Libsyn Directory

Psychosocial support and bye bye, BioMarin

Release Date: 03/13/2026

BloodStream

On the next episode of BloodStream, we’re asking two big questions: who gets missed, and what happens when the story you’ve been living starts to change? Ranvitha Chirumamilla joins us to explore how her own experience with iron-deficiency anemia sparked an interest in women with bleeding disorders and a bigger question: when factor levels don’t raise enough concern, who might be getting missed? And our blood brother Reid Morgan is back for I’m Fine! A handful of years after sharing his story with us publicly for the first time, Reid reflects on what “I’m fine” has meant to him...

Tim Stowers makes history & PDSA CEO Caroline Kruse!

BloodStream

What does it take to make history? And what does it mean to make sure a community’s story gets heard? On the latest episode of BloodStream, we’re diving into both. Tim Stowers, fellow blood brother and history-making Channel swimmer, joins our hosts with his sister Vanessa and nephew Elias to share the story behind his incredible open-water swim. Then, in honor of ITP Awareness Month, Caroline Kruse, CEO & President of the Platelet Disorders Support Association, joins us to talk about ITP, the platelet disorders community, and the stories that deserve a bigger spotlight. Show Notes: ...

Are Clinical Trials For Me?

BloodStream

Would you participate in a clinical trial? On the latest episode of BloodStream, Patrick and Amy explore the personal decisions behind research participation. Kevin Finkle joins the I’m Fine segment to share his experience participating in multiple clinical studies and what has shaped his decision to keep getting involved. Later, Benny Sorensen, MD, PhD, CEO of Hemab Therapeutics, offers a look at the role patients play in moving research forward and why asking questions matters. Whether you've participated in research, are considering a study, or have simply wondered, “Are clinical trials...

Introducing: Movers & Shakers in Rare!

BloodStream

What does it take to create a more connected rare disease community? On the latest episode of BloodStream, Gorana Dasic of Kedrion Biopharma is featured on Movers & Shakers of Rare, and Archit Gupta from Zebra for Care joins Patrick James Lynch and Amy Board to explore the ideas, innovations, and collaborations helping create a more connected experience for patients and families. Archit Gupta from Zebra for Care joins the conversation to discuss a new model for supporting patients and building resources that meet people where they are in their healthcare journey. From advocacy and...

The Jonathan James episode!

BloodStream

Living with a bleeding disorder can feel isolating, but finding people who truly understand your experience can change everything. On the latest episode of BloodStream, Patrick James Lynch and Amy Board sit down with Jonathan James, founder and CEO of Hope Charities, to explore how connection, community, and shared experiences can make a lasting difference for patients and families. Jonathan shares the story behind Hope Charities, the relationships that inspired its mission, and why creating spaces where people feel seen and supported matters just as much as the programs themselves. Whether...

Chris Bombardier returns to BloodStream!

BloodStream

Chris Bombardier is back on the podcast! On the latest episode of BloodStream, Chris returns for another Zebra for Care conversation, sharing why awareness, advocacy, and making sure people living with bleeding disorders feel seen and supported matters now more than ever. Patrick James Lynch and Amy Board also reflect on the conversations and connections shaping this year's Bleeding Disorders Conference (BDC), sharing what they hope to learn and bring back to patients and families. In the I'm Fine segment, Carrera Christman opens up about the pressure of always being the strong one and how she...

Supporting Hemophilia Care Transitions: Insights from a Social Worker

BloodStream

Please see for Full PI #HYMPAVZISponsored Mosi Williams, PsyD, lives with hemophilia and has served in the Bleeding Disorders Community for the past 30 years. He is currently a Licensed Clinical Social Worker for the UCSF Adult Hemophilia Treatment Center. Mosi joins Patrick to explore the evolving treatment landscape and the anxiety that critical moments that shape life with hemophilia—like going back to school, starting a new job, or planning a wedding—can bring, and how they can prompt deeper consideration of a treatment change. We’ll provide...

Hemophilia B and Telemedicine with Zebra For Care!

BloodStream

Could new research change the way hemophilia B carriers are cared for during pregnancy? On this episode of BloodStream, Patrick and Amy explore emerging research that challenges long-held assumptions about factor IX levels during pregnancy and what it could mean for patients and providers. Nathan Mermilliod shares his experience living with hemophilia B, and Dr. Steven Fein discusses the evolving landscape of telemedicine in partnership with Zebra for Care. From new discoveries to lived experiences, this episode highlights the stories and science moving the bleeding disorders community...

Navigating the Hemophilia Journey: A Conversation with Dr. Singleton and Peter Fischer

BloodStream

Please see for Full PI On this episode of BloodStream, Patrick facilitates a conversation between Peter, who is living with hemophilia A, and Dr. Tammuella Chrisentery-Singleton, a board-certified hematologist and Chief Science Officer (CSO) for The American Thrombosis and Hemostasis Network (ATHN), to explore the shared decision-making process and why it matters. We’ll provide listeners with the latest on HYMPAVZI (marstacimab-hncq) and highlight the value of shared decision-making. HYMPAVZI may cause serious side effects, including blood clots (thromboembolic events). HYMPAVZI may...

Another Barb & Jeff Interview with Gary McLain

BloodStream

On the latest episode of BloodStream, Patrick sits down with Cassie Miller, a parent raising two daughters with von Willebrand disease. Together, they talk about staying solution-focused, trusting your instincts, and advocating when the path forward isn't clear. Jeff and Barb return to the podcast with therapist Gary McClain for a thoughtful conversation about the emotional side of living with a rare disease, exploring resilience, difficult emotions, and how we support ourselves and one another. Show Notes: LevelsMatter.com Presenting Sponsor: Takeda, visit to learn more. I’m...

More Episodes

Bleeding disorders aren’t just medical conditions — they’re lived experiences shaped by resilience, community, and support. On this episode of BloodStream Podcast, Patrick James Lynch sits down with the WFH working group to explore why psychosocial care matters just as much as medicine and how human connections help people thrive.

Rocky Williams joins to share the power of positivity and what it truly means to be more than “fine,” inspiring the bleeding disorders community to dream bigger, aim higher, and embrace life fully. We also break down a major shift in gene therapy: BioMarin’s decision to pull Roctavian from the market, what it means for patients, and why preserving critical clinical data is essential for ongoing research and safety.

Tune in for a conversation that blends science, mindset, and community — because living with bleeding disorders is about more than treatments, it’s about life itself.