stanco, HTC Family Nurse Practitioner and founder of the Hemostasis and Thrombosis Nursing Association, for a candid conversation about today’s hemophilia care landscape and where it is headed next. We also unpack what this bipartisan legislation could mean for access, research, education, and equity in care. In this week’s I’m Fine segment, we explore the emotional weight of...
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Climbing the Seven Summits to raise awareness?!
BloodStream
What does it look like to raise awareness from the top of the world? On the latest episode of BloodStream, Maia Meier joins our beloved hosts, Patrick and Amy, to talk about her mission to climb the Seven Summits through Project Elevate Her and bring visibility to women and girls living with bleeding disorders. From high-altitude expeditions to the everyday realities of advocacy, the conversation explores what it means to take up space in places where women with bleeding disorders have too often gone unseen. Listen now and subscribe to BloodStream Podcast wherever you get your shows. ...
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Lived experience across generations of bleeding disorders
BloodStream
On the latest episode of BloodStream, we look at what is really underneath the words “I’m fine” and who it is serving to keep things that way. In I’m Fine, a family story across generations with bleeding disorders traces what has changed, what has not, and how honesty can begin to break cycles of silence that have long been passed down. What emerges is a closer look at resilience, inheritance, and the stories we are taught to minimize. We close out our plasma donation mini-series with donor Carver, highlighting the people behind every donation and the quiet consistency that keeps...
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Plasma donors, RARE BLOOD, and advocacy wins
BloodStream
On this episode of BloodStream—our plasma donation series continues with a powerful second installment featuring donor Hannah and the story behind what it really means to give. We’ve also got a packed lineup: a look at momentum building at the WFH World Congress, policy progress led by State Senator Joseph Addabbo supporting families with rare disorders, and new momentum in storytelling as Sanofi backs additional documentaries spotlighting rare blood conditions. Plus, we dig into the bigger picture—how bleeding disorders impact entire families, the role creativity plays when navigating...
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What happened to HEMGENIX!? An update on gene therapy.
BloodStream
CSL Behring just announced a global “stockout” of Hemgenix—what’s happening, and what does it mean for patients? On this episode of BloodStream Podcast, we break down the news, launch our mini-series on plasma donation, and hear from Thomas Savage in our I’m Fine segment, sharing the highs, the lows, and the reality of living with a severe bleeding disorder. Pain, perseverance, and the lessons learned along the way give a rare, unfiltered glimpse into life behind the headlines—reminding us all that every treatment, every donation, and every day matters. Show Notes: I’m Fine...
info_outlineOn this episode of BloodStream, Cheri Clark opens up about juggling life as a nurse, patient, caregiver, and board member, all while managing her own health. She shares the pressure of always saying “I’m fine,” the moments she’s pushed past her limits, and the lessons she’s learning about setting boundaries that actually stick. We also hear from Nicole Angeles, reflecting on her second pregnancy with vWD—a very different experience than her first.
Together, their stories offer honest, grounded insights into balancing responsibilities, navigating health challenges, and finding your footing when life keeps shifting.
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
I’m Fine is presented by @SanofiUS
#bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy
Show Notes:
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