Iona Novak, PhD and Madison Paton, PhD: What's the Deal with Stem Cells Anyway?
Release Date: 04/28/2020
Coffee Talk with Nathalie Maitre, MD, PhD - Preventive Care and Vaccines
Cerebral Palsy Health
Jen and Nathalie discuss general preventive care, including vaccines for individuals with CP. We cover the what you should expect from your pediatrician or provider, ways to advocate for yourself or your loved one, and things you can do to make visits more comfortable. We also discuss vaccines, including how they work in the body and the controversies surrounding them.
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Cynthia Frisina, MA, CARSS: Cerebral Palsy Advocacy
Cerebral Palsy Health
In this episode, guest and CPF Senior VP of Strategic Partnerships and Advocacy, Cynthia Frisina, gives us a behind the scenes look at how Cerebral Palsy Awareness Day and month came to be and what exactly it means! She helps us understand the importance of advocacy and the exciting possibilities for cerebral palsy advocacy moving forward, with the help of parents, individuals with CP, and community members. She helps us better understand what advocacy for cerebral palsy is all about and how we can all get involved! About Cynthia: Cynthia Frisina is a global expert on disability...
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Erica Caffrey, DDS and Sydnee Chavis, DMD, MS: Oral Health and Dentistry for Cerebral Palsy
Cerebral Palsy Health
In this episode, guests Dr. Erica Caffrey and Dr. Sydnee Chavis provide their unique expertise and experience in dentistry and oral heathcare for individuals with Cerebral Palsy and other disabilities across the life span. Both are professors of dentistry who have a passion for advocacy, education and access to high quality dental care for those with disabilities. This podcast covers the topics of general oral health, tooth brushing, fluoride, x-rays, pain, dental trauma, braces and accessibility to care and care providers. Dr. Erica Caffrey joined the pediatric dentistry faculty in the...
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Coffee Talk with Nathalie Maitre, MD, PhD: Research
Cerebral Palsy Health
Jen and Nathalie discuss the ins and outs of research, including the different phases of research trials, types of research trials and questions to ask your therapists when they recommend a treatment or intervention.
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Coffee Talk with Nathalie Maitre, MD, PhD: Fitness
Cerebral Palsy Health
Today we're talking about fitness and CP...why fitness is important, how we have incorporated fitness into our son's lives, how we have found gyms and personal trainers and what you should be asking your doctors or therapists so you can help your loved one get fit and stay fit from childhood on.
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Golda Milo-Manson: Sleep Struggles and Solutions for CP
Cerebral Palsy Health
In this episode with sleep expert and developmental pediatrician, Dr. Golda Milo Manson, we discuss the variety of sleep issues that occur for children with Cerebral Palsy and potential solutions for families. Dr. Milo-Manson covers how to prevent sleep issues, behavioral and pharmacologic interventions, and how to know what to use, for whom and when. Dr. Golda Milo-Manson is the Vice-President of Medicine & Academic Affairs at Holland Bloorview Kids Rehabilitation Hospital, a role she has held for 20 years. She is also an Associate Professor in the Department of Paediatrics at the...
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Coffee Talk with Nathalie Maitre, MD, PhD: Sleep
Cerebral Palsy Health
On this episode of Coffee Talk with Nathalie, we discuss sleep and the complexities of the sleep issues that we have experienced over the years. Nathalie offers insights and advice as both a parent of a young man with CP and a pediatrician.
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Coffee Talk with Nathalie Maitre, MD, PhD: Parenting and Mental Health
Cerebral Palsy Health
In this new series within Cerebral Palsy Health, Jen sits down with Nathalie Maitre, MD, PhD to talk about parenting, our shared experiences raising sons with CP and more!
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Nathan Rosenberg, MD: Talking Participation
Cerebral Palsy Health
On this episode I am talking with physiatrist Nathan Rosenberg about participation, helping parents (and me) make decisions about treatments and sorting through when treatment is worth it or not. Nathan Rosenberg, MD, is a Pediatric Rehabilitation Physician (Pediatric Physiatrist) at Nationwide Children's. He is the medical director of the rehabilitation inpatient consultation service. Additionally, he participates in outpatient clinics caring for children with cerebral palsy, brain injury, spinal cord injury and a host of additional conditions that impact how a child functions. He...
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Nathalie Maitre, MD, PhD - Early Detection, Early Intervention and the Wonders of Baby Brains
Cerebral Palsy Health
On this episode of Cerebral Palsy Health, Jen talks with neonatologist and researcher Nathalie Maitre about her work with Cerebral Palsy Foundation to create an early detection and intervention network, what this means for babies and their families and how this is being scaled to meet needs in more and more places. Nathalie talks about how babies learn, how CP can interrupt this process and how interventions can help. She also talks about her motivation and why she is so passionate about helping babies at such a young age. Nathalie's Bio: Dr. Nathalie Maitre MD, PhD (Emory...
info_outlineOn this episode I talk with two of the world’s leading researchers… Dr. Madison Paton and Dr. Iona Novak on stem cell treatment for cerebral palsy. Stem Cells have been a hot topic in Cerebral Palsy for at least 15 years now, with many parents and researchers hoping that at the least, stem cells will lessen the impact of CP and at most hold the key to a cure. Dr. Paton and Dr. Novak will share their insider knowledge into this subject and help us sort through the hype and so we can hold onto our hope.
We discuss the various types of stem cells and how they might benefit those with CP. We also discuss current research, Jen's experience with her son's stem cell trial, how to learn about other stem cell trials and where to find resources. We also talk about stem cell tourism and issues to be aware of with these operations.
Professor Iona Novak is the Head of Research for the Cerebral Palsy Alliance Research Institute, located at the Brain Mind Centre, in the University of Sydney (in Australia). Iona is a Fulbright Scholar, and has won the Western Sydney University Chancellor's Award for Alumni of the Year and The University of Sydney Award for Professional Achievement. She co-founded the Cerebral Palsy Alliance Research Institute for the purpose of: prevention, cure and treatment of cerebral palsy. Driven by an internal belief that healthcare truly has the potential to change lives, Iona has pursued projects and roles that will have the greatest possible impact on children and families in today’s and tomorrow’s world. She is passionate about evidence-based practice; knowledge translation, neuroplasticity; stem cells and neuroregenerative clinical trials. Iona leads a collaborative research team that is currently conducting the world’s largest ever, cerebral palsy early intervention trial, exploring whether harnessing neuroplasticity can reduce the severity of disability.
Dr Madison Paton is a Research Fellow at the Cerebral Palsy Alliance Research Institute. She received her PhD in 2018 investigating stem cell therapies to protect the developing brain. She has been working in the field of cell therapies and cerebral palsy for more than 7 years and has transitioned from working in the lab, to helping develop clinical trials that drive the research pipeline. Madison’s early work focussed on stem cells collected from the placenta and how we can best protect from brain injury occurring during pregnancy or around the time of birth. She now is interested in applying these therapies to treat babies and children with a risk of brain injury or cerebral palsy. Dr Paton is passionate about science communication, engaging with consumers, and sharing the best available evidence on stem cells.
Show Resources:
Australian Stem Cell Handbook:
Parents Guide to Cord Blood:
https://parentsguidecordblood.org/en/about
Clinical Trails.gov:
Patients Like Me:
https://www.patientslikeme.com/conditions/cerebral-palsy
State of Evidence Traffic Lights 2019: Systematic review of Interventions for Preventing and Treating Children with Cerebral Palsy
https://drive.google.com/file/d/1AUsJaz65HoY3bjPfBryoC6-AF0KVnHBN/view?usp=sharing