124: Hardeep Phull, MD is an oncologist and patient advocate | Clinical Trials | Immunotherapy
Release Date: 08/10/2024
147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy
Cancer Interviews
When Helinka Carr experienced limited rectal bleeding, because it was limited, she never thought her problem could rise to the level of cancer. She also thought the bleeding might be diverticulitis, which had been suffered by members of her family. However, at the urging of her doctor, she underwent blood tests and a colonoscopy. The latter revealed that she had bowel cancer. Thanks to two surgical procedures, she achieved survivorship but has to wear an ileostomy bag. She tires easily, but had the energy to start a line of ostomy lingerie for bag-wearing women...
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146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment
Cancer Interviews
Guy Nakoa has survived two diagnoses of Stage IV breast cancer. He initially felt a lump in his breast while showering in 2000. Because it wasn’t causing him and because he didn’t think could not get a type of cancer associated with women, I went more than a decade before he chose to have the lump checked out. In 2014, he sought medical attention, he was diagnosed and in 2016, he had the lump removed; but in 2020, the cancer returned. He was hoping it could be removed with chemotherapy and radiation treatment, but over his initial objection, he...
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145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap
Cancer Interviews
Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant. She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young. Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder. That brought on the stem cell transplant, plus chemotherapy and...
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144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA
Cancer Interviews
In 2015, Daniel Garza experienced bloating and difficulty completing a bowel movement. A subsequent digital rectal exam revealed a mass on his sphincter, which led to a diagnosis of anal cancer. A surgical procedure got rid of the cancer, but it also resulted in his losing half of his sphincter and the temporary presence of a fistula, a tear which was like a second anus. He underwent a chemotherapy regimen of 5-fluorouracil, followed by radiation treatment, but another major challenge awaited Daniel, as he had to wear an ostomy bag, which he does to this day. He deals...
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143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib
Cancer Interviews
Former NFL star Rick Upchurch seemed to be in good health, but in 2010, he began to experience night sweats, fatigue and aches and pains. He saw his doctor, who ordered blood work. The test results revealed his white blood cell count was very high, and his general practitioner gave him the address of another doctor to see. Rick and his wife were shocked to learn the doctor they had been told to see was an oncologist. That doctor called for a bone marrow biopsy, which confirmed Rick had chronic myelogenous leukemia, a rare form of blood cancer that is tied to a genetic...
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142: Jeff Kallis survived renal cell carcinoma | kidney cancer | right kidney nephrectomy | diverticulosis | ct urogram
Cancer Interviews
Jeff Kallis survived renal cell carcinoma, a form of kidney cancer. When he experienced pain in his lower flank and saw blood in his urine, he sought medical attention. A CT urogram revealed a stone in his left kidney and a mass in his right kidney. A biopsy confirmed he had clear cell renal cell carcinoma. Jeff underwent a radical nephrectomy on his right kidney. The operation was painful, but a success. Through exercise and a healthy diet, Jeff says he feels better than he did before his diagnosis. He shares his story with the @CancerInterviews...
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141: John Morley survived T2 Muscle Invasive Bladder Cancer | cystectomy | prostatectomy | splenectomy
Cancer Interviews
What John Morley originally thought was a urinary tract infection turned out to be a diagnosis of bladder cancer. At first, he was told it was a mild form of the disease. Then the diagnosis was upgraded to T2 Muscle Invasive Bladder Cancer, requiring a radical cystectomy meaning he would need to get his bladder removed. His care team next told John he would also have to get his prostate taken out. Next a mass was detected on his spleen, which meant that it, too, would have to be removed. Treatment and recovery were tough, but he now urinates into a bag known as an...
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140: Jessica Wharton survived breast cancer | chemotherapy | taxol | super radiation | red devil | ptsd
Cancer Interviews
When Jessica Whorton discovered lumps on her left breast in 2011, she sought medical attention. The doctors she spoke with said breast cancer was not indicated. She walked around with the lumps for another nine months before seeking a second opinion. Tests revealed she had Stage 3A invasive ductal carcinoma. Doctors urged that she get a double mastectomy even though her right breast was still healthy. After chemotherapy and radiation, Jessica achieved survivorship in 2013. Jessica thought there was something wrong when she detected three lumps...
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139: Susan Svoboda survived hormone positive breast cancer | estrogen inhibitor | invasive ductal carcinoma | lumpectomy
Cancer Interviews
Susan Svoboda was accustomed to going in for her mammogram every November. She enjoyed a healthy lifestyle, which included running 65 half marathons. But in late 2021, after her mammogram, she was called to return to the doctor’s office. After scans and a biopsy, she was diagnosed with Stage 1-2 invasive ductal carcinoma. Given her healthy routine, Susan was shocked, but she quickly had to turn her attention to her treatment. In 2022, she underwent a successful lumpectomy. Because of the location of the lump, and her low Oncotype DX score, the oncologist...
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138: Albertina Dancy survived liver cancer | fatty liver disease | radiation treatment | chemotherapy
Cancer Interviews
In 2021, Albertina Dancy began to experience abdominal pain, but that wasn’t all. She also had gastrointestinal issues, jaundice and other problems. However, she didn’t take them seriously and thought they could be successfully addressed with over-the-counter remedies. When that didn’t happen, she sought medical attention. Albertina’s doctor said the symptoms, combined with her existing fatty liver disease, merited a trip to an oncologist. A series of scans and tests, plus the stiffness of her liver, led to a diagnosis of liver cancer. The...
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Hardeep Phull, MD is an oncologist, but he is also a patient advocate. When conventional forms of immunotherapy and chemotherapy are not effective for a cancer patient, Dr. Phull will advocate for his patients to position them for a clinical trial, if they meet the criteria to qualify for the trial.
Dr. Phull says patient advocacy needs to start with the patient, but there are instances in which the patient’s doctor can advocate, such as working with an insurance company to make sure it covers a necessary procedure. Another way a doctor can advocate for his or her patient is through empathy and empowerment. Dr. Phull says he has seen patients go from “non-compliant” to cooperative, thanks to empathy.
Dr. Phull says in some instances a patient will want to change doctors, which these days is quite understandable as an increasing number of cancer doctors are specializing in one or two types of cancer. He says if a patient wants to be treated by a doctor more specialized in their type of cancer than he is, he will try to connect the patient with such a specialist.
Three primary forms of cancer treatment are immunotherapy, genomic testing and chemotherapy. Dr. Phull says a combination of the three can be prescribed, in some cases along with a clinical trial. He says at one time genomic testing cost tens of thousands of dollars; now the same procedure has a co-pay of less than one hundred dollars.
Dr. Phull says clinical trials combine the standard of care with a newer sort of therapy, and the explosion of clinical trials will lead to an increase in good patient outcomes. He adds whatever science has achieved as of today will be far greater ten years from now.
However, in order for a patient to qualify for a clinical trial, he or she must meet a long line of criteria. And before the clinical trial may begin, a certain amount of time must elapse after the completion of a more convention treatment regimen, such as chemotherapy, to get the chemotherapy out of the patient’s system. This is called a washout.
Dr. Hardeep Phull says insurance companies will often deny coverage of a necessary procedure because it saves money. That results in he and the nurses on his staff expending untold hours with the reviewers from the insurance companies to make a case for the patient. Dr. Phull says it is frustrating to deal with a reviewer who is often reading from a script when articulating the company’s coverage denial. He says many times the patient is angry and many times in this situation, the doctor or nurse is angry; but Dr. Phull says he has changed his approach to one of empathy for the reviewer who he suspects deals with angry callers all day. He has found that an empathetic approach often gets the reviewer to take a closer look at the appeal, which often leads to coverage.
Additional Resources:
Websites:
https://www.clinicaltrials.gov
Hardeep Phull, MD on LinkedIn: https://www.linkedin.com