124: Hardeep Phull, MD is an oncologist and patient advocate | Clinical Trials | Immunotherapy
Release Date: 08/10/2024
152: erin bloodworth exercise oncologist | fitness assessment | individualized exercise program | lymphedema | neuropathy
Cancer Interviews
A clinical exercise physiologist by trade, Erin Bloodworth sought a career change and became an exercise oncologist. This enabled her to take her expertise and apply it to helping cancer patients, which she does through Northwestern Medicine Living Well. Erin says whether a patient is going through cancer treatment or is post-treatment, she puts the patient through an individualized exercise program. She assesses the patient's health with tests tied to their ability to grip objects and go from a sitting position to a standing position and...
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151: Stewart Greenfield survived stage IV bladder cancer | cisplatin | gemcidibine | novolumab | immunotherapy
Cancer Interviews
For Stewart Greenfield, the third time was the charm. After checking pictures of his bladder in 2016, two doctors told him he didn’t have long to live; a third doctor told him he had Stage IV metastatic bladder cancer, but insisted he needed to be treated. The cancer had burned a hole in his bladder and attacked lymph nodes from his groin to his neck. Treatment included a chemotherapy cocktail of cisplatin and gemcidibine, plus qualifying for an immunotherapy, novolumab. It was a smashing success. Stewart says his urinary function is normal and he is able to...
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150: Noelle Gatlin survived Stage II pancreatic cancer | Whipple procedure | pancreatic duodenectomy
Cancer Interviews
Noelle Gatlin had to endure a lengthy, multi-step process, but she survived Stage II pancreatic cancer. A visit to an emergency department revealed a mass near her pancreas. She was transferred to a hospital, where a second CT scan resulted in her diagnosis. Her care team placed a duodenal stent in Noelle, then a bile duct stent. She next underwent a 12-infusion chemotherapy regimen with folfirinox. Then she was ready for a Whipple procedure, a pancreatic duodenectomy, which was a success. Noelle says because she took care of herself before,...
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149: Laurie Adami survived follicular non-Hodgkin Lymphoma | Yescarta CAR-T Therapy | Bexxar | Gazvya
Cancer Interviews
Laurie Adami seemed to have it all. She was the president of her company, at age 40, she had just had a son and still found time to lead an active lifestyle. However, in 2003, her health took a turn for the worse. She felt a lump in her abdomen, experienced frequent, lengthy sinus infections and chronic fatigue. All this led to a diagnosis of Stage IV Follicular Non-Hodgkin Lymphoma. After six unsuccessful treatment regimens, she achieved complete remission on the seventh try, completing a battle that ran twelve years. When Laurie initially brought her...
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148: Nicole Scott Is A Kidney Cancer Caregiver | Partial Nephrectomy | Caregiver Burnout | Hernia
Cancer Interviews
Nicole Scott and her husband, Keith, worked at the same Ohio hospital. When Keith noticed abdominal pain in his left side, he thought it was muscle-related because of the physical nature of his job. The pain radiated to his groin, then what had been random occurrences of the pain became more frequent. Nicole urged Keith to seek urgent care. An emergency room doctor called for a CT scan, thinking Keith had at worst, a hernia. However, the CT scan revealed a mass on Keith’s kidney. An MRI and partial nephrectomy resulted in a diagnosis of papillary renal...
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147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy
Cancer Interviews
When Helinka Carr experienced limited rectal bleeding, because it was limited, she never thought her problem could rise to the level of cancer. She also thought the bleeding might be diverticulitis, which had been suffered by members of her family. However, at the urging of her doctor, she underwent blood tests and a colonoscopy. The latter revealed that she had bowel cancer. Thanks to two surgical procedures, she achieved survivorship but has to wear an ileostomy bag. She tires easily, but had the energy to start a line of ostomy lingerie for bag-wearing women...
