CF Podcast 167: CF: Living Life with a Terminal Illness
Jerry Cahill's Cystic Fibrosis Podcast
Michael Bramhall Michael is 24 years old with CF and 5 months post double lung transplant. Michael is from Nebraska, and loves fishing, hunting, exercising, and EMS. Michael also loves the outdoors and helping people. He was diagnosed at 4 months old and has a younger sister who is 20 years old, without CF. Michael never let’s his CF stop him from doing the things he enjoys In 2001 Mike began to understand the severity to his CF, due to a collapsed lung. Michael believes that with a life threatening disease “feel lonely at times” is typical, so you need an outlet like exercise to feel...
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CF Podcast 164: Cystic Fibrosis & Mental Well-Being
Jerry Cahill's Cystic Fibrosis Podcast
Adriane De Moerloose Adriane is married with 3 children, and currently resides in North Carolina. She and her husband are the happy parents of 3 children. Alexis 7, Andrew 4.5, with CF, and Olivia who passed away 6 years ago from a rare heart disease. She currently enjoys running, biking, and hiking with her family. She also enjoys writing, listening to music and working out at the gym. She believes it is important to have inner strength and always be positive. Adriane and her husband, Peter, believed that they needed to “buckle down” and get ready for another battle when...
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CF Podcast 163: Strength and Fitness in CF Care with Will Schlucter
Jerry Cahill's Cystic Fibrosis Podcast
In this podcast we meet Will Schlucter, a 26 year-old CF patient who owns his own gym, Will Power Strength and Conditioning. After years during his youth of taking breaks during athletics, Will decided, as an adult, to push through his coughing, expand his limits, and leave his comfort zone while working out - which led to a love of training himself and other people. This video podcast/vodcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.
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CF Podcast 162: Brayden Merrill, #MyFitCFLife Contest Winner
Jerry Cahill's Cystic Fibrosis Podcast
Today, you will meet Brayden Merrill, a 14-year-old with cystic fibrosis who stays healthy by playing soccer, track, and cross country. For someone so young, he is very open about his disease and uses it as a reason to train harder – uses it to his advantage as a motivation. His younger brother Noah (8) also has CF, and Brayden does everything he can to be a good role model and to teach him how to stay healthy. This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.
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CF Podcast 161: Sabrina Walker, Cystic Fibrosis and Cancer Survivor
Jerry Cahill's Cystic Fibrosis Podcast
Today, we meet Sabrina Walker who is 30 years old living, breathing, and succeeding with cystic fibrosis in Anchorage, Alaska. Growing up, her parents encouraged her to stay active and play sports – not allowing her to make excuses about why CF would stop her. Sabrina’s mom is the person who sparked her love of running in order to keep her lungs clear. Not only does Sabrina battle CF on a day-to-day basis, she is also a cancer survivor, wife, and mother who keeps a positive attitude through it all. This video podcast/vodcast was made possible through an educational grant from...
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CF Podcast 160: Callie Deanda Jumping the Fear With CF
Jerry Cahill's Cystic Fibrosis Podcast
CF Podcast: Callie Deanda Name: “Jumping the Fear with CF Sponsor: Genentech Callie Deanda,: 20 years old with CF, athletic, attending college, and from Tennesse Hobbies include soccer (plays on varsity team), hiking, cross-stitching Watching Buffy & Vampire Slayer with friends and Callie is a huge Sporting Clays fan Callie believes that we all need to “jump the fear” with CF.you never know what’s going to happen in life… big fear of the unknown things just happen so ENJOY! Family “24 hour rule” get over things in life and move forward… Callie and her family...
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CF Podcast 159: Cystic Fibrosis Medical Support Team
Jerry Cahill's Cystic Fibrosis Podcast
In this podcast, we hear from Jerry’s CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Medical Center have become like extended family – a group of caring individuals who tirelessly work to make sure he has a long, successful life. This video podcast/vodcast was made possible through an unrestricted educational grant made from Gilead to the Boomer Esiason...
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CF Podcast 158: CF Support Systems – Jerry’s Life as a Pole Vault Coach
Jerry Cahill's Cystic Fibrosis Podcast
In this podcast, we meet some of “Jerry’s kids” – the young athletes he dedicates a great deal of his time to coaching in the sport of pole vault. Just as in his professional life, Jerry runs a tight ship… something his kids would heartily confirm. And it is that passion and dedication that inspires these athletes to work harder and longer than anyone else on the track. In turn, that hard work continues to inspire Jerry in his own life living with cystic fibrosis. This video podcast/vodcast was made possible through an unrestricted educational grant from Allergan to the...
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CF Podcast 157: CF Moms featuring Mary Cahill
Jerry Cahill's Cystic Fibrosis Podcast
In this podcast, Mary Cahill – mother to Jerry Cahill – sits down to discuss what it was like raising a CF child among her other “normal” children. She shares the story of his diagnosis and the subsequent decision that she and her husband made to treat Jerry the exact same as his siblings – encouraging him to play sports and get out and be as active as possible. This decision led Jerry to live an active, healthy, and successful life, enabling him to get to where he is today. This educational video podcast was made possible through an unrestricted educational grant from...
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CF Podcast 156 - Jerry Cahill: 4 Years Post-Transplant
Jerry Cahill's Cystic Fibrosis Podcast
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Wise words given to CF mom, Whitney Randles, from her boys’ grandfather: “Special children are only given to special people.”
Pat Randle: “My biggest fear is that I outlive my children – simple as that; that shouldn’t be. And I don’t want that to happen. That’s where it begins and ends with the fear. I don’t want that to happen.”
In this podcast, CF parents Pat and Whitney Randles, discuss the challenges they have faced while raising two young sons with cystic fibrosis. While most parents face the normal ups and downs of learning to raise kids, the Randles had additional challenges when they were told that they oldest son, Colin (now 11), had CF. When their second son, Sean (now 9), was born with CF – they faced an additional set of trials, balancing schedules and medications, among other things.
The Randles are constantly learning the best way to raise their kids. They depend on one main phrase every day: “Do CF life first, then do your normal life.” By constantly challenging their boys to stay compliant and healthy, they are instilling skills both Colin and Sean will hold onto into the future.
This CF video podcast was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.