Ginny Paleg, PT, DScPT: Considering the Alternatives - Exploring DMI
Cerebral Palsy Health
On this episode, Jen interviews Ginny Paleg, PT, DScPT to discuss her recent research surrounding Dynamic Movement Intervention. This therapy has gained popularity in recent years and is frequently recommended by therapists, but is the evidence to support its use? Ginny helps break this down as we explore what does and does not have evidence and why some of these "intensives" are so popular with families.
info_outline
Belinda Deramore Denver, PhD, OT: Understanding Vision in Children with Cerebral Palsy
Cerebral Palsy Health
In this special episode, Jen interviews Belinda Deramore Denver, PhD, OT while at the AACPDM annual meeting in New Orleans. Dr. Denver's work focuses on vision in children with Cerebral Palsy and she is the principal developer of the new Measure of Early Vision Use. Belinda's clinical and research interest lie in addressing the gaps in current assessment and intervention practices for children with visual impairment and she is motivated to share best practice with more children and families, including those with visual impairments. We encourage you to take the MEVU on the attached link,...
info_outline
SPECIAL EPISODE: CELEBRATING RESILIENCE - AACPDM 2025 IN NEW ORLEANS
Cerebral Palsy Health
In this special episode, we highlight the upcoming AACPDM 2025 Conference in New Orleans, and we discuss the following with our guest, Dr. Theresa Sukal Moulton and fellow podcasters, Azucena Gardia, Dr. Kilby Mann and Dr. Tyler McDonald 1. General theme and vision behind this year's conference in New Orleans 2. New Orleans is the host city, and we can expect. 3. How the four-day program and the keynote speakers were chosen 4. This year, we are incorporating several new elements, including the Navigator Access Program, Community Council track, Awards, and more! There is still time to...
info_outline
Coffee Talk with Nathalie Maitre, MD, PhD - Preventive Care and Vaccines
Cerebral Palsy Health
Jen and Nathalie discuss general preventive care, including vaccines for individuals with CP. We cover the what you should expect from your pediatrician or provider, ways to advocate for yourself or your loved one, and things you can do to make visits more comfortable. We also discuss vaccines, including how they work in the body and the controversies surrounding them.
info_outline
Cynthia Frisina, MA, CARSS: Cerebral Palsy Advocacy
Cerebral Palsy Health
In this episode, guest and CPF Senior VP of Strategic Partnerships and Advocacy, Cynthia Frisina, gives us a behind the scenes look at how Cerebral Palsy Awareness Day and month came to be and what exactly it means! She helps us understand the importance of advocacy and the exciting possibilities for cerebral palsy advocacy moving forward, with the help of parents, individuals with CP, and community members. She helps us better understand what advocacy for cerebral palsy is all about and how we can all get involved! About Cynthia: Cynthia Frisina is a global expert on disability...
info_outline
Erica Caffrey, DDS and Sydnee Chavis, DMD, MS: Oral Health and Dentistry for Cerebral Palsy
Cerebral Palsy Health
In this episode, guests Dr. Erica Caffrey and Dr. Sydnee Chavis provide their unique expertise and experience in dentistry and oral heathcare for individuals with Cerebral Palsy and other disabilities across the life span. Both are professors of dentistry who have a passion for advocacy, education and access to high quality dental care for those with disabilities. This podcast covers the topics of general oral health, tooth brushing, fluoride, x-rays, pain, dental trauma, braces and accessibility to care and care providers. Dr. Erica Caffrey joined the pediatric dentistry faculty in the...
info_outline
Coffee Talk with Nathalie Maitre, MD, PhD: Research
Cerebral Palsy Health
Jen and Nathalie discuss the ins and outs of research, including the different phases of research trials, types of research trials and questions to ask your therapists when they recommend a treatment or intervention.
info_outline
Coffee Talk with Nathalie Maitre, MD, PhD: Fitness
Cerebral Palsy Health
Today we're talking about fitness and CP...why fitness is important, how we have incorporated fitness into our son's lives, how we have found gyms and personal trainers and what you should be asking your doctors or therapists so you can help your loved one get fit and stay fit from childhood on.
info_outline
Golda Milo-Manson: Sleep Struggles and Solutions for CP
Cerebral Palsy Health
In this episode with sleep expert and developmental pediatrician, Dr. Golda Milo Manson, we discuss the variety of sleep issues that occur for children with Cerebral Palsy and potential solutions for families. Dr. Milo-Manson covers how to prevent sleep issues, behavioral and pharmacologic interventions, and how to know what to use, for whom and when. Dr. Golda Milo-Manson is the Vice-President of Medicine & Academic Affairs at Holland Bloorview Kids Rehabilitation Hospital, a role she has held for 20 years. She is also an Associate Professor in the Department of Paediatrics at the...
info_outline
Coffee Talk with Nathalie Maitre, MD, PhD: Sleep
Cerebral Palsy Health
On this episode of Coffee Talk with Nathalie, we discuss sleep and the complexities of the sleep issues that we have experienced over the years. Nathalie offers insights and advice as both a parent of a young man with CP and a pediatrician.
info_outlineOn this episode, I have the honor of talking with Wendy Pierce, MD, a pediatric physiatrist at Colorado Children's Hospital about physiatry, also known as Physical Medicine and Rehabilitation. This fantastic field of medicine can be helpful for individuals with cerebral palsy across with lifespan, but it has a confusing name and sometimes a confusing job description. So we set out to help listeners better understand what a physiatrist does.
We discuss the history of physiatry, the conditions they treat, the types of medical interventions they utilize, and what the practice of physiatry looks like for individuals with cerebral palsy.
Dr. Wendy Pierce is board certified in Physical Medicine and Rehabilitation with a pediatric subspecialty. Her focus is on improving the function of children with chronic illnesses including cerebral palsy. She earned her medical degree from Northwestern University and completed her residency at Baylor College of Medicine. She started at Children's Hospital Colorado, where she completed a fellowship in pediatric rehabilitation medicine. Dr. Pierce began her career at Rady Children's Hospital San Diego then in April 2014 started at Children’s Rehabilitation Clinic in Colorado Springs. She is faculty at the University of Colorado.
She has served on several committees of the American Academy for Cerebral Palsy and Developmental Medicine. She is a member of the data review team for the clinical gait lab at Children’s Hospital and serves on the board of the Commission of Motion Lab Accreditation.
She and her husband Aaron have volunteered for the adaptive ski program at Children’s Hospital Colorado, which is how they met. She serves as bus staff and medical consultant. Her husband is a sit ski instructor for the program. Her husband is a mechanical engineer by training and now works for Numotion as an Assistive Technology Professional. They have 2 happy girls – Penelope age 4 and Abigail age 2 and 1 cat and 6 hens.
Resources Discussed:
Where to find a physiatrist: https://members.aapmr.org/AAPMR/AAPMR_FINDER.aspx
or
https://www.aacpdm.org/providers/
National Sport Center For the Disabled: