135: Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
Release Date: 01/28/2025
147: Helinka Carr survived bowel cancer | ileostomy bag | pelvic radiation disease | colonoscopy
Cancer Interviews
When Helinka Carr experienced limited rectal bleeding, because it was limited, she never thought her problem could rise to the level of cancer. She also thought the bleeding might be diverticulitis, which had been suffered by members of her family. However, at the urging of her doctor, she underwent blood tests and a colonoscopy. The latter revealed that she had bowel cancer. Thanks to two surgical procedures, she achieved survivorship but has to wear an ileostomy bag. She tires easily, but had the energy to start a line of ostomy lingerie for bag-wearing women...
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146: Guy Nakoa survived Stage IV breast cancer | mastectomy | ibrance | letrozole | radiation treatment
Cancer Interviews
Guy Nakoa has survived two diagnoses of Stage IV breast cancer. He initially felt a lump in his breast while showering in 2000. Because it wasn’t causing him and because he didn’t think could not get a type of cancer associated with women, I went more than a decade before he chose to have the lump checked out. In 2014, he sought medical attention, he was diagnosed and in 2016, he had the lump removed; but in 2020, the cancer returned. He was hoping it could be removed with chemotherapy and radiation treatment, but over his initial objection, he...
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145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap
Cancer Interviews
Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant. She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young. Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder. That brought on the stem cell transplant, plus chemotherapy and...
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144: Daniel Garza, Anal Cancer Survivor – Laguna Beach, California, USA
Cancer Interviews
In 2015, Daniel Garza experienced bloating and difficulty completing a bowel movement. A subsequent digital rectal exam revealed a mass on his sphincter, which led to a diagnosis of anal cancer. A surgical procedure got rid of the cancer, but it also resulted in his losing half of his sphincter and the temporary presence of a fistula, a tear which was like a second anus. He underwent a chemotherapy regimen of 5-fluorouracil, followed by radiation treatment, but another major challenge awaited Daniel, as he had to wear an ostomy bag, which he does to this day. He deals...
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143: Rick Upchurch survived chronic myelogenous leukemia | oral chemotherapy | blood cancer | tasigna | nilotinib
Cancer Interviews
Former NFL star Rick Upchurch seemed to be in good health, but in 2010, he began to experience night sweats, fatigue and aches and pains. He saw his doctor, who ordered blood work. The test results revealed his white blood cell count was very high, and his general practitioner gave him the address of another doctor to see. Rick and his wife were shocked to learn the doctor they had been told to see was an oncologist. That doctor called for a bone marrow biopsy, which confirmed Rick had chronic myelogenous leukemia, a rare form of blood cancer that is tied to a genetic...
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142: Jeff Kallis survived renal cell carcinoma | kidney cancer | right kidney nephrectomy | diverticulosis | ct urogram
Cancer Interviews
Jeff Kallis survived renal cell carcinoma, a form of kidney cancer. When he experienced pain in his lower flank and saw blood in his urine, he sought medical attention. A CT urogram revealed a stone in his left kidney and a mass in his right kidney. A biopsy confirmed he had clear cell renal cell carcinoma. Jeff underwent a radical nephrectomy on his right kidney. The operation was painful, but a success. Through exercise and a healthy diet, Jeff says he feels better than he did before his diagnosis. He shares his story with the @CancerInterviews...
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141: John Morley survived T2 Muscle Invasive Bladder Cancer | cystectomy | prostatectomy | splenectomy
Cancer Interviews
What John Morley originally thought was a urinary tract infection turned out to be a diagnosis of bladder cancer. At first, he was told it was a mild form of the disease. Then the diagnosis was upgraded to T2 Muscle Invasive Bladder Cancer, requiring a radical cystectomy meaning he would need to get his bladder removed. His care team next told John he would also have to get his prostate taken out. Next a mass was detected on his spleen, which meant that it, too, would have to be removed. Treatment and recovery were tough, but he now urinates into a bag known as an...
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140: Jessica Wharton survived breast cancer | chemotherapy | taxol | super radiation | red devil | ptsd
Cancer Interviews
When Jessica Whorton discovered lumps on her left breast in 2011, she sought medical attention. The doctors she spoke with said breast cancer was not indicated. She walked around with the lumps for another nine months before seeking a second opinion. Tests revealed she had Stage 3A invasive ductal carcinoma. Doctors urged that she get a double mastectomy even though her right breast was still healthy. After chemotherapy and radiation, Jessica achieved survivorship in 2013. Jessica thought there was something wrong when she detected three lumps...
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139: Susan Svoboda survived hormone positive breast cancer | estrogen inhibitor | invasive ductal carcinoma | lumpectomy
Cancer Interviews
Susan Svoboda was accustomed to going in for her mammogram every November. She enjoyed a healthy lifestyle, which included running 65 half marathons. But in late 2021, after her mammogram, she was called to return to the doctor’s office. After scans and a biopsy, she was diagnosed with Stage 1-2 invasive ductal carcinoma. Given her healthy routine, Susan was shocked, but she quickly had to turn her attention to her treatment. In 2022, she underwent a successful lumpectomy. Because of the location of the lump, and her low Oncotype DX score, the oncologist...
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138: Albertina Dancy survived liver cancer | fatty liver disease | radiation treatment | chemotherapy
Cancer Interviews
In 2021, Albertina Dancy began to experience abdominal pain, but that wasn’t all. She also had gastrointestinal issues, jaundice and other problems. However, she didn’t take them seriously and thought they could be successfully addressed with over-the-counter remedies. When that didn’t happen, she sought medical attention. Albertina’s doctor said the symptoms, combined with her existing fatty liver disease, merited a trip to an oncologist. A series of scans and tests, plus the stiffness of her liver, led to a diagnosis of liver cancer. The...
info_outlineArt Still’s body felt the ravages of playing professional football for twelve years, but when he suffered atrial fibrillation, he sought medical attention. His doctor suggested he undergo a genetic test, which revealed he had the variant for a disease known as amyloidosis. While not cancer, if left untreated in a timely manner, it can lead to various types of blood cancer. Early detection, periodic shots and medication will not get rid of the variant, but they will team up to keep from developing into blood cancer. Art pays attention to diet, exercise and the right amount of sleep, and says he enjoys a healthy lifestyle.
Art accepted carpal tunnel syndrome, trigger finger and a torn biceps muscle as the byproducts of his NFL career, but atrial fibrillation was different. Through the National Football League Players Association, he went to New Orleans for a thorough physical and mental examination. His doctor suggested Art undergo a genetic test to see if Art had a variant for amyloidosis, a disease which if left untreated can be linked to various types of blood cancer. A brother of his had undergone heart replacement, and another brother needs one. That combined with the suggestion from the doctor was enough to get Art to take the test, and sure enough, it indicated he had the V122I variant, which Art says affects one in 25 African-Americans.
He is now on a regimen that includes medications and periodic shots. It will not rid Art of the variant, but keeps it at bay so that it doesn’t become cancerous, affecting other organs like kidneys and the brain.
Art Still wants to maximize awareness of amyloidosis, and has established a website that provides a wealth of information on the subject so that like Art, others can get in front of the disease.
Additional Resources:
Art’s website: https://www.amyloidosisarmy.org