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146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment
Cancer Interviews
Guy Nakoa has survived two diagnoses of Stage IV breast cancer. He initially felt a lump in his breast while showering in 2000. Because it wasn’t causing him and because he didn’t think could not get a type of cancer associated with women, I went more than a decade before he chose to have the lump checked out. In 2014, he sought medical attention, he was diagnosed and in 2016, he had the lump removed; but in 2020, the cancer returned. He was hoping it could be removed with chemotherapy and radiation treatment, but over his initial objection, he...
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145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap
Cancer Interviews
Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant. She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young. Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder. That brought on the stem cell transplant, plus chemotherapy and...
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144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA
Cancer Interviews
In 2015, Daniel Garza experienced bloating and difficulty completing a bowel movement. A subsequent digital rectal exam revealed a mass on his sphincter, which led to a diagnosis of anal cancer. A surgical procedure got rid of the cancer, but it also resulted in his losing half of his sphincter and the temporary presence of a fistula, a tear which was like a second anus. He underwent a chemotherapy regimen of 5-fluorouracil, followed by radiation treatment, but another major challenge awaited Daniel, as he had to wear an ostomy bag, which he does to this day. He deals...
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143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib
Cancer Interviews
Former NFL star Rick Upchurch seemed to be in good health, but in 2010, he began to experience night sweats, fatigue and aches and pains. He saw his doctor, who ordered blood work. The test results revealed his white blood cell count was very high, and his general practitioner gave him the address of another doctor to see. Rick and his wife were shocked to learn the doctor they had been told to see was an oncologist. That doctor called for a bone marrow biopsy, which confirmed Rick had chronic myelogenous leukemia, a rare form of blood cancer that is tied to a genetic...
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Hardeep Phull, MD is an oncologist, but he is also a patient advocate. When conventional forms of immunotherapy and chemotherapy are not effective for a cancer patient, Dr. Phull will advocate for his patients to position them for a clinical trial, if they meet the criteria to qualify for the trial.
Dr. Phull says patient advocacy needs to start with the patient, but there are instances in which the patient’s doctor can advocate, such as working with an insurance company to make sure it covers a necessary procedure. Another way a doctor can advocate for his or her patient is through empathy and empowerment. Dr. Phull says he has seen patients go from “non-compliant” to cooperative, thanks to empathy.
Dr. Phull says in some instances a patient will want to change doctors, which these days is quite understandable as an increasing number of cancer doctors are specializing in one or two types of cancer. He says if a patient wants to be treated by a doctor more specialized in their type of cancer than he is, he will try to connect the patient with such a specialist.
Three primary forms of cancer treatment are immunotherapy, genomic testing and chemotherapy. Dr. Phull says a combination of the three can be prescribed, in some cases along with a clinical trial. He says at one time genomic testing cost tens of thousands of dollars; now the same procedure has a co-pay of less than one hundred dollars.
Dr. Phull says clinical trials combine the standard of care with a newer sort of therapy, and the explosion of clinical trials will lead to an increase in good patient outcomes. He adds whatever science has achieved as of today will be far greater ten years from now.
However, in order for a patient to qualify for a clinical trial, he or she must meet a long line of criteria. And before the clinical trial may begin, a certain amount of time must elapse after the completion of a more convention treatment regimen, such as chemotherapy, to get the chemotherapy out of the patient’s system. This is called a washout.
Dr. Hardeep Phull says insurance companies will often deny coverage of a necessary procedure because it saves money. That results in he and the nurses on his staff expending untold hours with the reviewers from the insurance companies to make a case for the patient. Dr. Phull says it is frustrating to deal with a reviewer who is often reading from a script when articulating the company’s coverage denial. He says many times the patient is angry and many times in this situation, the doctor or nurse is angry; but Dr. Phull says he has changed his approach to one of empathy for the reviewer who he suspects deals with angry callers all day. He has found that an empathetic approach often gets the reviewer to take a closer look at the appeal, which often leads to coverage.
Additional Resources:
Websites:
https://www.clinicaltrials.gov
Hardeep Phull, MD on LinkedIn: https://www.linkedin.com