Hemophilia Camp and Beyond
B's in a Pod
In this episode, Becky chats with HTC nurse practitioner and camp supervisor, Tracey Gaslin, about getting the most from an HTC visit, Tracey’s experience as a health care provider in clinics and camps, and the impact that camp has on the hemophilia community.
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Advances in Treatment
B's in a Pod
Becky sits down with Dr Patrick Fogarty, a medical affairs colleague from Pfizer, to discuss advances in modern hemophilia treatment. Together, they talk about how far hemophilia treatment has come, the challenges in making advances in treatment, and what may be coming down the line as hemophilia management continues to evolve. The 2 also chat about the importance of involving the patient in a discussion about their treatment.
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Women With Hemophilia: A Physician’s Perspective
B's in a Pod
In this episode, hematologist Dr Robert Sidonio visits with Becky to talk about a topic of mutual interest: women with bleeding disorders. The pair discuss defining different kinds of testing, comprehensive care for women in particular, and much more.
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Adventure Education and the Hemophilia Community
B's in a Pod
Pat Torrey from GutMonkey chats with Becky about adventure education, the types of programs available, the lessons he has helped impart on attendees, and what the hemophilia community has taught him in this episode. Becky also contributes the changes that she has seen in the community from the adventure programs. Disclosure: Pfizer sponsors GutMonkey’s Leading Edge program.
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Hemophilia in Children and Teens
B's in a Pod
Pediatric hematologist Dr Stacy Croteau chats with Becky about hemophilia care in early childhood, helping caregivers and their children with hemophilia transition to independence, and how pediatric care for hemophilia has evolved and continues to do so.
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Mental Health and Hemophilia
B's in a Pod
Becky chats with former HTC social worker Ed Kuebler about the importance of mental and emotional health. The pair talk about how hemophilia has changed over the years that Ed has been in the community, how care changes as people with hemophilia move through life stages, and what it means to “share your burden.”
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Hemophilia and Physical Therapy
B's in a Pod
Physical therapist, Bruno Steiner, is Becky’s guest, and he shares his experience and expertise in this episode. Bruno chats about using musculoskeletal ultrasound (MSKUS) and other techniques as part of a physical therapy program for people with hemophilia, and Becky contributes with insights from her daughter’s experience with MSKUS.
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The Role of the Social Worker
B's in a Pod
Social Worker Kathaleen Schnur visits with Becky to talk about the role she plays at her Hemophilia Treatment Center (HTC). Kathaleen describes the ways social workers can help families with hemophilia navigate many different aspects of life with a bleeding condition.
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Pain, Depression, and Hemophilia
B's in a Pod
Pfizer employee Dr. Terry Anderson stops by to talk about her research in hemophilia around pain and depression, and shares some of the findings in the recent studies to which she contributed. Becky and Dr. Anderson discuss the perception and management of pain and the role of caregivers in supporting people with hemophilia.
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Events in the Hemophilia Community
B's in a Pod
Guest host Matt sits down with Jill, a caregiver, and Paul and Shelby, who have hemophilia B, to talk about events in the hemophilia community. Recorded on site at The Coalition for Hemophilia B Symposium, the group discusses how their involvement in the community has evolved over the years and what they would recommend for new families who are looking to get involved at local and national events.
info_outlineOur usual host, Becky, passes the mic to her daughter Elizabeth, a person with severe hemophilia, to guest host this episode. Elizabeth, who is studying to be a music therapist, chats with Spencer, a musician and teacher who also has severe hemophilia, about how music can make a difference in the lives of people with hemophilia. The pair talk about using music as a creative outlet, how playing instruments impacts them physically, and what they would recommend to help someone connect to music.