135: Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
Release Date: 01/28/2025
Cancer Interviews
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After a long list of health issues, Karen Humphries was diagnosed with a rare type of bile duct cancer called cholangiocarcinoma. She was initially diagnosed in 2021 with Stage 2B gallbladder cancer, had her gallbladder removed, after which the diagnosis was changed to Stage 4 cholangiocarcinoma. Karen underwent a two-part liver resection and a chemotherapy regimen and went into remission. Two years later, she was again diagnosed with cholangiocarcinoma. Her treatment included biliary stents. Karen knows her cancer is incurable but has survived and leads a happy...
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Erin Cummings is still going strong despite being diagnosed with Hodgkin lymphoma in 1972. At age 15, she noticed a lump on her throat and another on her chest. That led to a diagnosis of Stage 3B Hodgkin lymphoma. She was shocked at her diagnosis but initially had trouble putting into perspective just what she was up against because she cancer was something suffered by old people. Even though she achieved survivorship, she still deals with residual side effects from her treatment regimen. Nonetheless, Erin has gone on to compete in eight marathons and has...
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Art Still’s body felt the ravages of playing professional football for twelve years, but when he suffered atrial fibrillation, he sought medical attention. His doctor suggested he undergo a genetic test, which revealed he had the variant for a disease known as amyloidosis. While not cancer, if left untreated in a timely manner, it can lead to various types of blood cancer. Early detection, periodic shots and medication will not get rid of the variant, but they will team up to keep from developing into blood cancer. Art pays attention to diet, exercise and the right...
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Diana Ash had suffered from irritable bowel syndrome much of her life, but in 2019, she believed the IBS symptoms she felt were something altogether different. Her concerns were proven correct when an ultrasound indicated a mass near her abdomen the size of a “mini football.” Not long after that, she was diagnosed with Stage 1C Ovarian Cancer. Diana underwent an oophorectomy, a surgical procedure that successfully removed one ovary and one fallopian tube. After the surgery, she had to undergo BEP chemotherapy, an extremely aggressive regimen. However, she...
info_outlineArt Still’s body felt the ravages of playing professional football for twelve years, but when he suffered atrial fibrillation, he sought medical attention. His doctor suggested he undergo a genetic test, which revealed he had the variant for a disease known as amyloidosis. While not cancer, if left untreated in a timely manner, it can lead to various types of blood cancer. Early detection, periodic shots and medication will not get rid of the variant, but they will team up to keep from developing into blood cancer. Art pays attention to diet, exercise and the right amount of sleep, and says he enjoys a healthy lifestyle.
Art accepted carpal tunnel syndrome, trigger finger and a torn biceps muscle as the byproducts of his NFL career, but atrial fibrillation was different. Through the National Football League Players Association, he went to New Orleans for a thorough physical and mental examination. His doctor suggested Art undergo a genetic test to see if Art had a variant for amyloidosis, a disease which if left untreated can be linked to various types of blood cancer. A brother of his had undergone heart replacement, and another brother needs one. That combined with the suggestion from the doctor was enough to get Art to take the test, and sure enough, it indicated he had the V122I variant, which Art says affects one in 25 African-Americans.
He is now on a regimen that includes medications and periodic shots. It will not rid Art of the variant, but keeps it at bay so that it doesn’t become cancerous, affecting other organs like kidneys and the brain.
Art Still wants to maximize awareness of amyloidosis, and has established a website that provides a wealth of information on the subject so that like Art, others can get in front of the disease.
Additional Resources:
Art’s website: https://www.amyloidosisarmy.org